This is one of my besties, Amber, she is 23 years old and has Cystic Fibrosis and right now her lung function is at 8%, possibly lower with the current bleeding in her lungs going on. She is scared and to be completely honest who wouldn’t be. But what makes matters worse is she has to raise $15,000 to even be put on the transplant list. And currently she is barely even close to $5,000. She needs our help to save her life.
Edit: now at 7k. As of july 7th 2016.
EDIT: as of July 9th 2016, the goal has been met!!!!
I just want to say how perfect my boyfriend is. He is the first boy I’ve ever been comfortable around enough to let him watch me do all my treatments. He’s so supportive of me and my CF. When I tell most guys they freak out and run away, but he just holds my hand and tells me that my battles are now his battles and makes sure I know I’m not alone.
Shortly after this picture was taken he let me cuddle him while I was shaking on my vest and blowing nebulizer smoke in his face, all awhile he was holding my hand or had his arm around me and kept giving me forehead and cheek kisses. I’ve never been able to picture myself doing treatments in front of a boyfriend without feeling embarrassed or awkward, but with Jude it all seemed normal and perfect.
As any CF patient knows, this is the best friend to have! One not only to come visit you in the hospital, but to wear a mask around with you so you don’t feel different, and running around causing hospital shenanigans with you when you’re feeling up to it.
I just recently did a shoot for my finals of my friend. I had each picture showing a characteristic of Cystic Fibrosis (in which both her and I have). This one was my favorite. The rest can be seen on my Flickr or Blogspot.
CF doesn’t define you. You have talents, accomplishments, and hobbies that drive you every day. It’s time to brag about it. Stand by it. And be rewarded for it.
The AbbVie CF Scholarship Program is awarding scholarships to people with cystic fibrosis who are taking the next step towards furthering your education. So check it out and see if you can lessen some of the financial burdens. Click here to apply.