REBLOG IF YOU WOULD LIKE SOME ANONS IN YOUR INBOX

Reblog if you've ever been told "Kill Yourself."

Yep ... and I tried ... but DEMI LOVATO saved me

Re-blog if you're accepting anonymous asks from anyone about anything

i already rebbloged it but its just lol

Tumblr is my second family. God bless all you beautiful people x

THIS^

MBF yurimilk

likers ignored

3 archive screenies, 2 solos, 1 list of 7 with favs bolded & followed

Scary accurate.

On May 28th, my sister, Edna, turned 31.

  Her mental age is about three years old. She loves Winnie the Pooh, Beauty & the Beast, and Sesame Street. Even though the below picture is unconvincing. 

Edna and “Cookie.” I think she was trying to play it cool. 

My name is Jeanie. I’m Edna’s younger sister. I’m also her guardian and caregiver. 

That’s me on the left. (Hey, you never know. After a year of writing a blog about online dating - Jeanie Does the Internet - I’ve come to learn that there are A LOT of fools on the internet.) 

ANYWAY, I’m not “doing the internet” anymore. I’m taking care of Edna full-time, after completing my MFA in Writing for Screen & Television at USC.

May 16, 2014. I wanted a picture. Edna wanted breakfast.

In case you’re wondering where our parents are, they’re dead. Our mom died of breast cancer when she was just 33. 

Us with mom before she died. (Obviously.)

As for our dad, he peaced-out around the time my mom got sick. His loss - we’re awesome. 

Here we are being awesome at the beach. Pushing a wheelchair in the sand? Not so awesome. 

In case you’re wondering “What’s wrong?” with my sister - as a stranger once asked me on the street  -  NOTHING. Yes, Edna has a rare form of epilepsy - Lennox-Gastaut syndrome - but I don’t know if that’s anymore “wrong” than people who don’t have manners. 

Basically, Edna was born “normal,” and started having seizures as a baby. They eventually got so bad that they cut off the oxygen to her brain, causing her to be mentally disabled. Or impaired. Or intellectually disabled. Or whatever you want to call it - except “retarded,” because in 2010, President Obama signed Rosa’s Law into effect, replacing that word with “intellectually impaired.” 

Which is cool and all, but services for the disabled and the people who care for them are SEVERELY LACKING. Also, there’s a bunch of people working in taxpayer-funded positions who are supposed to help families like us, but don’t. (Big surprise, I know.) They just fill out paperwork (whenever they feel like it) with asinine statements like this: 

YUP. I transport my sister down the stairs in her wheelchair, because that is not only safe, but TOTALLY PRACTICAL. Why doesn’t everyone in a wheelchair just take the stairs, for God’s sake? Stop being so lazy, PEOPLE WITHOUT WORKING LEGS! 

But, as it says above, Edna’s legs do work. Whether or not she wants them to, is another story. 

Edna refusing to go inside. 

These are the stairs that I have to carry her up - by myself - on a daily basis. That is, until one of my legs break and both of us are just sitting at the bottom of the stairs, helpless. 

For six months, I have begged - BEGGED - the State of California to help my sister, which they are required by law - The Lanterman Act specifically - to do so. But they’ve told me “these things take time” and that I “need to amend my expectations.” (That was said to me when I refused to place Edna at AN ALL-MALE CARE FACILITY. Because yes, that was an “option” that was offered to me.) 

Prior to Edna moving in with me in my one-bedroom apartment, she was living with her amazing caregiver, Gaby, back in Tucson, where we went to high school and I did my undergrad. Edna’s reppin’ the Wildcats below. 

But back in November, Gaby also died from breast cancer. (FUCK YOU, BREAST CANCER!) This picture was taken a month before she died. She never even told me she was sick because she didn’t want me to worry. 

By the way, we were raised by our grandma. Edna and her were very close.

She’s dead, too. Surprise.

She died when I was 20 and Edna was 21. That’s when I became Edna’s legal guardian and Gaby stepped into the picture to help me out with Edna. 

So, six months ago, after Gaby died, I moved Edna to California, where I tried to get the folks over at The Frank D. Lanterman Regional Center to help me. I’ve told them I’m worried about our safety - that one of us could get hurt on the stairs -  I’ve told them I can’t afford to pay the private babysitters $15/hour because the ones social services sent me who make $9/hour were unreliable (they didn’t show up on time or at all so I could get to school and work), untrustworthy (one of them let Edna go to the bathroom in the kitchen and then took her into the bathroom because “that what I thought I was supposed to do.”) 

But the people over at the FLRC don’t return my calls, they don’t file the paperwork on time - and the first caseworker that was assigned to us actually LAUGHED AT my sister when he came to our home to evaluate her. When I reported him to his supervisor, she told me, “That’s just [insert name of said jackass].” 

He was one of the two caseworkers that contributed to the report I mentioned above, which also included this: 

So let me get this straight - I have to feed, bathe, dress and help Edna in the bathroom and you can’t deduce whether or not she is able to vote? What in the fuck?!

Now I realize I seem angry. And you can bet your balls I am. I’m also sad. Sad for those who don’t have family to stick up from them and who waste away God knows where, monitored by no one. Or monitored by people who physically and sexually assault them. 

I’m also sad for the caregivers who are SO EXHAUSTED - trying to take care of their loved ones - while also trying to take care of themselves and battling a system that is supposed to help, but does nothing of the sort. And I know a lot of people give up. They let their dreams, their marriages, their friendships slide. All while trying not to resent the very person you’re doing it all for.

Edna wanted to sit next to me the other day while I was writing. Clearly, she’s not impressed. 

Here’s the thing: I REFUSE TO GIVE UP. I’M NOT GIVING UP ON HER OR MYSELF. I’m going to pursue my dreams while taking care of her, AND while ensuring that the people paid to do their jobs ACTUALLY do them.

That’s where you come in. I need you to help me get my story out there. Because I know I’m not alone in this. I want to connect with families who are in similar situations and also show people who have no idea what it’s like to care for someone with a disability (or even a loved one who is sick) that it can be rewarding. Super fucking hard. Exhausting. Painful. Isolating. But, rewarding. 

I’m going to get help for my sister - and others. My hope is that by sharing our story, I can bring awareness to the lack of services and help for the disabled. 

Thank you, 

Jeanie 

Facebook:  facebook.com/eisforedna

Twitter: @EisforEdna 

This made me cry

SIGNAL BOOST

STOP SCROLLING. THIS PERSON ISN’T ASKING FOR MONEY AND THIS POST WON’T MAKE YOU SAD.

This is a really uplifting and inspirational story of a family sticking by each other and making things work despite a whole lot of shit

They just want to find other people in the same position they are, for a sense of community and to feel like they aren’t alone.

I know out of all of you, some of you have followers who are living with and taking care of intellectually or emotionally disabled family members, and this lovely and unbreakable pair of sisters need to find them.

SIGNAL BOOOOOOOOOST

Reblog if you are so unpopular that you don't even get an anon's hate.

This is me, my name is Kelli and I’m 17-years-old, battling cancer for the third time. I have less than a year to live and the only thing I want to do more than anything before I die is meet Ellen. She’s my sunshine. She’s the reason I wake up everyday and I watch her show every morning. She just radiates so much joy and happiness and she gives me hope. It’s really my dream to be able to meet her. Unfortunately, due to a long waiting list, the Wish Foundation told me I probably wouldn’t be able to meet her within my short timeline. But I see miracles happen all the time.. therefore I won’t give up on my dream. I thought that maybe if this gets enough attention, someone from the Ellen Show would come across it, or maybe even Ellen herself will know of me and my wish to meet her. Please, help me make my wish come true.  

HELP HER

GUYS KEEP REBLOGGING

This is me, my name is Kelli and I’m 17-years-old, battling cancer for the third time. I have less than a year to live and the only thing I want to do more than anything before I die is meet Ellen. She’s my sunshine. She’s the reason I wake up everyday and I watch her show every morning. She just radiates so much joy and happiness and she gives me hope. It’s really my dream to be able to meet her. Unfortunately, due to a long waiting list, the Wish Foundation told me I probably wouldn’t be able to meet her within my short timeline. But I see miracles happen all the time.. therefore I won’t give up on my dream. I thought that maybe if this gets enough attention, someone from the Ellen Show would come across it, or maybe even Ellen herself will know of me and my wish to meet her. Please, help me make my wish come true.  

HELP HER

GUYS KEEP REBLOGGING

This is me, my name is Kelli and I’m 17-years-old, battling cancer for the third time. I have less than a year to live and the only thing I want to do more than anything before I die is meet Ellen. She’s my sunshine. She’s the reason I wake up everyday and I watch her show every morning. She just radiates so much joy and happiness and she gives me hope. It’s really my dream to be able to meet her. Unfortunately, due to a long waiting list, the Wish Foundation told me I probably wouldn’t be able to meet her within my short timeline. But I see miracles happen all the time.. therefore I won’t give up on my dream. I thought that maybe if this gets enough attention, someone from the Ellen Show would come across it, or maybe even Ellen herself will know of me and my wish to meet her. Please, help me make my wish come true.  

HELP HER

GUYS KEEP REBLOGGING

This is me, my name is Kelli and I’m 17-years-old, battling cancer for the third time. I have less than a year to live and the only thing I want to do more than anything before I die is meet Ellen. She’s my sunshine. She’s the reason I wake up everyday and I watch her show every morning. She just radiates so much joy and happiness and she gives me hope. It’s really my dream to be able to meet her. Unfortunately, due to a long waiting list, the Wish Foundation told me I probably wouldn’t be able to meet her within my short timeline. But I see miracles happen all the time.. therefore I won’t give up on my dream. I thought that maybe if this gets enough attention, someone from the Ellen Show would come across it, or maybe even Ellen herself will know of me and my wish to meet her. Please, help me make my wish come true.  

HELP HER

GUYS KEEP REBLOGGING

This is me, my name is Kelli and I’m 17-years-old, battling cancer for the third time. I have less than a year to live and the only thing I want to do more than anything before I die is meet Ellen. She’s my sunshine. She’s the reason I wake up everyday and I watch her show every morning. She just radiates so much joy and happiness and she gives me hope. It’s really my dream to be able to meet her. Unfortunately, due to a long waiting list, the Wish Foundation told me I probably wouldn’t be able to meet her within my short timeline. But I see miracles happen all the time.. therefore I won’t give up on my dream. I thought that maybe if this gets enough attention, someone from the Ellen Show would come across it, or maybe even Ellen herself will know of me and my wish to meet her. Please, help me make my wish come true.  

HELP HER

GUYS KEEP REBLOGGING

This is me, my name is Kelli and I’m 17-years-old, battling cancer for the third time. I have less than a year to live and the only thing I want to do more than anything before I die is meet Ellen. She’s my sunshine. She’s the reason I wake up everyday and I watch her show every morning. She just radiates so much joy and happiness and she gives me hope. It’s really my dream to be able to meet her. Unfortunately, due to a long waiting list, the Wish Foundation told me I probably wouldn’t be able to meet her within my short timeline. But I see miracles happen all the time.. therefore I won’t give up on my dream. I thought that maybe if this gets enough attention, someone from the Ellen Show would come across it, or maybe even Ellen herself will know of me and my wish to meet her. Please, help me make my wish come true.  

HELP HER

GUYS KEEP REBLOGGING

Yea

yes.

The amount if notes on this scares me a bit

many times lol

And yet still with the amount of nptes on this post no one understands why

Yea

yes.

The amount if notes on this scares me a bit

many times lol

Many times

PLEASE READ AND SIGNAL BOOST

My friend Jenny told me that she wants to run away from home, and after me trying to convince her that she shouldn’t, she’s claiming she’ll either attempt suicide TONIGHT or run away.

Jenny is a really, really importantfriend to me, and we agreed that if this gets 100,000 notes, she won’t attempt suicide or run away.

Please, please reblog. I don’t want to lose Jenny.

Reblog if you like an actor twice your age

Want to prove to a classmate that I am not the only one.

All of tumblr should be reblogging this.

Wait, just one?….

Would you like me to give you a list?

I love how every time I reblog this it’s a different gif of Crowley rolling out a contract.

@ddlovato: Use #SaturdayNightOnline in your KEEK videos and request Really Don’t Care…lets make it the most requested!!!😜