“On February 9th, 2015, Zeina was taken from my family and I. Zeina was 18 months when she was diagnosed with a severe postnatal neurological disorder known as Rett Syndrome that only affects girls. Rett syndrome varies in degrees and has very unique and distinct qualities. Due to her diagnosis, Zeina has regressed over the years. Year by year, I had to watch her lose her ability to walk, grasp objects with her hands, eat on her own, and stand-up straight. As she was losing her physical abilities, she did not gain any mental abilities such as the ability to make sense of the world through thinking, logic, and reasoning. She did not develop language or ways to communicate. Zeina needed round-the-clock care and my 2 sisters, mother, and I provided her with that. Our father left us which made it harder, but we would do anything for Zeina. Due to her syndrome, she also developed scoliosis, which was severely impacting her health. Her hips, spine, and neck were constantly in excruciating pain. They became shifted and unaligned with her body. Through it all though, she kept a smile on her face.
We cannot bring Zeina back, but we can help other girls suffering with Rett Syndrome. This disorder has the potential to be reversed, but lacks the funding. I am not sure we will even make a hundred dollars from this, but every penny helps. If you cannot donate money, it is understandable, but spreading the message is just as valuable. Together, we can help cure Rett.”
One of my best friends lost the most important person in the world to her a few days ago. Instead of wallowing in her grief like I probably would have done had I been in her situation, she wants to help others who may suffer from Rett Syndrome. If you can donate, please do so. If you cannot donate, please reblog this and spread the word. Thank you. x