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@onehellofashadynerd

I’m Latina (half-Mexican, half-Chilean), straight, go by she/her, and I’m on the autism spectrum. Also, I’m 22.

hey you, blogger. do you find yourself in incredible pain daily? even weekly? despite being in your 30s, or younger? despite doing everything that's ""supposed"" to help?

On top of being in incredible pain, can you or could you at any point in your life:

  • bend yourself into funny positions like putting your foot behind your head
  • can bend down without fanfare and put your palms COMPLETELY FLAT on the floor
  • do your elbows bend a bit backwards? how about your knees?
  • you can bend your pinkies backwards 90 degrees
  • you find your joints are incredibly weak and garbage; wrists often in pain despite doing stretches; shoulders/neck always hurting no matter how good your posture is; can’t get down on your hands and knees because doing so is Ow Ow Oof Ouch
  • you have gastrointestinal issues that you cannot link to food in any way (yes, for real,)
  • headaches/migraines – especially unexplained, but even if you do have an explanation (for real)
  • never had enough room in your mouth for your teeth
  • vision prescription gets better and then gets worse again and you find yourself very confused about how??? why????
  • have really bad allergies including “I can’t use x soap it gives me a rash for some reason” or other similar “coming into contact with certain things makes me break out” (it’s called MCAS, it’s often comorbid)
  • stand up and your heartrate spikes and/or you get dizzy (that’s called POTS, also comorbid)

Then, hi, you might possibly have something called Ehlers-Danlos Syndrome, or EDS; specifically the hypermobile subtype (hEDS), which doesn’t yet have a known genetic marker and goes wildly underdiagnosed in patients, partly because the things they test for hypermobility are pretty limited, partly because doctors don’t know what it is, partly because doctors would rather diagnose you with a different condition (if arthritis or fibromyalgia diagnoses/treatment didn’t help, well...!) because if it sounds like a horse it’s PROBABLY a horse (but it could be a zebra)

Of course having any one of these does not an hEDS diagnosis make, but if you have multiple on my above list? Multiple of the list I am including below the cut? It’s worth looking into. You can continue on reading to see my brief overview, or you can head to www.ehlers-danlos.com to do your own research; they’re a great resource!

"I have a lot of these but not all of them" that's still worth looking into! I've only got five on the above list, and i definitely still have hEDS! Even three is worth considering!

more symptoms and info below the cut, if you want to hear it from a fellow blogger who was diagnosed at 25 and found the diagnosis Extremely Eye Opening as to why i was always in pain and Various Other Issues

This is a fantastic resource list, but it's missing both one thing I've seen as a defining marker of EDS, one minor symptom, and one thing I've heard is extremely commonly comorbid.

Do you have wounds that heal extremely slowly in comparison to other people, and/or are you super prone to mystery bruises? Because EDS is a connective tissue disorder, it strongly affects blood vessels and blood vessel repair. People with EDS tend to just have weaker blood vessels, which means they burst at less pressure than it takes for non-EDS people to bruise. And everything heals slower because connective tissue is what knits you back together.

Disregard your family's rate of healing because of the genetic factor and ask your friends how long it takes them to heal from little scrapes and the like. If the answers you get are "wow that's way less time than it takes me to heal from a papercut," you might have EDS! (Or another connective tissue disorder, which you should probably get shit checked out either way.) Similarly, if you get visible bruising from things like "I knocked my hip into the wall turning a corner at walking speed" or "I scratched myself too hard," you should also get checked out. That's not normal.

POC-specific: If you are lighter-skinned than expected for your ethnicity, you may have EDS. This is purely anecdotal because (as usual!) there's very little data on EDS in non-white people, so do take it with a grain of salt. That said, particularly pale skin is a marker of EDS even in white people.

And do you not get relief from pain medication? There isn't a known genetic marker for EDS yet, but there ARE genetic conditions that cause people to not get pain relief from either narcotics or otc pain medication. And these conditions are extremely commonly comorbid with EDS. (As in, to the point that anecdotally I was talking to someone who researches EDS about my immunity to OTC pain meds, and they congratulated me on my new EDS diagnosis before I clarified that I have none of the symptoms of EDS.) So if either class of pain meds is something you might as well not even bother with, that can also be an indicator.

Disclaimer: As I noted, I don't have EDS (my ex does and that's where I got a lot of the information from), but I hope that this can also serve to give a heads-up to people, especially those who don't fit into the hypermobile category.

I’m a Hispanic woman, hypermobile with dislocating kneecaps, and lighter than you’d expect. My knees hurt when I go up and down stairs, but the physical therapy helps.

If you call pedophilia a kink please unfollow me and never talk to me again

Isn’t it disgusting that 23 people just unfollowed me

Unfollow me too

this goes double if you call paedophilia a disability. unfollow me twice

and if you call pedophilia an “orientation” or in any way compare it to being LGBP+ you can unfollow, delete your blog, and set yourself on fire. 

I just lost 50 followers.. bye

clearing out the trash

GO ON AND S M A S H THAT UNFOLLOW BUTTON

BUHBYE U McNASTIES

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I’ve seen this circulating forever and genuinely thought “no way do I have any of them following me” until this week when it turned out I had all these fuckin “MAP” (pedophile) followers sad to find out I’m an “anti” (normal person) Please leave and also please get guinea worm.

I’m reblogging to both of my blogs bc I don’t need ppl like that here

this is going on here and also my alt

get gone ya mcfucks

Fuck it, get out. 

Right now. 

RIGHT NOW.

PRESS THAT UNFOLLOW BUTTON AND LEAVE. 

this includes if you stand with the “ogohogho they jsut need help!!!!!!! its ok!! they just need some help!!” statement. get out

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get out and get help now

You have disgraced yourself and your bloodline. Get out.

This blog is a safe space.

Nazis, TERFs, pedophiles, bigots, Tr*mp supporters, Islamophobes, exclusionists, queerphobes, and anyone who can’t reblog this post, etc, do not interact. I will block you.

Hell yeah!

why does this have 32k notes? it’s just a picture of a knife in a ranch bottle, is there some unspoken joke that 32 thousand people share? what is going on here, i dont get it. it’s just a fucking picture of a knife in a ranch bottle. is there some spiritual connection people have to this picture? is there some ominous and mystical reasoning that this has 32 thousand notes? do people reblog this because it makes them look like some indie blogger? or is there just something funny to this? someone please explain

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no one tell him

Scheduling this to post on March 15 because it needs to happen.

The ides of March have come

Beware the ides of March.

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Beware!!

Ah yes, the Ides of March. Should’ve listened to Calpurnia.

Seriously just a bit of pollen could make your cat sick within a matter of minutes. Stay far away from Easter lilies if you have kitties!

Lilies, including the pollen, are FATAL to cats!

It’s nearing that time again. Remember, if you have a cat, don’t bring Easter lillies, or any in the same family, into your home!

Of all the plants people claim to be toxic to cats, this is THE plant to watch out for.

Poinsettias? potentially irritating sap, would need excessive doses to be toxic. Pothos? mildly irritating crystals in the leaves. Lilies? Organ failure.

Specifically, plants in the genus Lilium (Easter, Oriental, Tiger, Stargazer, etc etc) are the bad ones. Lily is a common name shared among a lot of different plants, some more or less toxic, but it’s the Liliums that are documented to be deadly to cats, specifically in causing kidney failure.

Amaryllis and Daffodils are other lily relatives that can be toxic, though not to the same level.

Daylilies (Hemerocalis) are unrelated plants but often listed as toxic (I’ve seen some debates from daylily people as to how true this is but better safe than sorry).

Lily of the Valley (Convallaria majalis) is not actually a lily but is very toxic to humans as well as animals, though for different reasons than Liliums, causing cardiac issues.

Peace Lilies (Spathiphyllum) are also unrelated and closer in the level of toxicity as a pothos, containing mildly irritating crystals but not deadly

Azalea/Rhododendrons are also a potential spring bloomer I would look out for, especially as I’ve seen a rise in popularity of the forced florist type azaleas this spring as an indoor pot plant. Ingestion can cause organ failure.

Vet tech here, this is all true. Do not bring lilies into your house this season if you have cats. Even if they’re ‘in a room where the cat doesn’t go’ or ‘the cat can’t reach it’. You want to know what owners tell me when they bring their cats in for lily ingestion treatment? The flowers were ‘in a room where the cat doesn’t go, but I went in there and then the phone rang so I left to get it, I only left the door open a minute’, and ‘they were up on top of the fridge where the cat can’t get, but it dropped some leaves.’ Just don’t risk it.

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save the kitties!

I’m aspiring to be a vet and this is so helpful. Thank you.

Black cats are lucky. (via leahweissmuller)

MAN [IN THICK ACCENT]: Black cat bring good luck.  Not bad luck.  I have black cat - See, him face - And I am not dead today: Good luck!

“See him face”

I sure fucking do see him face

Him face

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Reblog him face for good luck in 2021

Reblog him face for good luck in 2021 (2)

Reblog him face for good luck in 2022

Reblog him face for good luck in 2023

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Always reblogging Him Face. :)

And I! :)

Headwear called cofia

You might have read that Catherine of Aragon arrived in England, wearing italian hat/headwear. However, friend of mine pointed out it is possible somebody confused it, with spanish headwear which was extremely similiar. You be the judge:

On left Italian headwear, on right spanish. Both called cofia.

How many movies and tv shows are there with Queen Catherine wearing italian dress and headwear, and yet never it is the headwear which resembles closely that of her homeland. It’s always some ridiculously huge headwear.

Note:I found out that people who originally discribed Catherine’s headwear as italian in first place were Venetians, it is likely that they considered the headwear italian. Idk if originally headwear started in Italy or Spain, but by Catherine’s lifetime cofia had both italian and spanish subtypes. 

There are some notable difference between these two subptypes. Italian usually had the half traluscent/netted upper part, while Spanish had it non-traluscent, usually from white linen. 

There were exceptions, Italian examples of non-traluscent cofia:

Italian, Milanese, Female Members of a Confraternity, about 1500-National Gallery in London:

I think that was probably due to royals of Naples being branch of house of Trastamara(Aragon royal family), themselves being influenced towards Iberian style, and some people around them could wear it that way too.)

Supposedly Isabella of Aragon/Naples, Duchess of Milan:

image

Or perhaps we could say Italian cofias could be traluscent(netted) and non-traluscent, while Spanish appears to have been strictly non-traluscent. 

Term cofia means cap and I am surprised with how few people even know it existed. It was as important as henin, gable hood, french hood and other well-known headwear. Very prominent in Spain and in some parts of Italy.

I blame way potraits in 15th and 16th century are painted for it being ‘missed’.

One left from back/side        and how it typically shows on portrait:

You can barely see it!

Also, the part wrapped in fabric around hair wasn’t always there, just the cap.

(That was also refered to as cofia, at least in Italy, and though barely visible nowadays it is on Mona Lisa!)

I call that part wrapped around hair cloth braid(because it reminds you of braid, and in spanish I keep finding term cofia de tranzado(braided cap) as term for entire headwear(cap and cloth braid) and cap itself doesn’t remind you of braid, so perhaps tranzado is what i call cloth braid.) 

On other hand in Spain, sometimes just the cloth braid was worn without cofia. And I have no idea how to call it then-just tranzado?

I just know young Isabella and her daughters often wore hair that way.

Isabella of Aragon, Queen of Portugal(detail from Virgin of Catholic Monarchs):

image

But how did proper spanish cofias look like? For you to get better idea I found several paintings(not necessarly in chronological order) with either good angle or with interesting detail. Enjoy.

Reblogging so I won’t forget about this somewhere.

An investigation by ProPublica found online pharmacies that sell abortion medication such as mifepristone and misoprostol are sharing sensitive data, including users’ web addresses, relative location, and search data, with Google and other third-party sites — which allows the data to be recoverable through law enforcement requests.
ProPublica found similar web trackers that capture user data on the sites of at least nine online pharmacies that offer abortion pills by mail, including Abortion Ease, BestAbortionPill.com, PrivacyPillRX, PillsOnlineRX, Secure Abortion Pills, AbortionRx, Generic Abortion Pills, Abortion Privacy, and Online Abortion Pill Rx.
None of the pharmacies immediately responded to Insider’s requests for comment.
Representatives for the FBI told Insider they were “unable to accommodate” Insider’s detailed request for information about the criteria required for officers to issue a request for a civilian’s social media or internet history, what information is generally turned over to them in the pursuit of such information, and what channels officers used to make those requests.
Representatives for Google and the Los Angeles and New York Police Departments, two of the largest police forces in the country, did not respond to Insider’s requests for comment.

My good sir/madam, what fuckery is this? I don’t know who thought this whole data sharing deal was a good idea, but whoever did deserves to be repeatedly smacked squarely in the back of the head with a chancla.

hi. i’m not american. WAS ANYONE GOING TO TELL ME THAT THE OFFICIAL ARBY’S SLOGAN IS “WE HAVE THE MEATS” OR WAS I SUPPOSED TO FIND THAT OUT FOR MYSELF TODAY JUST NOW

WE HAVE THE MEATS???????????? WE HAVE THE FUCKING MEATS????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????

It gives He-Man “I have the power” vibes.

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if you remember rise of the guardians (2012) you are entitled to financial compensation

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if the phrase “rise of the brave tangled dragons” means anything to you you are entitled to even more money. fyi

Ah yes, I was around during this era. I remember having seen Rise of the Guardians though I’m not sure what year. I remember it was in the 2010s though. I remember Rise of the Brave Tangled Dragons from Quotev.

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I don't like being cheesed

it grates on my nerves

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That joke was cheesy

And nacho best pun

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WDYM

It was grate!!

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YOU ALREADY USED THAT!!

Come on! If you’re gonna make cheese puns then BRIE original

I’m getting FETA-p with these recycled jokes

What did the piece of cheddar say to the ghost?

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(I apologize to all the people who follow both me and Owl and have a cheese pun battle flooding their feed)

What did the piece of cheddar say to the ghost…

Don't scare me—I'm Lac-ghost intolerant!

Don’t get your panelas in a twist. Let’s all chill.

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I have polls now! So this is related to a poll recently on my dash where I was too old for all of the options:

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You have no idea how sad I am about the 10 slot limit because thanks to it I wound up excluding:

  • Sesame Street (1969- ) (broadcast on PBS Kids from 1969-2016)
  • Newton’s Apple (1983-1998)
  • The Adventures of Dudley the Dragon (1993-1997)
  • The Joy of Painting (1983-1994)
  • Bill Nye the Science Guy (1993-1998)
  • The Puzzle Place (1995-1998)
  • Thomas the Tank Engine & Friends (1984-2021) (Originally broadcast by ITV in the UK, run by PBS kids starting in 1989. At some point in the 2000s Nick Jr took over the show)
  • Shining Time Station (1989-1995)
  • Theodore Tugboat (1993-2001) (Originally a CBC show aired on PBS between 1996-1999 and PBS kids from 1999-2001)
  • Wimzie’s House (1995-1996) (originally broadcast by Télévision de Radio-Canada and aired the US by PBS Kids between 1997 and 2001)
  • Teletubbies (1997-2001) (originally broadcast by the BBC and originally aired in the US by Nick jr, but in 1998 it started being aired on PBS kids as well)
  • Arthur (1996-2022)
  • Kidsongs (1985-1998) (While it was not its first network Kidsongs was broadcast on PBS from 1994-1998)
  • Square One Television (1987-1991)
  • Square One TV Math Talk (1995-1996)
  • Katie and Orbie (1994-2002) (originally broadcast by Family Channel in Canada. Between 1995 and 1997 the show was aired in the US by PBS, and after that it was aired by Disney Channel)
  • Kratt’s Creatures (1996)

There are probably even more that I am forgetting.

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Since this post is blowing up I want to point something out.

Everyone who still has fond memories of watching PBS programming as a kid can attest to the impact and benefit of well funded public broadcasting. You also probably grew up hearing the constant endless phone banking about how Public Broadcasting is Made Possible With the Support of Viewers Like You. Thing is, you are not too young to support PBS anymore. You are the adults, adults who in this age of streamers making television access so expensive, have the power to toss some money in the direction of public television.

I’m not 30, but may I raise you WordGirl (2007-2015)?

which fanfic writer problem are you?

fic hopper: working on a wip and don’t know where to go next? easy, just work on a different wip, then if that one doesn’t work out, open a different one, it’s foolproof!

all my tropes are dead: there are only so many ways you can describe a kiss, and you’ve written so many between this pairing that you’re running out of ways, don’t talk to me about the words ‘chaste’ and ‘soft’ ever again

unsung hero: im writing a fic under a certain set of tags or concepts to get more hits but the real story is about __ extremely specific thing that only i and two of my closest friends care about 

rarepair hell: self-explanatory 

wlw rarepair hell: like rarepair hell but one level worse

my last braincell: you’re a perfectionist so you’ll either post this chapter when it’s perfect or not at all 

wandering eye: a side element or original character you introduced in your story is now near and dear to your heart but no one else will care about it 

im well educated and will kick your ass: you’ve done so much research for this but can’t seem to write the damn thing 

all talk and no action: you were going good until you got to this necessary climactic action scene and now it’ll have to wait for three months 

Is there a hell where I want to reference an old lai in a fanfic but hardly anyone will get it?