#noshameday! i hope it’s okay to post a selfie. :-)
at age one, i was diagnosed with Cystic Fibrosis. it’s an incurable inherited disease that effects the lungs, digestive system, and a good deal of other stuff, too. cystic fibrosis causes the lungs and pancreas to have thick, sticky mucus. for the lungs, this means lots of breathing complications and susceptibility to lung infections. for the pancreas, it means that i can’t digest food on my own. i have to have creon 36,000, the blue capsules pictured above, to do that for me.
the “vest” machine pictured above is an airway clearance system! i have to do that at least once daily. the actual vest is not pictured, because my room is a mess. i also have pseudomonas aeruginosa. it’s a lung infection, and it’s also very damaging to the lungs, and difficult to kill. to keep that at bay, i take tobramycin daily. the inhaler next to that is a bronchiodilator. keeps my inflamed little lung passageways from closing up too tightly.
not pictured in this photoset is a nebulizer that i also use to take pulmozyme and an inhaled saline solution
among cystic fibrosis, i also have asthma and cystic fibrosis-related diabetes.
add depression, an anxiety disorder, and some undiagnosed neurodivergence with autistic traits, and you’ve got……. me! sort of. my disabilities don’t define me. B)