autism-advice

If you’re asked to do a thing and you say, “Sorry, I can’t do that. I’m disabled.”

Then they ask, “Oh? What’s wrong with you?”

It is perfectly acceptable to reply, “I just told you what’s wrong with me. I’m disabled.”

It’s none of their business what precisely makes you disabled.

The only information you should share is any accommodations you may require, for your own sake.

All About Voice

Why are you yelling?

I have trouble modulating the volume of my voice, especially when I am excited or drunk. I do really well in a one on one setting, but add more people to the mix and I have a tendency to get louder and louder (or quieter and quieter, if I don’t know any of them). When I was a kid, the most common thing I was ever told was, “Shhhhhh!” I don’t consider myself a dominant person but I accidentally dominate social situations if I get overstimulated and start yelling. I could be talking about plant based consciousness but everyone else will start paying attention if I reach the point of screaming. My best friends are the people who I can joke about my yelling with, my favorite being, “IT’S OKAY I’M ACTUALLY VERY RELAXED RIGHT NOW. THIS IS THE MOST RELAXED I’VE EVER BEEN IN MY ENTIRE LIFE.” 

Why do you keep repeating that?

Echolalia. Just the sound of the word helps me calm the fuck down. I think it’s just a verbal form of stimming, or sound stimming, or talking stimming. I have learned not to do this in front of other people but if an animal shows up, it’s on. I echolalia nicknames for my cat and made a post about this a while ago. Recently, I have developed a new string that goes, “Hello, hello-erson, hello-shki, hello-zers, hello-ington, hello-ingway,” etc. I do that to my cat and HE LOVES IT. Humans think it’s weird. I also do echolalia if I am sick or upset. If I am unable to do my regular stim, then echolalia is the next best thing. I often mimic animal noises, especially cats, and I really like when a cat and I can just make noises back and forth at each other for as long as the cat will keep “talking.” 

Why do you have inconsistent talking habits?

They seem consistent to me. I talk (a lot) to people I know. When I meet strangers, there is a silent observation period before I start talking to them, but if someone is obviously difficult to read or hurtful toward others, that person gets tagged, “do not talk to or around them.” This is called, “Selective Mutism” and I have very little control over it. It is not a choice not to speak to someone and attempting to speak to a person who my brain has already rejected usually results in an overdraft of spoons. It can also happen with people who I once cared a great deal for. If I love a person a lot and the relationship becomes broken, I lose my ability to interact with them. 

Incidentally, if you can put all of this together, I can only yell around people who love me and am silent around people who I have been hurt by.

HELLO if you are autistic like me or have a sensory processing disorder, noise might be a BIG problem for you in your every day life wether at home, school or work.

I recently bought two pairs of these, though I’m not sure about in the US, they have free shipping in the U.K. and only cost £2.20!!

They are fantastic at keeping sound out, they are attached with a cord to avoid them falling out and being lost and they come in a very small handy plastic case and are easy to take with you and place discreetly in your bag or pocket :))

They are soft and block out noise very well and they have helped SO MUCH with reducing meltdowns and sensory overload and distress caused from noise, for example we were having work done in our garden with lots of mechanical tools and it was also very hot so I had to keep my windows open, but using these made the noise almost non existent I really do recommend these!!

Not only do they work tremendously, they are very cheap and small and easy to use!!

https://www.amazon.co.uk/Moldex-Rockets-Cord-Earplugs-Pair/dp/B004KIT5H2

write autistic protagonists

write autistic girls

write autistic super heroes, shapeshifters, guards, royalty, teachers, and literally every role/title that exists in literature

write autistic parents, who are good parents, who are loving parents, who use their quirks to help their children succeed and grow

write autistic love interests. write autistic people as people who other people have crushes on, who are worthy of that kind of love, who can get date, get married, and do literally everything we’re told no one would want to do with us

write autistic lesbians. write autistic bisexual characters. write autistic pansexual, asexual, and aromantic characters.

write autistic characters who aren’t just side characters whose autism sometimes is a “burden” to the main Alistic™ protaganist. write us as more than a trope for your allistic audience to sympathize with and feel sorry for. Write us boldly. Write us like real people, who have feelings, complexity, and worth. We aren’t a cheap trope.

So, for any autistics who don’t know what wine tastes like, I’d never had alcohol until last night, and for any of you who want to know what it’s like:

It starts off good. It kinda tastes like grapes, very faintly, but it’s there.

Then you hit the taste of alcohol and it all goes to shit.

So you have to swallow it quickly so that you can avoid the taste of alcohol.

And for some reason, when you swallow it, your throat and ear passages feel kinda warm and sometimes it stays there for a bit.

It’s definitely an acquired taste.

(submitted by anonymous)

anonymous asked:

Hi!! Do you know anything about colour synaesthesia! (or synaesthesia in general) I'm writing a character with it and I recently saw that people with autism can experience it? I've also heard people with psychosis can experience it! I've done a lot of googling and I haven't really found anything concrete on it and what it can be a symptom of and synaesthesia in general Thank you!

Answers courtesy the Scriptshrink consultants!

Snail

With synaesthesia there is a link between different senses, so a stimulus is experiences in an unusual way. If your character has colour synaesthesia, consider which senses are linked to the colours. For example:

  • Robert sees letters in different colours. A is crimson red, B is tangerine, et cetera.
  • Momoko insists that Sunday is aquamarine.
  • Shouq can describe the shape and colour of each of her friends.
  • Elijah loves it when the grandfather clock chimes because the colours shift between oranges and reds. 

Your character might experience synaesthesia in only one area, or in multiple areas. I suggest one of the first things to think about with your character is whether they projective or associative synaesthesia. If they have projective synaesthesia they will actually see colours when they hear certain sounds. If they have associative synaesthesia they will not see the colour in their field of vision, but might describe their best friend’s voice as being “cherry red”.

Your character may or may not realise that their way of perceiving the world is unusual. I have associative synaesthesia between tastes and shapes/colours. To me, flavours have different shapes and colours. However, I did not realise that that was unusual until very recently – I was cooking a meal for a friend and asked what spices she had because I needed to add a spiky orange flavour. It was frustrating when she didn’t understand what I meant. Later, I asked what round brown sauces she had so that I could add a little one of the side dishes. Her response was “well, I’ve got some HP at the back of the cupboard, but that’s the only brown sauce I have”. I clarified that I wanted a sauce whose flavour was round and brown, but she didn’t know what I meant then either. To me it was completely obvious that flavours have different shapes and colours. Ketchup is tall and spiky, in the same way that miso is a wide, shallow arc – they just are. Although I know that flavours don’t literally have these colours and shapes, to me those are undisputedly the colour that they are. It’s the same way that most people would describe Beethoven’s Moonlight Sonata ( https://www.youtube.com/watch?v=nT7_IZPHHb0 ) as “sad” – it’s just a bunch of notes strung together, but it still makes you feel an emotion. To have someone not understand what I meant when I described a flavour using shapes and colours was like someone not being able to understand me describing a song as sad. “It’s a taste, so how can it be a colour?” is the same as “it’s just sounds, so how can it be an emotion?”

Although I am autistic, you don’t need to have autism to experience synaesthesia. Interestingly, there was a study published recently about the potential link between autism and synaesthesia -  http://www.sussex.ac.uk/newsandevents/index?id=39479

0asis

You don’t need to have psychosis or autism to have synesthesia. I experience grapheme-color synesthesia and I don’t know that there’s any correlation to that and mental illness. It’s just a unique way of looking at things.

Letters have certain colors in my head. People have certain colors. One of my characters is dark blue. I just think of blue when I think of him and it’s due simply to the fact that his eyes are blue. The name of an album is red because the cover is red. Your senses are somewhat crossed anyway - lose your sense of smell, and your sense of taste significantly diminishes. It’s just associating things with other things. It’s deeper thinking, a deeper perspective.

Anon32

Color and visual synesthesia is rare for me, but I get it where sound has a feeling pretty much daily, the road noise of some asphalt makes my teeth hurt. The texture and look of pressed board clipboards is nails on a chalkboard. But I can also sometimes get color to sounds/music, and other color associations, but they are faint and I don’t really pay attention to them because they just, feel normal to me. Like, if my mother is a soft lavender then that’s just part of who she is like having brown hair, it’s background information to me. But the first two things, those are jarring so it’s hard to ignore them.


Followers with synesthesia, do you have anything to add?

Disclaimer 

its-furiohsa-not-furiosah  asked:

Hi there, DrFerox I am currently a pre-vet undergrad that may possibly be diagnosed with Asperger's Syndrome. I am worried a diagnosis could keep me from being a vet or from being a good vet. I feel like I have a unique connection with animals, but not so much people. Do you know anyone in the Veterinary field that are Aspies and would you think being one would hinder a vet greatly? Thank you.

I don’t specifically know any vets with Asperger’s Syndrome, or whatever they would prefer to be labeled, but I am not privy to most other people’s inner workings of the brain. There are many that I suspect, or know, have something going on, but I have no right to know those details. Those that I do specifically know about have either decided to tell me, or (for some unfathomable reason) their mothers have decided to tell me.

The veterinary community attracts a lot of people who feel more connected to animals than they do to humans, and who feel animals understand them better than humans, so I highly doubt you would be alone with your potential new label. And it really is just a label, it’s there to help you understand yourself, not to shove you in a box.

There are lots and lots of veterinarians practicing who are ‘a bit odd’ in one way or another. It comes with the territory.

I wouldn’t worry about Asperger’s Syndrome, or anything on the autism spectrum, from holding you back in veterinary medicine if you’ve already come to the conclusion that it’s the thing that interests you, and you can make your way through the entrance interview. Vet school does have some lessons on how to talk to clients and approach people, which is very handy. You get better with practice.

I have met lots and lots of vets and I don’t think a single one of us is ‘normal’.

Top 10 Things I really wish people would understand about autism

1. Autism is CLEARLY an autosomal recessive genetic trait that is not effected by gender, class or race. (meaning black women are just as likely to be autistic as white boys people!) This also means autism doesn’t just magically go away at age 18; it is  forever.  Negative symptoms of Autism can get better or worse by learning coping strategies or getting more overwhelmed physically and mentally.


2. There is no way vaccines could cause autism; even if autism wasn’t a genetic trait, which it is!


3. Being autistic means you are smarter, have an overall higher cognition level of most things/a higher I.Q. ,not lower compared to most people.

Autistic people tend to be far more creative, intelligent, strong willed and honest then the average person.


4. If a person cannot speak this doesn’t mean that person can’t hear you, understand you, or that they are incompetent or unintelligent.


5. Being “socially stupid” does not mean that you are stupid at everything else.


6. Some Autistic kids really need home school and some really need the push for more social interaction in public school.


7. The main “problem for autistic people” isn’t “behavior issues” it’s communication issues and having a nervous system that makes the person 10 times more sensitive then the average person which is mentally and physically overwhelming.


8. Because autistic people are so overly sensitive to everything, people need to realize things that are just a little harmful for all people like :

dust, pollen, gluten, high sugar diets, sound pollution, light pollution, florescent lights, everyday chemicals

are horrible for autistic people and can cause them to be so overwhelmed they cannot speak/ are in extreme discomfort daily.


9. Because autistic people are so overly sensitive to everything, people need to realize things that are just a little good for all people like:

building ramps instead of stairs to houses, living in a clean, quiet, peaceful environment. Using pet therapy, swimming therapy, occupational therapy, seeing a councilor once in awhile, brushing therapy, weight therapy, having a very comfortable bed, eating and exercising correctly, being your own best advocate

can REALLY help any autistic person be so much happier, healthier and independent.


10. Sometimes a parent and autistic child can do everything right and an autistic child will still not be able to be independent, safe alone, will still be in agony and cannot speak. Until we recognize that the main problem for Autistic people is a hyperactive nervous system and address this scientifically there will be little hope of change for these people.

anonymous asked:

How do I know if I'm autistic? I relate to a lot of the posts, but I have mental illness that may account for that

Hmm… I personally would start with some very basic information on autism. ASAN has this as a starting point!!! Hell, ASAN as a whole is a great starting point. 

This is the diagnostic criteria, though I believe it’s outdated, I just can’t find anything else that isn’t from autism speaks or similar organizations, I only skimmed so I’m unsure if there’s any ableist language!!

Remember that everyone has a different experience of autism, it’s a spectrum!! You can find it easier to read people than a lot of autistics but at the same time suffer from severe sensory issues, or anything else!! 

A lot of mental illnesses can have very similar symptoms, but, at the same time, autistic people tend to be more prone to these mental illnesses. (ADD and ADHD very commonly are seen in autistic people. Personality disorders (Especially BPD) and various psychotic disorders (especially schizophrenia) are also commonly seen in autistic people

If you want to come back and give me more details, that’s totally cool!!

-Mod Rhys

(If you have anything to add or want to correct me on something, please do!! Send an ask, however, as replies and reblogs get lost in the activity!!)

Writing Tip #001

You can absolutely be a writer if you have dyslexia, autism, or any other neurodivergence that can make writing difficult. Your grammar and spelling don’t have to be perfect. Grammar and spelling are just building blocks. What matters about a great story are your characters, your plot, your themes, your unique voice - in fact, you have a voice that needs to be shared, precisely because we don’t often hear it.

You will need an editor. This should be someone you can trust, because handing over your story to an editor kind of feels like handing over your infant child to a doctor. Your editor shouldn’t just be good at grammar and spelling, they need to know how to correct those errors without altering your voice or your story. It’s important that whoever edits your work understands the particular difficulties you have with writing, respects you, and respects your work. All writers have editors. That story is still your story.

Your writing style and practice probably won’t be the same as a neurotypical writer. That’s fine. If the writing advice you find in neurotypical blogs and so on doesn’t work for you, ignore it. If you need to use a voice-to-text app to get your story down, use it. If you need to record your story and get someone else to type it up, do it. These things were developed for a reason, and you are no less a writer because you didn’t type those words by hand. That story is still your story.

Listen to advice from people you respect, who respect you. No writer is perfect. But also stand up for your work when you know you’re right. You have as much right as anyone to be confident in yourself and your work.

Lastly, you are valid and amazing. Your stories are important. Your stories are beautiful and worth telling. Your stories are a vital part of our world, and the world is missing out when you don’t tell them. Anyone who tells you that you shouldn’t write because of your neurotype needs a swift kick. In the face. Off a cliff.

Ayyy so my dad says that in order to live with him after I turn 18 (next weekend) I need to be “making steps to become independent”

Which according to him means getting on the waiting list for food stamps, supplemental income, Section 8 housing, and the like.

So, does anyone have any advice for navigating the U.S./Minnesotan welfare system?

I also have to get a drivers license and use public transit frequently.

I’m autistic, so these are daunting tasks. Any advice from fellow auties?

Planet Dancetime: Social Skills and Functioning Labels

If you’re allistic, it might be difficult to imagine what life is like for an autistic person. That can make it difficult to write from an autistic perspective. In order to help facilitate understanding, I, Mod Aira, have come up with an extended metaphor that I hope will be helpful. This is the first in a planned series, and it will cover some of the basics of social interaction as well as the harm that functioning labels do.

Please note that this series is written from my perspective and according to my personal opinions and experience. It will not necessarily reflect the reality of all autistic people, but it is one authentic perspective.

Imagine that tomorrow, you wake up on another world. It’s called Planet Dancetime. The people there look just like humans, except their social rules are insane. They do a complicated dance while they talk to each other, and all communication is carried out in this dance-talk. At first, you can’t make any sense of it, but slowly you start to puzzle some of it out. When you speak to a woman, you have to stand on your right foot the whole time. When you speak to a man, you have to stand on your left. If someone is non-binary, you have to stand on your toes. You also have to touch the shoulder of the person you’re talking to every ten seconds exactly. If you don’t follow this rule of *precisely* every ten seconds, you’re being very rude. When you’re telling a happy story, you have to wiggle your shoulders, starting with the right side and working your way left. Sad stories are the opposite. For *angry* stories, the wiggle is in the eyebrows. You also have to indicate your emotional state and age at the time the story happened by a complicated motion in your fingers set to a specific beat, and your *current* emotional state by the particular angle at which you hold your elbows and wrists.

There are still countless other rules here, more than you can figure out. The Dancetime people are constantly making strange gestures and movements. The crazy thing is, it seems to be effortless for them. How can they possibly keep track of all these rules? You decide to ask someone.

The response is not positive. You get the most disdainful look you’ve ever seen, and the explanation, “It’s obvious. Just use common sense.”

Well that isn’t helpful. How could they possibly conceive of this system as being obvious? And if it’s so simple, then why can’t they explain it?

At long last, you come to an epiphany. Of course this system isn’t simple. In fact, it’s so complicated that the only way for them to manage it is for their brains to handle it subconsciously. A massive amount of their brainpower is devoted to decoding, remembering, and carrying out all these convoluted rules. And their bodies are naturally conditioned for it, too. They can stand on one leg for hours without any effort – it’s just the way they evolved. But you can’t. Your brain is busy doing other important things that these people hilariously can’t do (more on this another time), and it’s not about to take over all those extra responsibilities now. You have no easy options, and you’re stuck here now, so you have to make a choice.

Option one is to say – hell with it. Maybe you just don’t have it in you to do this – you just can’t get your head around it, and it’s impossible for you. Maybe you have a physical issue that prevents you from dance-talking, or you just don’t have the type of memory required to learn dance moves, or the multitasking ability necessary to count and talk at the same time. Or maybe you just decide: I’m not going to bother with their stupid rules. I’m going to stand on two feet when I talk, and I’m not going to count to ten silently in my head while I’m talking so I can time the shoulder-touches properly – I mean, who could even do that? I’m just going to be me, and they’re just going to have to deal with it.

This does not go well for you. When you fail to follow their dance-talk rules, these people freak out. Some of them are angry – how dare you insult me with your non-dance body language? Even worse, it turns out that some movements that you make entirely naturally which have nothing to do with conversation, or some aspects of your normal, natural body language, are actually grave insults in dance-talk. You can’t figure out which things you’re doing which are so wrong, and no one will explain it to you. Many people think you’re extremely rude. But some of them are scared or worried and are determined to figure out what’s wrong with you. You are quickly surrounded by “experts” who want to help you. After all, you couldn’t possibly survive without the ability to dance-talk. You obviously suffer from some kind of hideous disorder. You try endlessly to explain that you can talk just fine without the dancing, that there’s nothing wrong with you, but they won’t have it. If you talk without the dance moves, they ignore everything you say like it’s some kind of incomprehensible babble. If you can’t dance-talk, then you obviously have a disability, and you need to be cared for. You’re obviously not intelligent enough to communicate, so you’re automatically not intelligent enough to care for yourself. You wind up in an institution with the others who have been diagnosed with “low-functioning human disorder”, also known as “severe humanism”. The nurses look at you with pity in their eyes and don’t bother talking directly to you. You hear them talking (as though you’re not there) about the tragedy of your extreme human-ness, how terrible it must be to live that way, and what a burden you are to those around you. You try to scream: it wouldn’t be terrible if you’d just leave me alone! But your screams, lacking their accompanying dance moves, fall on deaf ears.

So let’s consider the other alternative. You can try to puzzle out the dance-language and see if you can fit in well enough to get by. Not everyone has this option – I mean, the dance-language is obscenely complicated, after all. But maybe you’re one of the lucky ones. Maybe you have a good memory for movements and are good at figuring out or guessing when to use each one. So you give it a shot. And after a lot of trial and error, you start to find some success. Your dance moves are still a bit off, and you get funny looks pretty frequently. Eventually, you get “diagnosed” with “high functioning human disorder” and told you should be fine as long as you put in enough effort. You ask that maybe someone teach you some of the dance moves, and you are rudely dismissed as being lazy or pretending to be disabled so that you can get more attention.

This is the same reaction you get every time you make a mistake. And of course, you will always make mistakes. There will always be days when your legs are simply too tired, and you have no choice but to stand on two feet for a while. Sometimes, when you’re trying to talk about something, you just can’t spare the brain power to count to ten over and over again, and you miss a few shoulder-touches. Sometimes you’ll get the wrist and elbow angle just slightly wrong and give entirely the wrong tone to a conversation. And sometimes you encounter a social situation you’ve never learned the moves for, and there’s no possible way for you to do it right.

Every single mistake is met with indignation. How dare you insult us that way? You apologize and try to explain that even though you’re pretty good at it, this dance-talk still doesn’t come easy for you. It doesn’t help. Your explanations are written off as lazy excuses. Everyone knows you are perfectly capable of using dance-talk. You do it all the time. The fact that you’re not doing it now obviously means that you are doing it on purpose. You are intentionally insulting those around you, and they don’t appreciate it.

The looks, the stares, the muttered insults, they eat away at you. You are doing your best, damn it. You are doing infinitely better than should ever have been expected of you. You put so much energy into the most basic conversations, you don’t even have enough left over to care for yourself. You haven’t been eating well, with no energy to cook. You suffer from constant anxiety – fear of the next mistake – when (not if) will it happen? How will they react? But no one appreciates that. No one helps. No one explains the mistakes you’ve made – and usually, you have no idea what you’ve done wrong. You’re expected to just figure it out on your own, and are punished for each misstep, because damn it, you might be technically human, but they’re not about to let you use your humanness as an excuse for rude or lazy behavior.

You feel the constant underlying threat all the time: if you can’t dance-talk like the rest of us, if you stop trying or make too many mistakes, then we’ll change our minds about you. We’ll change your diagnosis to low-functioning human disorder, and stick you in the institution with the others. We’ll never speak to you again. We’ll never look at you as a person again. You’ll just be a lump of flesh that we have to feed and bathe. So you’d better try harder.

The best case scenario you can hope for is that people will find out you’re human and say, “Oh, wow! You barely look human at all! You should be so proud of yourself.” Human is an insult. Not human is a compliment. That’s the world you find yourself in now. And sometimes you start to wonder – are they right? Is being human really a disability? Is there something wrong with me? Now you can add a fight against depression to the list of things you have to deal with. There are days when you wonder if the effort will ever be worth it. You feel hopeless and lost.

All because dance-talk doesn’t come naturally to you.

Now, disclaimer, here: this is a simplified analogy of how functioning labels can feel, and the ridiculous basis on which they are assigned. The reality is a little more complicated and there are more factors, some of which we’ll explore later. And as always, we repeat: everyone’s experience is different, and not all experiences are reflected here. This story is designed to help those who are not autistic start to understand what life is like for those who are. This really is how it feels for a lot of people, myself included. These are the choices I feel I have. I can relax and give up and just be “me” without apology, and then I am liable to lose everything – my job, my friends, my life. Or I can try to fit in and act like the others, at an enormous energy cost, and often not have the strength left over to take care of myself. They call me “high functioning”, but they’re ready to take that shiny little badge away at any moment – and they would have taken it away long ago if they saw how I am at home at the end of a stressful day.

A far, far better situation would be to do away with the functioning levels entirely. Judge each person based on their individual attributes, and try to understand that under other circumstances, they might be very different. Sometimes I can talk, and sometimes I can’t. Acting “normal” takes a lot of energy, and sometimes I don’t have enough left to do it. But I’m still able to live independently, and still have many strengths and abilities – many that “allistic” people typically do not have.

So please, when you’re thinking about writing an autistic character (and good for you! hooraaaayyyy!!!!), don’t think of them in terms of high- or low-functioning, in terms of “severe” or “mild” autism. Instead, think of a list of traits, what they’re good and bad at, what comes easy and what doesn’t. Your character is as individual as you are.

Happy writing!

-Mod Aira

theguardian.com
David Mitchell: what my son's autism has taught me
‘Hurry!’ came the advice following diagnosis. ‘Save your child from autism before it’s too late!’ But how do you save your child from something when you don’t know what that something is?

[image description: a man sitting on some stairs, looking into the distance]

“David Mitchell: what my son’s autism has taught me” or, as I like to call it, “how listening to autistic people helped me understand my autistic son and yet I still somehow came away with the idea that autism parents are the true experts.”

Okay, so, this article…

*sigh*

This article starts off bad.

It starts with the phrase “Mark Haddon’s excellent 2003 novel The Curious Incident Of The Dog In The Night-Time”.

So, yeah…

(It’s not a good book.)

He then goes into the grey area that I find a lot of autism parents (my mother included) struggle with, which is that they understand the problems with functioning labels, but cannot conceive of autism outside of them.

(He has a colour chart, which he initially states as using for individual traits when it comes to his son, but then labels other autistic people as a single colour overall…)

It picks up, though. The author talks about how he and his wife read The Reason I Jump and how it helped them to connect with their son.

So you’d think that this article would wrap up with a conclusion about how listening to autistic people is good, right?

Noooope.

David Mitchell has become Enlightened, you guys.

He went on a three-day weekend to Autism Land and learned their mysteriiiiious ways and now he’s here to relay to you - the allistic audience - the things he learned.

He listened to autistic people, but you should listen to him because He’s The Expert Now.

But, seriously, he has a checklist of things that he thinks will bring about a better future, where he calls for more research (and cites “well-connected American autism parents” as the bastions of autism research… Excuse me while I print out that phrase specifically so that I can literally piss on the idea that A$ ever did anything helpful for autistic people) and then he regurgitates the lessons he took from reading The Reason I Jump.

Instead of, you know, telling people to read work by autistic people and learn these lessons for themselves…

The article ends with a link to the next Naoki Higashida book that David Mitchell has translated, which I guess you could say is him telling you to listen to autistic people?

But here’s the thing:

Why didn’t he say to do that in the article?

I mean, you could imply that you should from the fact that that’s what worked for him, but he certainly never tells you to. He just has a little paragraph about how his translation of The Reason I Jump is the reason why anyone has ever listened to autistic voices, you guys. And then he goes on to regurgitate the lessons he learned, instead of telling you to read those works for yourself.

While citing autism parents as the “frontline activists” when it comes to autism. Not a single mention of the work of autistic people - aside from The Reason I Jump and the related works that he made popular - anywhere.

So why not say it? Why not say, explicitly, to listen to autistic people?

I mean, Mitchell literally stands to profit from people listening to this autistic voice. He’s the English translator for the damn book.

And yet, even when he stands to make money, he cannot step down as the True Expert.

He’s not just the English translator. He’s the autism-to-allism translator. Here so that you don’t have to listen to those pesky autistic people directly.

Even when he literally stands to profit from you doing just that.

anonymous asked:

I think im going through autism burnout. Im losing abilities i had (mostly phisical, like using a fork properly and holding a pencil right), stimming more, going no verbal more.... And i have no ideia why. I dont think im going throug more stress than i usually have, really. But the ONE thing i DO NOT absulutely DO NOT want is to have a meltdown. Do you have some advice on autism Burnout?

Hi there. It’s possible that you are being overstimulated by other things, or are exposing yourself/being exposed to a lot of negativity/aren’t noticing that you’re stressed.

My advice would be to try to set yourself apart a bit more. Try to find time to be alone in a quiet place, maybe try doing more things that just make you happy - eg. when I feel close to burnout I get myself alone in a room and read/watch cartoons/play a video game.

Followers may have other advice but right now self care is key - Mod Liz

What I'd like to see in an autistic character

The main thing that gets me about the way ASD is portrayed is that it’s always boys and always younger characters. The kid who likes trains or planes too much and has outbursts that no one seems to understand. As a 23 year old woman living with ASD, that just doesn’t cut it for me. Not all ASD individuals are emotionless. In fact, I experience emotions at a much stronger level than most people. Not all of our special interests are related to bugs or transportation. Sure, some of them are, but I’ve seen that so many times that I want more. Show me the autistic adult whose special interest is a tv show or a historical period. Show me an autistic individual whose meltdowns are explained. Hell, for that matter, show me a self-aware autistic individual, who knows they’re having a meltdown, like I do, but they can’t stop it. Give me casual stimming, gentle swaying back and forth rather than violently rocking back and forth in a corner. Show me fidget toys being used and the shaking of the leg. But mostly, and above all else, show me an autistic character who isn’t ostracised. I know that happens a lot in real life, I know it, but that doesn’t mean autistic people have no friends. Most of my friends are others with aspergers. We form groups. The narrative that this autistic person has no friends because they’re “weird” while it may be true in some cases, it quite harmful for two reasons: 1. It paints a false narrative and 2. For those who really don’t have friends, it shows that this is what life is going to be like forever when that’s just not the case. 


[Thank you for your contribution! -Shrink]

I need your help

hi there! ✨
i’m currently working on a dystopian story where the main character has autism, but i really don’t know much about the autistic spectrum and i’d like to talk to someone who can teach me something about it.
is it disrespectful? (i’m neurotypical)
feel free to reblog this post and send me a dm anytime, any opinion is very useful!
many thanks for your attention!