Pictured: My brother (who died rom ALS last year) and I during my first week of school.

Awesome news: My family’s team is only $13 away from raising $1000 for the ALS of Michigan’s annual Walk n’ Roll for ALS charity walk event this year! We have raised our total goal to $1500 due to the addition of more walkers, and I’d love us to make it to $1000 by tonight! My donation page is here.

The breakthrough discovery deals with a a protein called TDP-43, which can be found clumped outside the brain cells nuclei of ALS patients.  When researchers introduced a protein designed to mimic TDP-43 into the neurons of mice, cells came back to life and were fully restored. 

This was an incredible breakthrough for the field, as treatment could have the potential to slow down or even stop effects of the disease, which is currently incurable.

The next step is to create a therapeutic model to treat mice as whole organisms rather than just treating their cells. After that, researchers hope to be ready for human clinical trials.  


I was nominated to do an illustrated ALS Ice Bucket Challenge. By Ephorox Tyon
So, this is it! Challenge Accepted!(I know the challenged individuals must comply within 24 hours, so sorry for the delay). I nominate Lux UrisEj Daryll Fiestan and 大雄 next to take the challenge! Sorry if you guys already done this 

To know about the ALS Ice Bucket Challenge and donate, go here 


Remember the ice bucket challenge? Well, it worked

On July 25, the ALS Association announced that researchers have identified a new gene, NEK1, which is one of the most common genes that contribute to the neurodegenerative disease ALS. A press release issued by the ALS Association notes that funding for this research came largely from donations raised by the 2014 viral ice bucket challenge, in which people posted videos of themselves dumping buckets of ice water on their heads as a way to raise awareness for the disease.

According to the ALS Association the challenge raised $220 million for research over the last two years—money that has been the catalyst behind two groundbreaking discoveries. Here’s how they could help end ALS. 

1 year later, the Ice Bucket Challenge funds this breakthrough in ALS research.

Remember the Ice Bucket Challenge?

Of course you do. It was that viral video campaign that took off last summer where you’d log into Facebook and see a steady stream of your friends dumping water on themselves in the name of awareness and research for the ALS Association.

Some brushed the movement off as an example of “slacktivism,” but it actually helped raise more than $100 million. When you compare it to the $2.8 million raised by the organization during the same period a year earlier, it’s clear that the Ice Bucket challenge paid off.

ALS, also known as amyotrophic laterals sclerosis or Lou Gehrig’s Disease, affects an estimated 30,000 living peopleat any given time. It’s a disorder that affects nerve and muscle function. Just 20% of those with the disease will live more than five years following diagnosis. It’s brutal.

But there’s good news — due, in part, to the money raised by the Ice Bucket Challenge.