alzhiemers

This is my grandmothers pill box, it is old, and so are the pills inside.

If you notice, there are two blue circles drawn around the girl’ s eyes.

My grandmother drew those.

She currently has dementia and has suffered from OCD her whole life.

Way before her dementia went for the worst turn, she developed extremely interesting habits, one of them being that she drew eyes on things that were supposed to have eyes or eyes that were closed, just as seen on her pillbox.

My uncle, an artist, painted family portraits a long time ago that were based from photographs we had taken before.

The paintings contained no facial features, rather elaborate details of hair and clothing that very much determined who was who in the portraits.

After years of having them as they were, she drew smiley faces in them.

She developed a very child like behavior and continued to do so as her dementia progressed.

Although my grandmother is still with us and is still in a healthy physical state, I can’t help but feel so sad.

She isn’t the same woman that used to take care of me whether I was sick or pretending to be sick.

She isn’t the same lady that came into my room every time I was crying and told me that she loved me without questioning what was wrong.

But what she still is, is my grandmother, who once took care of me when I was sick, whether I was pretending or not.

MY grandmother who once crept into my bedroom to tell me she loved me, without questions or judgement.

She is my grandmother.

And just as she did for me, I will continue to love her no matter what she’s going through.

As she represses into this child like state, I will do whatever I can to make her feel as happy and loved as she once did, even if I didn’t make sense or had no clue what was really happening.

She is my hero.

I can only hope to one day, be as wonderful as her.

alzhemier's & alcohol [early onset]

someday you’ll forget too

you’ll forget which beer is your favorite
& which way you twist your tab;
you’ll forget if you prefer cans or bottles & that
you pour too much Carolyn’s in your coffee each morning

you’re going to forget where you were going
after you’re already halfway to wherever it was
& you’re going to turn around to come back
but be unsure if the street you turn onto is
home to the place you raised hell in your twenties
or home to the place you learned to love the taste;
we’ll have to take your keys from you & this time
it won’t be because you’ve had too much to drink

I see the sadness in your eyes when he asks you
if you saw Jones’ obituary in the paper two seconds after
he asked you if you saw Jones’ obituary in the paper –
don’t shake your head; you are not any better than him

you’re forgetting that you already forgot –
you already forgot who made dinner every night
& who was supposed to tuck whom into bed with kisses
you forgot for a solid two years that you even had a daughter
& you forgot the lullabies you used to sing her on the nights
you rocked her at home instead of rocking out at the bar
& that you used to tell her you loved her with all of your heart

don’t shake your head; you have it worse than him –
you aren’t fooling me white-knuckling the fine line
between your denial & your dementia
[I managed to live through your early onset]

ALZHEIMER Y NUTRICIÓN

El alzheimer se define como “Un padecimiento degenerativo del sistema nervioso central caracterizado por pérdida de memoria y deterioro de las funciones cognoscitivas”.

Pero ¿Qué hay más allá de eso?…

Quiero hacer énfasis en la “PERDIDA DE PESO” que presentan quienes padecen esta enfermedad.  Y es que todo radica desde la alimentación antes de la diagnostico, pues estudios han demostrado que pacientes diagnosticados con AE al final de la investigación, ya presentaban disminución de peso.

El estrés, la depresión, el cansancio, la falta de actividad física y mental, y una inadecuada alimentación, son algunos de los factores de riesgo de la enfermedad. (Dejando a un lado los factores hereditarios, ya que solo el 10% de los casos son de este tipo).

Sin embargo, después del diagnóstico, la enfermedad progresa gradualmente en un promedio de 8 a 10 años. Y con ello se ven reflejados los mecanismos responsables de la pérdida de peso.

Deterioro del olfato y del gusto: Todo comienza aquí.

Disminución de la ingesta de alimentos: Puede ser por un deterioro funcional para preparar o comprar alimentos.

Deficiencia de los requerimientos de energía: La situación de estrés, la presencia de otras enfermedades, hacen que se requiera de un mayor aporte de alimentos los cuales muchas veces no son compensados.  

No reconocer los alimentos: No reconocer lo que se ingiere afecta en el peso, olvidado hacer las comidas necesarias al día, o incluso con el riesgo de ingerir sustancias o productos nocivos.

Olvidar las funciones de masticar y deglutir alimentos: Cuando se llega al punto de olvidar las funciones que desde el nacimiento tuvimos, es aquí cuando la alimentación se vuelve más estricta, pues incluso se puede llevar una alimentación por sonda.

Presencia de Anorexia.

Estos son solo algunos de los factores que influyen en la pérdida de peso de quienes padecen AE.

NUTRICIÓN | PREVENCIÓN

  • Llevar una alimentación saludable: En realidad no va más a allá de tener un equilibrio en los alimentos que ingerimos. Ningún alimento es malo si se consume en raciones adecuadas. El aporte en mayor parte de verduras y frutas (MUCHAS), moderadamente de cereales integrales y frutos secos (SUFICIENTES), y adecuadamente de carnes, leguminosas y productos de origen animal (POCAS) son la clave para llevar una alimentación saludable.
  • Ejercitarse: Ejercitarte 30 minutos al día o 150 minutos a la semana, son suficientes para mantener tu cuerpo activo.
  • Evitar al estrés: Llevar un estilo de vida ligero, sin ocuparnos demasiado de los “PROBLEMAS”, pues todo en esta vida tarde o temprano tiene una solución. 

CONOZCO A ALGUIEN QUE TIENE ALZHEIMER. ¿Qué puedo hacer?

ATENCIÓN DIRÍA: Preparar sus alimentos, ayudarlo a hacer alguna actividad física ligera,  dinámicas y juegos de aprendizaje, platicar, reír, cosas sencillas como estas marcan que tan rápido progresa la enfermedad.

ATENCIÓN MEDICA: Estar al pendiente de la citas, medicamentos y cuidados que indica el médico.

ATENCIÓN NUTRICIONAL: Acudir con un especialista, quien indicara las cantidades y los alimentos adecuados marcan la diferencia entre la pérdida o no de peso, de nutrientes y de las defensas del organismo.

Ahora te pregunto de nuevo…

Olvidar,¿Lo es todo?. No olvides darle la atención que necesita.

En tu Salud lo Encuentras

youtube

Seth Rogen Opening Statement on Alzheimer’s Disease. 

cnn.com
Blood test predicts Alzheimer's disease

(CNN) – In a first-of-its-kind study, researchers have developed a blood test for Alzheimer’s disease that predicts with astonishing accuracy whether a healthy person will develop the disease.

Though much work still needs to be done, it is hoped the test will someday be available in doctors’ offices, since the only methods for predicting Alzheimer’s right now, such as PET scans and spinal taps, are expensive, impractical, often unreliable and sometimes risky.

“This is a potential game-changer,” said Dr. Howard Federoff, senior author of the report and a neurologist at Georgetown University Medical Center. “My level of enthusiasm is very high.”

The study was published in Nature Medicine.

‘We were surprised’

In the beginning, the researchers knew they wanted to find a blood test to detect Alzheimer’s but didn’t know what specifically to look for. Should they examine patients’ DNA? Their RNA? Or should they look for the byproducts of DNA and RNA, such as fats and proteins?

They decided to start with fats, since it was the easiest and least expensive. They drew blood from hundreds of healthy people over age 70 living near Rochester, New York, and Irvine, California. Five years later, 28 of the seniors had developed Alzheimer’s disease or the mild cognitive problems that usually precede it.

Scouring more than 100 fats, or lipids, for what might set this group apart, they found that these 28 seniors had low levels of 10 particular lipids, compared with healthy seniors.

To confirm their findings, the researchers then looked at the blood of 54 other patients who had Alzheimer’s or mild cognitive impairment. This group also had low levels of the lipids.

Overall, the blood test predicted who would get Alzheimer’s or mild cognitive impairment with over 90% accuracy.

“We were surprised,” said Mark Mapstone, a neuropsychologist at the University of Rochester Medical Center and lead author of the study. “But it turns out that it appears we were looking in the right place.”

Continue Reading.

This is my grandmother. She’s 85 (turning 86 in less than a month) and she’s an epic bad-ass who survived fleeing her homeland of Estonia by creating an acting troupe and hitching a lift across Europe until she found American soldiers. When the Americans came into town, everyone else hid because they were scared, but she put on her best (and only) frock and went out to wave hello. They gave her chocolate and new stockings.

She is the only person in my immediate family who has been to prison. One night, in Germany, her and her best girl-friend stayed out too late and got tipsy, breaking curfew, but only had to spend one night in jail because the police chief recognized her from a stage production of ‘Gaslight’. (She does not admit to this story.)

She is a troublemaker. Once, she went to the laundromat and accidentally tipped a whole box of detergent into an open machine and as the suds rose up and out, spilling over, she calmly picked up her clothing and walked out. (She does not admit to this story either, but will own up to, perhaps, paying for damages for something that she never did.)

She has Alzheimer’s and dementia. She knows who she is and where she is, but not when it is. There are days when the war is still going on. 

Today, she had a stroke. She’s fine, doing well, and all that good stuff, but as we were in the emergency room, the doctor came up to her and asked what she had for breakfast. Calm as can be, she deadpanned: “Two bottles of whisky and a fireman.”

8

My Memere passed away one year ago today.  She fought a long, tough battle against Alzheimer’s, but eventually she could not fight anymore. I miss her dearly. I miss the stern, quick-witted woman she was when I was young, and I miss the gentle disposition she held in her last years, when the most she could muster was a tearful “You’re beautiful”.  You were beautiful too, Memere. I miss you with all my heart. I made this book from my Memere’s perspective.  The words are a collaged poem I made by rearranging entries in a poety book my Memere gave my Grandfather years ago, and that he eventually gave to me. I hope it summarizes her legacy, and that it strikes some sort of cord with other who have lost their loved ones, most especially to such a horrible disease. Stay strong and never forget.

nytimes.com
A Victory Lap for a Heretical Neurologist ‘Madness and Memory,’ a Memoir About Discovering Prions

Sweet revenge comes in many delectable forms, among them the receipt of accolades for work long scorned. And then to get to tell the whole story at length and without a single interruption — small wonder that the Nobel laureate Dr. Stanley B. Prusiner, a renowned neurologist at the University of California, San Francisco, writes with a cheerful bounce. Once disparaged, his scientific work is now hailed as visionary, and his memoir takes the reader on a leisurely and immensely readable victory lap from then to now.

Look closer.

A beautiful poem written from the perspective of an old lady suffering with Dementia.

What do you see, nurses, what do you see?
What are you thinking when you’re looking at me?
A crabby old woman, not very wise,
Uncertain of habit, with faraway eyes?
Who dribbles her food and makes no reply
When you say in a loud voice, “I do wish you’d try!”
Who seems not to notice the things that you do, and
Forever is losing a stocking or shoe…..
Who, resisting or not, lets you do as you will,
With bathing and feeding, the long day to fill….
Is that what you’re thinking?
Is that what you see?
Then open your eyes, nurse; you’re not looking at me.
I’ll tell you who I am as I sit here so still,
As I do at your bidding, as I eat at your will.
I’m a small child of ten ….with a father and mother,
Brothers and sisters, who love one another.
A young girl of sixteen, with wings on her feet,
Dreaming that soon now a lover she’ll meet.
A bride soon at twenty – my heart gives a leap,
Remembering the vows that I promised to keep.
At twenty-five now, I have young of my own,
Who need me to guide and a secure happy home.
A woman of thirty, my young now grown fast,
Bound to each other with ties that should last.
At forty, my young sons have grown and are gone,
But my man’s beside me to see I don’t mourn.
At fifty once more, babies play round my knee,
Again we know children, my loved one and me.
Dark days are upon me, my husband is dead;
I look at the future, I shudder with dread.
For my young are all rearing young of their own,
And I think of the years and the love that I’ve known.
I’m now an old woman …and nature is cruel;
‘Tis jest to make old age look like a fool.
The body, it crumbles, grace and vigour depart,
There is now a stone where I once had a heart.
But inside this old carcass a young girl still dwells,
And now and again, my battered heart swells.
I remember the joys, I remember the pain,
And I’m loving and living life over again.
I think of the years ….all too few, gone too fast,
And accept the stark fact that nothing can last.
So open your eyes, people, open and see,
Not a crabby old woman; look closer …see ME!!

Okay, so this, is my wonderful Granddad, who unfortunately passed away just over a month ago, a few days after his 80th birthday. About five years before his death he was diagnosed with dementia, which is a disease of the mind that slowly deteriorates the brain, making anyone suffering from it confused, with memory loss, severe mood swings and difficulty with day to day tasks, my Granddad unfortunately suffered from all of these symptoms and before his death had to be put into a care home, as my Grandma couldn’t look after him any more. It was horrible watching him lose himself over time, not being able to go on his walks he loved so much, forgetting where he was how old he was, and the worst thing was watching my nan trying to cope with it all when she could never really do anything to help, except try to see him everyday to be a familiar and beloved face in the confusing world that he saw before him.

Tomorrow, my whole family are going on a sponsored memory walk for the Alzheimer’s society in hopes to raise money that will go toward care and support for Alzheimers and Dementia sufferers and their family and carers. I realise that not all of you can, but if anyone has any money to spare can you please text, ‘PNDB80’ followed by the amount you wish to donate to 70070, it can be as little or as big an amount as you can afford, and if you can’t afford to send any money, just reblogging it to spread the word around, would be so amazing and I would be so grateful..

If you do wish to donate to this excellent cause, just inbox me and I will shower you with hugs and kisses and do whatever you want!

Thankyou so much for reading this!