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Phoenix on Wheels

@phoenixonwheels

Chronically ill immunocompromised Cripple Punk on wheels. Older than you think I am. If you’re not disabled, you don’t get an opinion on disability issues. I have no time for fragile Abled tears. Defending ableism/ableists/eugenics or any other type of bigotry on my posts will earn you an automatic block.

FedNow will be released July 1st and when it's implemented the US government will be able to see ALL exchanges of money that aren't cash payments. Which means if you're disabled and on SSI or SSDI and are trying to crowdfund your expenses (because SSI and SSDI don't pay enough to survive) the US government will be able to see ALL of that and deducted that from your SSI payments (meaning you'll get less money).

Please sign this petition to end FedNow.

I'm not even on disability or at risk of needing it. But this is a huge invasion of privacy. Especially because a lot of my meds have to be ordered and delivered by mail (I get them from a special compounding pharmacy) which means I don't have the option of cash payments and it's none of the government's goddamn business how much my meds cost.

I looked to see if it was open to public commentary but it's not (commentary closed in 2021). So please call your representatives. Even if you have conservative representatives. Even Republicans are hating this proposal as a huge invasion of privacy.

Call them. Email them. Don't let that social anxiety get to you. They're YOUR representatives and they are here to represent YOU.

-fae

tbh i don't really get why we divide the oceans into different oceans because they're all connected it's the same ocean

no metaphor here just pure confusion...is there a line where one ocean stops and another begins? or is it like a smooth gradient of percentages of one ocean shading into another ocean?

Yes, there is a line. There are confluences you can see and touch and they are NOT subtle in the slightest.

That's the Atlantic and the Caribbean on a particularly pronounced day.

This is the Indian and the Pacific. It's not always this obvious everywhere but the dividing lines are very much there.

Oceans have their own properties as far as temperature and salinity and unless something like a storm or a current forces them to mix they won't. Mostly this applies to vertical mixing and it gives you things like thermoclines and haloclines but water is wierd and won't mix horizontally either.

The ocean basins tend to have their own currents that go in a circle and define that ocean, and those patterns mix the water within that ocean. Like a washing machine.

The Caribbean has a little loop of its own that not on this map, but that current keeps that ocean pretty internally consistent. It's got clear warm water because of the shallow bowl of limestone sand it sits in. Where it meets the Atlantic with wildly different conditions the water is traveling in opposite directions, and it acts kind of like an oncoming lane of highway traffic. Species that have adapted to a narrow band of temperatures and salinities (most fish) can't cross, while species with a stronger homeostasis hang out there on purpose, (marine mammals, turtles, sharks). Plankton, that cannot control their horizontal movement in the water column, are held in their home territories by these barriers.

Anyone else have that thing where you get stressed out when someone else is in a bad mood because now it's your responsibility to make them feel better, but if you're in a bad mood and someone tries to cheer you up you get stressed out because now it's your responsibility to pretend that it's helping to make them feel better.

Oh so this is probably a trauma thing too. Bitches have one terrible childhood and then make it their whole personality. I'm bitches.

I am also bitches.

I don't know; I kind of think that our culture is based around systematic denial of human limitations. I mean, there's the eight-hour work day (which is about 4 hours longer than most people are consistently able to remain productive); buffing your qualifications on job applications (which everyone needs to do to some extent, because everyone else is doing it); the expectation of multitasking, even though it's not really possible; academics are running around with impostor syndrome, ultimately because there's only so many books that an individual is capable of reading, while a bunch of liars and grifters pretend that they're experts at *everything* and are held up as thought leaders. Billionaires are held up as if they're just incredibly hard workers, photoshopped movie stars held up as if they're just incredibly beautiful. We feel guilty for not being something that never has and can never exist.

I hope random brands turn their logo rainbow for no goddamn reason. I hope they do it even if its a desperate bid to seem supportive. I dont fucking care if its shallow. Bud light made a limited edition rainbow can and white men with big trucks took machine guns on them. Target runs a line of admittedly cringe rainbow merchandise and is the subject of domestic terrorism. A random company going rainbow for a month is shallow but its showing the people that want to kill us that they can't win. The pride flag will be everywhere and itll piss them off and theres nothing they can do about it. No matter how much violence and hatred they dish out, they'll be too many goddamn companies to boycott, to threaten. You dont have to buy shit from them, just use rainbow capitalism against them.

reminder this pride month that disabled people in the US on SSI and SSDI do not have the same marriage equality as people not on SSI and SSDI. its called the marriage penalty.

by getting married, a disabled person can lose their income, benefits, and health insurance.

if a disabled person marries an able bodied person, and combined their assets are $3000 or over they will lose all benefits, including medicaid (health insurance).

if a disabled person marries a disabled person, their assistance is lowered 25%.

we don’t have marriage equality until all disabled marriages are equal.

sources x x x x

And speaking of scurvy, I am eternally amused by the thing where some ancient form of healing that was born in a time where people didn't know exactly how the human body works, or what causes it to stop working sometimes, that still somehow worked. Like how so many old folk medicinal plants were listed as a cure for various ailments that - from a modern view - are clearly just symptoms of scurvy, and the plant itself is rich in vitamin C.

I recall reading some story, no recollection of the exact time or place, where the king of a large empire suffered from constant horrible headaches and was incapable of falling asleep unless drugged or blackout drunk. Sick of taking temporary fixes to dull the pain and having to be sedated every night, he called up some old sage healer who was said to know how to fix things nobody else could explain, and the healer heard his symptoms and went

"Hmm. You spend too much time being a king. Your skull is packed so full of kingly thoughts that they don't all fit in there and that's why your head is in pain. You need to spend time not being a king." And prescribed him to schedule three days every month where he must go to a peasant village where nobody knows he's the king, live with a family there under a fake name and identity, work in the rice fields with them, eating the same food and sleeping on the same mats. Absolutely nobody is allowed to address him as the king, speak to him of any royal or political matters, and he himself is not allowed to think any kingly thoughts or think of himself as the king.

And naturally, this worked. Taking a regular scheduled break from a highly stressful office desk job to completely decompress, paired with physical exercise in the form of hard but simple physical labour, plain and simple food and Just Not Thinking About Your Fucking Job All The Time does help chronic stress, which here was worded as "spending too much time being a king clogs your brain."

Sometimes you do have ghosts in your blood, though I'm not entirely sure whether you should do cocaine about it.

Hot take everyone needs at least one creative hobby to accompany their consumptive ones. I don’t mean just art and writing I mean literally anything where you create something. Embroidery, cooking, knitting, gardening, wood whittling, trap making, needle felting, instrument playing, bug raising, fandom analysis writing, ANYTHING where you do work and can hold the fruits of your labor in you hands. Anything where you MAKE something else.

Something that isn’t a career choice. Something you don’t have to be good at. As long as it brings you joy.

Please get hobbies, they enrich your life.

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if i was at harvard in 2004 i would’ve stopped it

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it being facebook

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tomorrow another evil will dawn on us but because of your friend there is one less evil persisting and for that i am eternally grateful

i love when people are like “Oh my god, I couldn’t possibly imagine being asexual, how sad, you’re missing so much…” Bitch!!! You know what’s sad? Being gluten intolerant. If you placed two pills in front of me right now, one which would turn me allosexual and one which would enable me to tear into a freshly-baked oven-warm olive-and-rosemary ciabatta without utterly destroying my body, it would not even be a choice. “hyuhhh-duhhhh aren’t you worried you’ll die alone” aren’t you worried i’ll just launch myself over the bakery counter in our local grocery store one day and stuff croissants in my mouth like a starving racoon til i die and the whole place has to be closed down as a health risk while they peel my bloated body off the linoleum floor? You should be

What i have learned from the tags of this post is that there is a whole community of gluten intolerant asexuals and we are all DESPERATELY horny for bread

Spoiler alert: adulthood is 96% of you going “well, I hope this is how it works and I’ll keep doing it till someone yells at me”

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I like these posts because you read them as a teenager and you think, ‘surely these people are blowing it out of proportion’

AND THEN YOU REACH ADULTHOOD

i am in my 40s and can fully fucking confirm this is a pretty big chunk of adulthood. the rest of it is mostly doing what you’ve figured out you definitely don’t get yelled at for.

the other 4% is figuring out ‘did I deserve to get yelled at for this’ and proceeding accordingly

not enough people understand that disability benefits are basically what it would look like if you turned "if you're too sick for school you're too sick for video games" into an official public policy

"Oh you can go to the gym for physical therapy two hours a week? Well, you could work those hours at a job so I don't think you really need this money" <- an actuall quote

when charles schulz said "all you need is love. but a little chocolate now and then doesn't hurt" and anthony bourdain said "your body is not a temple, it's an amusement park. enjoy the ride" and mark twain said "part of the secret of success in life is to eat what you like." when erma bombeck said "i am not a glutton- i'm an explorer of food," voltaire said "ice-cream is exquisite. what a pity it isn't illegal" and when kurt vonnegut said "you can't just eat good food. you've got to talk about it too. and you've got to talk about it to somebody who understands that kind of food."

Speaking as someone who has been mentally ill and lonely for most of my teenage and adult life, incels are not just mentally ill and lonely. Incels subscribe to a politics of sexual entitlement and resentment towards women specifically because they feel they have not received the patriarchal favors they believe they're entitled to, and why they hurt and kill women who don't provide it to them. It's literally just "mass shooters are just mentally ill" bullshit done to another violent group of people ignoring the role fascist ideology and gender and sexual politics plays in producing them.

Also their ideology has nothing to do with not getting laid like be fucking serious. If getting laid was enough to cure men of misogyny it would literally not exist. No amount of sex or intimacy would ever help one of these freaks because it will never match up with what they think they deserve.

apparently we r doing this again

Selective Mutism: an anxiety disorder. The inability to talk is caused by social anxiety due to the people and/or situation around the selectively mute individual. Often starts in childhood.

Speech Loss: a term for being unable to speak for a certain period of time, usually due to autism-related reasons (e.g. being overwhelmed or burnt out). Can overlap with Selective Mutism, the disorder, but it is not the same thing. (For one, SL is a trait; SM is a whole disorder.)

Nonverbal/Nonspeaking: a term for people who are always or almost always unable to talk. If you're unable to talk for an hour/day/week, you're not "going nonverbal"; you're "losing speech". If you've never been able to talk more than a few utterances, that's nonverbal.

Semiverbal/Semispeaking: a term for people who struggle greatly to speak to communicate. This might include taking awhile to form sentences, speaking with very few words, relying on echolalia, using gestures to communicate, and not always making sense to others.

Hyperverbal: people who speak more than what's typical, though we can still experience speech loss. This can include things like having a large vocabulary, using more words than necessary/usual to say something, talking to ourselves, talking for the sake of talking, using a lot of non-communicative echolalia, not realizing we're talking, or rambling often.

A Note: over time, your place on the verbalizing spectrum (nonverbal, semiverbal, average, hyperverbal) CAN change, but that's not, like, "oh i was hyperverbal this week and nonverbal last week"; it's about overarching patterns. Additionally, Selective Mutism does not inherently put someone at a certain spot on the verbalizing spectrum.

Disability advocate: posts pictures on social media of themself, their disabled spouse and their two young children, all maskless, in a room full of unmasked people
Disability advocate: “I haven’t been able to post for a few weeks because I’ve been very ill. After managing to avoid it for three years I finally caught The Virus...”
Me: Is this a joke? Tell me this is a joke.

Look asshat, if you’re running around unmasked in a fucking pandemic exposing yourself, your disabled spouse and your young children to Covid you don’t get to call yourself a disability advocate. You’re a you advocate. You’re in it for the rights you yourself can take advantage of and fuck anyone else.

You don’t get to commit eugenics and call yourself a fucking disability advocate.

Also I love how these people always act like it’s an absolute mystery how they got Covid. Girl it took me 2 seconds and 1 brain cell to figure it out and yet somehow you’re acting like it’s a world class whodunnit.