alzheimer's ms

I’ve been trying over the past few days to begin to tell a bit of my story, to sort of sum up what Lyme Disease has done to me, and to my life, to really let people in - and raise awareness for May, Lyme Awareness Month. This is undoubtedly the hardest thing I’ve ever had to try and explain. And as a writer who for years, explanation, observations, analogies and details have all come so very easily to, being at a total loss for words is tough - on every level. Which is also one of my favorite symptoms this disease has brought upon me: a very hard to explain brain-fog sensation, a haze in my head that cannot be penetrated or seen through or gotten past, a mid-sentence glitch that leaves me totally blank. I frequently find myself completely unaware of what’s going on - and I don’t mean “why’d-I-walk-into-this-room-where-did-I-leave-my-keys” unaware. I mean, a total out of body, where-am-I, I can’t feel myself in my body and don’t really have proper access to my brain, black-out, all-systems-down unaware. It’s been about 10 years since I was diagnosed with Lyme (and told that because I had only the two bars on the western blot (a totally unreliable test) that I would be okay) and two years since I began treatments. I have learned more in the past two years about our medical system, the body and food and toxins and chronic illness than I have about anything, ever. I have done a lot of research and I’ve seen doctor after doctor to come to a frightening understanding of how much of this is in my own hands. Insurance companies, the Infectious disease society (IDSA), CDC, and our own govt. – do not & will not recognize Lyme Disease. There are more documented cases of Lyme per year than HIV + Breast Cancer combined. But only $9 million govt dollars were spent for Lyme research in 2014. According to preliminary statistics just released by the Centers for Disease Control and Prevention (CDC), approximately 300,000 new cases of Lyme disease are diagnosed in the US each year. This is about 10 times higher than the officially reported number of cases, indicating that the disease is being vastly underreported. Lyme disease is the best-known, worldwide type of tick-borne disease, in which a tick infested with a spirochete bites a human and transmits the bacterium into the bloodstream. The bacterium responsible for Lyme disease is a spirochete called Borrelia burgdorferi, which burrows its way into various tissues in the body, in particular the collagen tissues. Lyme disease manifests as a multi-system inflammatory disease that may affect the skin in its early, localized stage, and later spreads to the joints, central nervous system, and other organ systems.

 People spend their whole lives sick, many undiagnosed or misdiagnosed…

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