I had never heard of Rett Syndrome before my daughter was diagnosed in 2011. I didn’t even really give much thought to what life with a severe disability was like. Now I’m battling stereotypes and trying not to let my family be defined something I had never known existed.
Here’s the three things I ask:
1. Don’t make assumptions based on what you see. There’s a whole lot more to people than their disabilities.
2. Don’t show pity. My daughter is perfectly happy. Don’t assume that her disability makes her miserable.
3. Be kind. Smile. If you’re brave enough, say hello. My daughter loves to make new friends.