My chronic pain disabilities (hip fuckery; migraines) do not stop me from working. It doesn't mean I should treat my disabilities with less respect than disabilities that DO make it impossible to work.
When my endo pain was at its worse, I did all the things I was supposed to do--according to HR--to protect my job. I filed ADA paperwork. I communicated when I used it. I had the doctor's note. Etc.
Two days before my hysterectomy, I got a call from HR. "Oh, we're not sure we'll have work for you after you recover."
Which, first of all, is fucking illegal to say to someone who has ADA paperwork in place with you.
And, second of all, you're a fucking liar. I was the ONLY tech writer in a company of 500 people. Don't bullshit me.
I should have filed a complaint and sued the fuck out of them, but all I wanted to do was be able to possibly get out of pain and not have to worry about my paycheck after that. So, I called someone else in the company who I knew would lose his shit if I told him I'd basically just been told I had no work to do.
Two days after surgery, I had an email from HR to my personal account. Which, technically, they ALSO should not have used to contact me while on medical leave that was--like my disability paperwork--100% lined up and signed off on.
But the HR person wanted me to know that "Oh, looks like there IS work for you! Lol! Didn't know!"
This is bullshit. She was very aware.
Years later, I'm at a much better company. My supervisor, who is nothing but supportive, recently floated that it might be good to have ADA paperwork in place for my migraines because they flare during stress, which is the time I'm needed at work THE MOST.
No shit: I went into hard shutdown for about two minutes after he said it. It wasn't a threat or a dismissal of my migraines. It was him going, "Oh, hey, so no one can ever try to use them against you to say you're bad with stress, you might do this."
But all I felt was how I was absolutely fucked over by a bad company because they said, "You need to follow these legal steps," and I did, and they still tried to get around them.
So, no, I'm not dealing with getting punished if I have more than 2k in my bank account. I'm not dealing with people touching me, or my assistive devices (I don't currently use any). I can park anywhere in a lot and walk to the store entrance. But I was disabled, and I AM disabled, and I have had people try to punish me for existing in a body that just fucking HURTS because it HURTS.
It's Disability Awareness Month. I am disabled. Less so than I was ten years ago, which is a fucking stroke of luck. But also my right hip has started to go now, and who knows what the next 10 years will bring.
It's Disability Awareness Month. If someone says, "I'm disabled, and I want to talk about my experience," please pay attention and listen and learn and understand there's all sorts of ways disabled people are fighting to be treated with basic human dignity and under the basic rule of law.