able-bodied people don’t seem to realise the nuances of disability, they look at it as such a black and white issue when it’s really not. like, i don’t need a wheelchair in the sense that i can’t physically use my legs and i don’t need a walking stick in the sense that i would fall over without one. but i do need a wheelchair in the sense that it could make the difference between my being bed-bound for a day and being bed-bound for a week and i do need a walking stick in the sense that using one today might enable me to do more tomorrow. disability and chronic illness aren’t black and white; using things out of necessity can mean a lot of different things for a lot of different people.

Shoutout to the people who:

-have symptoms that aren’t visible to others

-are able to function even while in extreme pain

-hide their illness well

-who don’t “seem sick”

-who have flareups at night or other times when no one else sees

-fight a daily battle that others can’t see

-feel like they’re making too big of a deal out of their illness because “it could be worse!”

I see you out there, I feel you, you’re awesome.

This insect spray contains DEET, not to be confused with DDT. DDT is outlawed in most parts of the world because it is highly toxic to wildlife and isn’t that great for people either. DEET, when used appropriately is safe. DEET is also the only effective tick repellent in people. That’s it. Citronella, eucalyptus, peppermint oil, and the rest are not effective. If you are going to be doing outdoor activities in tick infested regions (basically anywhere in the world) you need DEET. The very minor worry about adverse effects are nothing compared to the very real life threatening diseases that ticks carry. It just isn’t worth playing roulette with your health because of concerns over DEET. Ask anyone with Lyme or other tick disease and I bet they will say they wish they had worn repellent. Also note that nothing is 100%. You still must check yourself for ticks after any outdoor activity. Tick borne diseases are going to be the new pandemic especially with climate change. Protect yourself.


Lyme park by KEVIN T

you know what fuckin’ sucks about being chronically ill as an adult (don’t even get me started on being chronically ill as a kid ‘cause that’s a whole other level of hell). but what fuckin’ sucks about being chronically ill AND an adult is that being chronically ill doesn’t automatically exempt you from all the normal, adult-y stuff every adult is expected or required to do. we’ve still gotta pay bills, we’ve still gotta wait in line at the bank or random government department, we’ve still gotta go to uni or try to work or make some sort of societal 'contribution’, we’ve still gotta clean our houses and look after our children and pets, we’ve still gotta cook food for ourselves, get ourselves to and from appointments, tackle public transport and argue with call centre workers on the phone. it’d be so nice to be allowed to *just* be sick but adulthood makes it so damn hard


Great Britain - East Coker, Edinburgh, Milldale, Lincoln, Loch Torridon, Warwick, York, Lulworth, Cambridge, Lyme Regis

-for more  of my UK shots and more travel:

travel britain european travel world travel UK travel London travel

Lyme is Everywhere

May is Lyme Disease awareness month. So here are a few things to keep in mind, that could save your life.

Lyme is in every state.

In every continent apart from Antarctica.

It is spread by tick, flea, mosquito, anything that bites, mother to child, and its now believed to be an STI.

You don’t have to have a bullseye rash.

You can have a delayed onset of symptoms, years later.

The current Lyme tests are inaccurate and contrary to popular belief give false negatives, not false positives.

Lyme can get to the point that it is a neurological issue, causing cognitive problems, movement issues, seizures, and more.

Often called “the great imitator” Lyme mimics MS, Parkinson’s, bipolar disorder, epilepsy, and just about anything you can think of.

A few weeks of antibiotics will NOT cure late stage/chronic Lyme disease.

If you get bitten by a tick you should pull it straight off with tweezers grabbing it the closest to the skin as possible.

Twisting the tick as well as applying substances to the tick can cause it to regurgitate into your body, making it more likely you’ll be infected.

If you are bitten and suspect a problem, or have had Lyme before you should have eight weeks of doxycycline. Not two. Not four.

At this point Lyme is incurable. It burrows down into bone, and places that your immune system can’t reach.

Co infections such as bartonella, babesia, and mycoplasma pneumonia can cause the same symptoms as Lyme even by themselves.

A lot of (most) doctors and agencies are very wrong as is the information they are spreading. My mom asked about Lyme when I was three. We were given bad info and eight years later I had gotten to the point that I was bed ridden. It’s been almost ten years since then and I’m still not able to function. Please protect yourself and be your own advocate.



Why do we need chronic illness websites?