Ed’s visit with sweet Melody today has special meaning to me, more than anyone might realize. My beautiful, sweet, almost 3 year old niece Emily, was diagnosed with Rett Syndrome this year, the same thing this precious girl has. Rett Syndrome is terrifying, it has robbed my Emily-girl of her speech, the use of her hands, the ability to eat and digest properly, and at some point it will likely confine to her to a wheelchair. It also eventually will likely cut her life short. 😢💔
Many skills and abilities she once had, she’s lost because of Rett. She’s smart as hell, feisty as the day is long, and is learning to use Eye Gaze technology to communicate, since she’s unable to use her voice, and nobody has a brighter smile and a more beautiful laugh than my niecey.
Seeing our Teddy so lovingly give his time and energy, and his HEART, to this beautiful, special little girl… It just overwhelms me and makes me love him that much more. I shed some serious tears today watching him love on another little Rett Warrior. 💜💜💜💜💜💜 I love his heart so hard it hurts.
So to Ed, and to Stu, bless you for taking the time to make this happen, for making her dream come true, and for shining your love and light on a day that we all needed it so badly. It means more to me than you’ll ever, ever know. 💕