Neurological-Disorders

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Here’s a clearer version of my ADHD info graphic
Happy ADHD awareness month everyone!!

Alien hand syndrome (AHS) is an extremely rare neurological disorder which causes hand movements with the afflicted person having no control over the movements. Sometimes, the afflicted person needs to use their other hand to restrain the alien hand, particularly if it is causing harm. In most cases, the afflicted person has had some kind of brain condition. Many describe is as the hand having a mind of it’s own.

  • Me: I have a migraine
  • Coworkers, family, friends, non-migraine sufferers in general: Oh, sweetie- drink some water and eat your vegetables! You're just unhealthy and need to take better care of yourself! Then those darn migraines will go away! :):):)
  • Me:
  • Me: That's not how it works. That's not how any of this works.
I WANT THIS BROUGHT TO ATTENTION NOW

there’s a disorder known as sensory processing disorder or sensory integration disorder

it’s different for everyone, but there are two main types:

hyposenstive, where some or all senses are underdeveloped. i admittedly know nothing about this.

hypersensitive, where some or all senses are over developed- you could say our absolute threshold is jacked up.

for people with hypersensitive, like me, regular noises never fade out. gum chewing might make us cry. people eating can send us into a nervous breakdown. a keyboard clicking might cause us to lose our temper.

or maybe it’s touch. i can’t wear jeans because the seam constantly bothers me. i had an anxiety attack at school because i could feel the buttons on my shirt. i can’t eat many foods because of the texture they have.

sometimes it’s smell or sight that bothers us. i’ve been known to pick up on smells that nobody else could until we were much closer. the lingering smell of rubber in a remodeled classroom has kept me from working. slight movement in the corner of my eye is enough to distract me for an hour.

even taste can be affected. this sometimes comes in handy, like the time i could tell that some cheese dip was spoiled, but it also means that my diet is limited.


all this to say, PLEASE, educate yourselves on this disorder, which is commonly paired with anxiety disorders, autism, Aspergers and panic disorders

and if someone asks you to quiet down or tells you that something odd is bothering you, don’t brush it off as being a dick. they might have this disorder, and it’s hell.

A short GIF depicting Sleep Paralysis, as created by a long-term sufferer of the disorder. Although it’s quite common, people who have it often experience terrifying hallucinations such as this one. Small alien-like creatures, or demonic monsters are said to be one of the most common hallucinations. Sleeping on your back or drinking too much alcohol can make symptoms worse.

anonymous asked:

Honestly can you explain why you consider the word retarded a slur tho? People use it all the time and it's just a way to call something stupid

People using it all the time is the problem with that word. If you’re not consciously aware that ablism exists and is incredibly prevalent in today’s society, nobody has a clue how offensive it actually is. It is a word that was taken from people with mental diseases, disorders, neurological disorders or any type of mental infliction that makes them fall under that umbrella, and used as a way to directly insult us.

it is not, despite popular belief, a creative way to insult something dumb or stupid. The term comes from what was once a medical term. ‘Mental retardation’ used to be used to describe someone with any sort of mental disease or disorders. It is no longer used for the most part professionally because it’s considered outdated and offensive. Retarded doesn’t and never meant ‘stupid’ - it meant “you have a mental problem”. 

It’s a term that directly takes something ‘stupid’, as you say, and compares it to someone that has a medical condition that is often incurable and in a lot of cases, debilitating. I personally have Autism, and when I hear someone use that word is casually, my entire body physically recedes into itself, because it is a terrible fucking feeling that can’t be properly described. You can feel who you are as a person being physically attacked, reduced to an insult. It’s incredibly disrespectful, you never know who standing around you might be heavily inflicted by it, and I really wish retarded had the taboos attached to it that literally every other slur does, but, nah. it’s ‘just another way to day stupid’.

You wouldn’t call a person in a wheelchair a cripple, so don’t use the word retarded.

You wouldn’t call a black the person the N word, so don’t use the word retarded.

You wouldn’t call a homosexual a faggot or a dyke, so don’t use the word retarded.

It’s a slur. When someone who falls under a certain group tells you that a certain term is a slur, you should respect that, not question it. Nobody likes to hear words or phrases like that, and really, it’s up to people who aren’t affected by mental illnesses to open their eyes and realize that.

New breakthrough in understanding dystonia

Dystonia looks like a muscle problem, but actually originates in the brain. The patient’s brain sends out too many messages that activate too many muscles, causing twisting movements. In some cases, including DYT1/TOR1A dystonia, a genetic mutation is the main culprit. In the VIB Center for the Biology of Disease at KU Leuven, Rose Goodchild and her team are conducting basic research into dystonia, the essential stepping stone for a cure.

Molecular defects unveiled

In DYT1 dystonia, a genetic error results in a defective protein called torsin. Scientists already knew that this protein disrupts the neural communication that controls the muscles, but the how has remained unclear. Until now: research in the Goodchild lab indicates that torsins regulate the levels of lipids, molecules that form cell membranes and store energy.

Prof. Rose Goodchild (VIB-KU Leuven): “For the first time, we understand that a dystonia protein is responsible for cellular lipid levels. Although we had expected a more complex picture, with various direct and indirect effects, our data clearly labeled torsin as the regulator for a particular enzyme of lipid metabolism. This now focuses attention on how the lipid substrates and products of this enzyme contribute to neuronal function, and gives us a better view on the exact molecular defects that cause dystonia.”

Multidisciplinary approach

Crucial to the success of this project was the access to state-of-the-art research instruments, such as VIB’s Electron Microscopy facilities, allowing deep-study of how torsin affects cellular membranes composed of lipids. Furthermore, the collaboration with the lab of professor Patrik Verstreken (VIB-KU Leuven) enabled numerous experiments on fruit flies. But although these tiny creatures have much more similarities with humans than meets the eye, research on mammals is crucial as well.

Prof. Rose Goodchild (VIB-KU Leuven): “We have already started exploring dystonia mutation in mouse neurons. This will help us understand dystonia in humans. However, much more research is still to be carried out. It is our mission to find the exact pathway between a faulty gene and the neuronal defects. And, in time, we aim to develop therapeutic approaches that intervene in this pathway.”

If yall don’t think American dress code rules are ridiculous just remember that one time when my neurological issues started acting up in class I started convulsing and had to be sent to the office. While I was in the office the school principle, after making a note about how I was convulsing, dress coded me because I had a strip of lace on my shirt (that was thinner than a pencil) expose my tank top. Not my skin. My tank top.

Positives of BPD

(Borderline personality disorder/emotional regulation disorder).
I made a post like this a while ago when I first started to use tumblr. It was pretty brief and choppily written (in my opinion) so as I’ve said, I decided to remake this with more explanation/research included for more understanding and since lots found it and really liked it. Might as well start 2015 off focusing on these positives.

This is important for awareness/understanding and for those of you who have it, as it really helped me overcome feelings of guilt towards having BPD/ERD and the horrible stigma. It helped me gain self-acceptance. That is why I decided to share it here.

Emotional Regulation Disorder (BPD) is a chronic mental disorder of emotional hypersensitivity and dysregulation.
In BPD, neurobiological emotion and systematic reactions fire off rapidly, longer, easily, and with more intensity as they are hypersensitivity and do not regulate, balance out, or process well and the same as others.
This results in its many symptoms in such behavior, moods, reactions, identity, perception, dissociation, thought patterns, etc.
(The fight/flight system is easily triggered, while the system responsible to regulate that is underactive. There are brain structural differences that are responsible for emotions, decisions, behavior, learning, instincts thoughts, perception, stimuli, relations, etc. Additionally, emotions have been shown to fire off longer and hormones, chemicals, transmitters, all play its part in the hypersensitivity and dysregulation. And so on).
It then causes a wide range of symptoms (depressive, dissociative, anxiety, hallucinations, delusions, anger, aggression, suicidal ideations, extreme reactions to real or perceived rejection, abandonment and criticism, etc.) as there are hundreds of ways to recognize ERD/BPD reactions, symptoms, and features.

As the condition influences ‘all’ emotional reactions and functioning, and there is such a wide range of symptoms, it is often described as a version of multiple mental disorders combined. (borderline of multiple conditions)
However, these neurobiological reactions mean the hypersensitivity can affect positive reactions as well.
-For those of you who read this and suddenly think that you have a chronic condition because it says something positive and you say you have them all, stop. It is incredibly disrespect to those of us that have it. You can’t just tell you have it from being able to relate to a post because it says something positive. Posts aren’t some checklist.

Some of the main symptoms of BPD may generate some positive responses or features.
Specifically, with research, analysis, and observations, some hallmark features may be:

-Passionate: As the level of psychological reactions highly differ in those with BPD compared to those without, individuals with the condition experience a higher extremity scale and baseline. For instance, this includes: Depression instead of sadness, humiliation instead of embarrassment, panic instead of nervousness, rage instead of anger, and euphoria instead of happiness, to name a few. Individuals with BPD have been observed to be especially very passionate and reactive as they often react and express this passion and euphoria.

-Lively:
Intense reactions may also result in high euphoria and engaging/active behavior and energy.

-Insightful: Studies on BPD indicated that because of their own hypersensitivity and pain, some people with BPD may easily connect to what is around them. For instance, they were able to easily read facial expressions, behavior, and emotions of those around them in an expression test. People with BPD may take experiences like these and emotions and turn it into insight and understanding, for one example.

-Curious: Observations and studies show unusually high curiosity is common in some people with BPD from the hypersensitivity and connectivity with their emotions, senses, and surroundings.

-High awareness: As a result of being hypersensitive and easily connected to surroundings and outside stimuli, some people with BPD have been observed have high awareness.
Such strong emotions and connections may call for or reinforce high awareness.
For other examples, Marsha Linehan also states they may have higher levels of spiritual experiences more often. Furthermore, people with BPD have been observed to have a high level of comfort, security, and connection to nature and animals, such as pets, as stated by the DSM.

-Compassionate/empathetic: As a result of their own hypersensitivity and pain, many with BPD may portray a high level of empathy and understanding to others.

-Dependent: Dependency is a hallmark symptom of BPD. One main reason for this is the extremity of the hypersensitive emotions, which often generate a huge fear of being alone and abandonment and rejection. Identity symptoms, such as a lack of sense of self, may also result in dependency. Yet, dependency can be a good thing with the proper balance, like for support, closeness, affection, and interconnectivity.

-Protective: This reaction may be common as a result of the intensity and care someone with BPD feels towards a situation or person. It also relates to the high aggression noted in BPD symptoms. Aggression isn’t always a bad thing- aggression can mean protective of someone or the self.

-Loving/appreciative:
Idealization is a main symptom of BPD. Some people with BPD may idealize and glorify another individual in their life because of such strong emotions, reactions, and needs, and they may also be very appreciative because of hypersensitivity and painful experiences.

-Loyal: Idealization, dependency, hypersensitivity, etc- such reactions and features may prompt strong loyalty and devotion.

-Creative: The intensity and hypersensitive highs and lows may generate creativity and expression. An unusually high amount of writers have BPD. High levels of creativity were linked to some individuals with BPD in research cases- new ideas, artistic or musical ability, writing, or other areas of creativity. Fantasizing is a common feature in BPD as well as daydreaming.

-High nociception (pain tolerance): Studies indicate alterations between pain processing in over half of those with BPD, as opposed to individuals without. It has shown an alteration in acute pain processing- they have a higher tolerance for such. Individuals with BPD were far more likely to tolerate it, despite being hypersensitive psychologically. The result of this comes from different systematic responses and antinociception and may be a result of long-term self harm behavior in some cases.

-Discipline: Obsessive compulsive features are on a spectrum amongst many disorders, and some are quite common in BPD. This includes intrusive thoughts in the thought pattern/processes, repetitive behavior as a result of anxiety and distress, and perfectionism, to name a few.
Research observes that with the proper balance and use, people with BPD may also display high levels of self-discipline, work orientation, and drive connected to these features of perfectionism, repetition, etc.

-Sarcastic/funny:
The DSM and other observations state some people with BPD may often express sarcasm and humor.

-Bold:
One of the main symptoms of BPD is impulsiveness; however, research states this may be tied to a positive trait in some individuals with BPD- boldness, bravery, and ability to speak their mind.

-Spontaneous: Living free, acting on the moment, open minded, adventurousness, which is all related to the connections, reactions, and impulsiveness.

-Alluring/Interesting: Such extreme reactions and expressions are shown or felt to others. Because of the intensity, many people note the interesting and/or alluring behavior or energy of someone with BPD in observation.
There are books and other psych writings noting individuals with BPD as “sirens”- Interesting and intense, yet, impulsive, aggressive, and hypersensitive.
Other studies have stated foundings of “physical attractiveness” patterns-however, not entirely realistic, hormonal differences found amongst BPD individuals may relate.

-Individualistic: BPD is a complex disorder that has hundreds of symptoms and features. There is a lot of depth, changeability, intensity, and reactions.
Furthermore, some features may allow one to cultivate such individuality.

-Strong: On a psychological level, people with BPD are often described as feeling the some of the most intense, agonizing reactions, and one needs to be quite strong to handle them.

-Intense: Overall, people with BPD are intense and hypersensitive individuals. The listed^ features may be noted with intensity.  BPD is also called, “Emotional Intensity Disorder.”

Marsha Linehan
states, “Although it is likely that emotion dysregulation is most pronounced in negative emotions, borderline individuals also seem to have difficulty regulating positive emotions and their sequelae.”

Essential Tremor

Lately I am just getting so annoyed and pissed off at people when it comes to my neurological disorder I have called an essential tremor. There are just so many times where people have asked me if I am OK or if I am cold or if there is something wrong with me or if I am nervous and I am getting so sick and tired of explaining to people about my disorder. Sometimes I lie and do say I am cold. Sometimes I debate what I should do. What really annoys me the most though is when people shrug it off or tell me I say since I have a tremor I use it as an excuse or I hold myself back because of my tremor. OH I AM SOOO SORRY I CANNOT USE MY HANDS LIKE YOU CAN. I struggle putting a seat belt on. I struggle opening things and I struggle to get bites of food from a utensil to my mouth. Do you know how embarrassing that is? Another thing I hate is how sometimes I laugh it off and call my hands “Earthquake Hands” to lighten the situation and other times I get so frustrated I don’t laugh at all. And people I know who notice I do that don’t understand why I get so frustrated at times. This isn’t a joke the only reason I ever laugh and call myself names is to escape from my own reality that I have a fucking disorder that messes up and screws with my daily life and basically all that I do. One last thing that bugs me so much that people should have the decency to not do is stare at me when I am doing a minor task. I can feel you fucking staring at me you don’t think that freaks me out or makes me extremely self conscious? It freaks me out so stop it. It doesn’t help that it is getting worse. Anyways thanks for letting me rant.

youtube

I cried when watching this… it’s only a 4 minute video… but the message really hits so close to home (esp for us women!)

PLEASE BEWARE OF CERVICAL CANCER VACCINES! - Watch this before you decide…

This is a 23 year old girl who shares her experience of having her health and life robbed from her after receiving the Gardasil HPV Vaccine.

(Note - A class-action lawsuit headed by a young woman, Naomi Snell from Melbourne, AUST, has been filed in Australia against drug maker Merck. These are countless women who have each suffered horrible, debilitating autoimmune diseases and neurological health problems following injections with the HPV vaccine, Gardasil)


DEATHS & DISABILITIES after being injected with GARDASIL:

Between May 2009 and September 2010;

-16 deaths occurred after Gardasil vaccination

-789 reports of “serious” adverse reactions

- 213 cases of permanent disability

- and 25 cases of Guillain Barre Syndrome

Between September 1, 2010 and September 15, 2011;

- yet another 26 deaths were reported

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A 5 month old girl with alobar holoprosenceohaly. This condition was diagnosed prenatally in utero and understandably resulted in severe enlargement of the child’s head. The child was oriented to sound, able to move all extremities and responded to external stimuli, however the long term prognosis for this condition is poor as it is typically fatal in the neonatal period.

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Myasthenia gravis is an autoimmune disease that causes chronic-progressive damage of the neuromuscular junction. In people with myasthenia gravis, the immune system inappropriately produces antibodies that bind to and block some acetylcholine receptors, thereby decreasing the number of functional acetylcholine receptors at the motor end plates of skeletal muscles. Because 75% of patients with myasthenia gravis have hyperplasia or tumors of the thymus, it is possible that thymic abnormalities cause the disorder. As the disease progresses, more acetylcholine receptors are lost. Thus, muscles become increasingly weaker, fatigue more easily, and may eventually cease to function.

Myasthenia gravis occurs in about 1 in 10,000 people and is more common in women, who typically are ages 20 to 40 at onset, than in men, who are usually ages 50 to 60 at onset. The muscles of the face and neck are most often affected. Initial symptoms include weakness of the eye muscles, which may produce double vision, and difficult in swallowing. Later, the person has difficult chewing and talking. Eventually the muscles of the limbs may become involved. Death may result from paralysis of the respiratory muscles, but often the disorder does not progress to this stage.

anonymous asked:

is suicide considered cowardly or brave, because I don't want to be a coward, but I'm not fucking brave either

I don’t think it’s either.

This may be controversial but it’s a personal decision that has nothing to do with strength.

People who commit suicide have a multitude of reasons, and always have, historically, I mean. Not all people who commit suicide are mentally unfit to make that decision. Martyrs, for example. People who choose to give their lives for others.

But if you’re thinking about it because you suffer from depression, I would like to urge you to close your eyes and stop thinking for a while.

Consider that your decision making skills might have been compromised by chemical imbalances and neurological disorder. Consider that though you might feel like everything is gray, just a shade of flat, uninspired, pointless gray, things are not this way. There are plenty of things out there worth seeing and doing before you go. Just because things look awful now means nothing. Human perception does not make reality, philosophers and psychologists be damned. Your own mind must make the decision in the end, but consider, before you make it, that emotionally compromised captains cannot make decisions for the entire ship, and maybe you shouldn’t either.

Now I….understand what it feels like, being so emotionally exhausted that you’ve got nothing left, you don’t feel like there’s any stability, or promise of stability in the future, everything feels turbulent and confusing and tangled like the cogs of your brain just stopped processing anything.

So I know just telling you it’ll be fine won’t help.

That’s why I’ll just say that if you’re considering suicide because you think it’s the only solution you have….close your eyes and pretend you’re the captain of a ship.

But you’re not alone.

There are others your decisions will affect.

People who rely on you. Who want you to be ok and guide them through terrible situations. Your body fights disease, suffocation, anything that might kill it, regardless of what you want. Your body will fight not to let you die, no matter what method of death you might choose. Your body is your ship, you’re its captain, and you have to consider all variables before making such a huge decision on your own.

So…no, suicide is not…cowardly or brave.

It’s not anything.

It’s as empty as depression might make you feel.

I can’t tell you if it’ll bring you peace, I don’t know what death is like, or what lies beyond, if anything does.

All I know is that here, right now, there is so much more than what you’re feeling right now. So much more you need to see, feel, fear, do. Call it quits now, and I can respect the decision. But you’re going to miss one hell of a journey, and I would hate for that to happen just because things seem impossible right now.

Anon. It is your decision. It doesn’t matter what other people call it. Just what you call it. And even then, it still doesn’t matter so much, because the act is more important than how it’s perceived by others.

Make the decision you must, but do consider that it’s not one you can take back, or at least, I don’t think so.

So slow down and think long and hard about it, captain.

Seeing Things? Hearing Things? Many of Us Do

HALLUCINATIONS are very startling and frightening: you suddenly see, or hear or smell something — something that is not there. Your immediate, bewildered feeling is, what is going on? Where is this coming from? The hallucination is convincingly real, produced by the same neural pathways as actual perception, and yet no one else seems to see it. And then you are forced to the conclusion that something — something unprecedented — is happening in your own brain or mind. Are you going insane, getting dementia, having a stroke?

In other cultures, hallucinations have been regarded as gifts from the gods or the Muses, but in modern times they seem to carry an ominous significance in the public (and also the medical) mind, as portents of severe mental or neurological disorders. Having hallucinations is a fearful secret for many people — millions of people — never to be mentioned, hardly to be acknowledged to oneself, and yet far from uncommon. The vast majority are benign — and, indeed, in many circumstances, perfectly normal. Most of us have experienced them from time to time, during a fever or with the sensory monotony of a desert or empty road, or sometimes, seemingly, out of the blue.

Many of us, as we lie in bed with closed eyes, awaiting sleep, have so-called hypnagogic hallucinations — geometric patterns, or faces, sometimes landscapes. Such patterns or scenes may be almost too faint to notice, or they may be very elaborate, brilliantly colored and rapidly changing — people used to compare them to slide shows.

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TSK: Hiccups x 1 year

Saw a 10 year old kid today. Young fella has seen multiple doctors for “hiccups” (Urgent Care, Pediatrician, ER), has been prescribed antacids and antihistamines, has been referred to GI (no appointment for another 4 months) Mom and dad are frustrated: “It’s NOT hiccups, we keep trying to explain, his tummy muscles jerk and a sound come out of his mouth and his jaw flops opened and closed, but it’s just NOT hiccups.”

And I agreed with them. The kid (rather obviously) has a motor/vocal tic disorder, possibly Tourette’s (if the workup through neurology and psychiatry doesn’t turn up any organic causes for his tics). But if I had agreed with the previous doctors’ notes, agreed in my head before entering the exam room, I would have interpreted his mannerisms and vocalizations as a (kinda-weird  and uncoordinated) hiccup.

Today, in my Urgent Care, the best thing I could do for this boy was to avoid automatically jumping to the same diagnosis everyone else has made. The only thing he and his parents needed (for now) was for someone to observe, keep the differential broad, ask questions from a different angle, think outside of the “box” created by his previous doctor visits.

I didn’t write him a prescription, I didn’t scope him or lab him or admit him. I just looked and listened and thought and recognized and recommended. And his mom left my Urgent Care so happy to have a name for it and a plan to pursue.


They left, and I started writing up his note with a trace of smug satisfaction… and I got the hiccups.