Shriners Hospitals for Children

Regarding Shriners and #CipherHunt

Since the most recent clue appears to lead to a Shriner temple, I think it’s prudent to remind everyone that the Shriners run twenty two children’s hospitals across North America, with most being in the US. Their specialty areas include othopaedics, burn care, spinal cord injury, and cleft lip and palate. And they offer care regardless of a family’s ability to pay for it. In America, this is a big deal, since health care costs are so high. So please, enjoy the Cipher Hunt, but if you can, consider donating.

And please, thank a Shriner. They do good work.

vimeo

Boots tries to keep his pal Brewster out of trouble and safe as he teaches him about burn awareness and fire safety at home!

Produced for Shriners Hospitals for Children, I had the pleasure of directing and working with some super talented people to make this film happen. Those people include:

Brent http://toonmonsoon.tumblr.com/

Steven http://splevengabriel.tumblr.com/

Brenna http://brennapowers.tumblr.com/

Caty http://catycarlson23.tumblr.com/

Jin http://jinzilla.tumblr.com/

Andrew http://heffysdoodles.tumblr.com/

Harley http://harleyhuang.tumblr.com/

Ray http://batoideabottle.tumblr.com/

Jon http://jonathanickes.tumblr.com/

Allison http://eddydraws.tumblr.com/

Kitty http://animatedkitty.tumblr.com/

Jess http://jessdrawz.tumblr.com/

Amanda http://evalesciasketch.tumblr.com/

Johel http://johelrivera.tumblr.com/

Stephen http://www.stephenpicherart.tumblr.com/

Hungry?  How about having breakfast with Breaking Bad’s RJ Mitte!

Albuquerque Comic Expo is pleased to announce a special event breakfast with RJ Mitte.  Tickets are $50 per person with proceeds going to Shriners Hospitals for Children.

Breakfast will be on Sunday, June 29th, from 10:00 a.m. to 11:00 a.m. at the Albuquerque Comic Expo’s Panel Room F (upstairs).  Tickets for this special event will be available here at the show at the Albuquerque Comic Expo booth.

Raising Awareness for Osteogenesis Imperfecta and Helping Research and Treatment during 2015 OI Awareness Week

Osteogenesis Imperfecta (OI) is a rare disorder that causes bones to break easily. Children with OI may sustain broken bones from seemingly minor injuries where children without the disorder may not have a fracture. Recently a 6-year-old boy with OI in the Chicago area broke his femur while watching the Chicago Blackhawks play hockey on TV.

“Rowan and I were watching the playoff game,” Cheryl Karge, Rowan’s mom, said. “He was celebrating, running around the living room. He broke his femur because he slipped and fell on a floor cushion.” A visit two days later to Shriners Hospitals for Children® —Chicago where Rowan has been followed since infancy in the OI clinic, confirmed the fracture. A rod previously put in Rowan’s leg as part of his OI care, had worked as intended to keep the bone stable and allow the fracture to heal in place.

While Rowan is healing, his mom got tickets to allow Rowan to cheer for his Blackhawks in person. During the playoff game Tommy Hawk, the team mascot, visited Rowan, who uses a wheelchair when he has a broken bone. The family also met former player and current goaltending coach Jimmy Waite.

“Rowan’s been going to Shriners since he was a newborn. Dr. Smith and the entire team have been extremely comforting…I don’t know where we’d be without Shriners. To be so fortunate to be basically local to an OI center, I would never go anywhere else,” Karge said.


Shriners Hospitals for Children – Chicago is part of a new $6.25 million dollar OI research project funded by the National Institutes of Health. The Brittle Bone Disorders Consortium that will study OI involves Shriners hospitals in Chicago, Montreal and Portland, along with medical institutions such as Baylor University and the Kennedy Krieger Institute.

“We are enthusiastic about the opportunity to learn more about this rare disorder and share information to improve care,” Dr. Peter Smith, principal investigator at the Chicago hospital said.

According to the OI Foundation, some 50,000 Americans have Osteogenesis Imperfecta. Shriners Hospitals for Children ­– Chicago founded one of the nation’s first OI clinics in 1943, and has participated in an ongoing longitudinal study of brittle bone disease as a linked clinical research center. Currently 93 adults and children are being tracked annually over 5 years for medical procedures, treatment and testing.

“We knew from the current longitudinal study we’d want to do more research. The longitudinal study helped us fine tune some specific questions about OI, involving areas such as scoliosis, genetic testing, dental health and compression fractures in the spine,” Angela Caudill, research coordinator at Shriners Hospitals for Children - Chicago said. “We want all our families to know about the new national registry recently formed to study OI, and the upcoming opportunity for children and adults with OI to participate in research.”

The new study hopes to enroll 1,000 people nationally who have OI between all the participating testing centers. The Chicago Shriners Hospital recently began enrolling participants. Patients who enroll will participate in annual tests such as bone density and lung function, spine x-rays, as well as provide feedback through questions about their health. Interested families can begin the enrollment process for an online registry at www.oif.org/BBDConsortium.