A Sami update for those who have asked. She was recently sent by Make a Wish foundation to go meet the princesses at Disney. Needless to say she was thrilled.
So a bit more details about her health. Her heart problem (she was born with) was “fixed” (worked around) via 3 open heart surgeries. She was earlier this year diagnosed with the Pulmonary Vein Stenosis, which was a new thing and required them to undo their last fix on her heart (in a 4th open heart surgery) and she will need a full heart and lung transplant. She and her family recently went to the top Doctors in the country dealing with PVS. They found that the disease is still active in her and she is being put on a trial of Gleevac which they hope will slow the damage of the PVS long enough for her to survive it.
Your prayer and well wishes are always appreciated as is your art or poems or stories or anything else you want want to send her way.