My story has 21 years of weird experiences and adventures but here is some of it in short:
I was born sighted with a genetic timer that waited until I was about 4 or 5 to start killing off the cells in my retina. I spent the next ten years adapting to my surroundings as I was expected to, not knowing that my experiences were vastly different than the people around me’s were.
I grew up around visual artists and story tellers, from my father who pioneered many fields in visual art to the talented artists that surrounded me in childhood to the amazing work that I consumed. With all this inspiration I decided at the age of 11 that more than anything I wanted to make films. I loved filmmaking even before that but after that I was determined.
Then when I was 15 years old, for the first time in my life, a man in a lab coat told me that my experiences were different and that I wasn’t just making things up. After ten years of optometrists telling me I was lying and just wanted glasses, after ten years of convincing myself I was selfish and wanted to see more than a normal person could, there was finally an eye doctor who looked at my eyes and told me they weren’t working in the same way a normal eye does.
At this point I was already going to an art magnet high school and working on a concentration in film. Despite my disappointment that I would never get to drive (which was a big one), I felt so happy to have finally earned the title blind. I held it with pride and it took me awhile to even realize that some people might take my eyesight as a sign I couldn’t make films.
I continued to make films every year of high school. Got my diploma and my certification in film and headed to UC Santa Cruz. For the past three years I have enjoyed an exceptional film program here at UCSC, where I can make countless short works and learn from amazing professors.
My eyesight gives me a unique experience that I only wish other people could understand. One of my biggest inspirations was my grandfather who passed away before I was born. He was blind from the age of 5 and he still graduated from Harvard and became a well respected rocket scientist.
Since I’ve been diagnosed I’ve absolutely suffered discrimination. I wouldn’t be exaggerating if I said I suffer it every day. Though I’ve also had so many people who have inspired me, respected me and supported me. I try to take all of the positive words and allow them to give me strength to fight the negative ones.
We are survivors, we have to do twice as much fighting but we still find our way to our goals.
Now it’s your turn! How did you cope with going blind? How did you still achieve your dreams? What are the best parts and the worst? What’s some advice you have to people who are going blind and still want to do what they love?
I will post your answers and your stories here if you send them my way.