im scared of being institutionalised. im violent and aggressive and a problem and it might be too much one day. maybe not even because of me but because its tiring to look after me. dont know when. i dont like change or strange people.
i can only mask when asked to and i cant do it right. asked to like.. please stop hitting that, sometimes i dont want to, i find it painful to stop, i dont notice when i started again
if i could, no matter how much i try to mask, ill never look like even msn or level 2, let alone lsn or level 1. it will never happen.
and ill always be intellectually disabled. that makes it more? i cant just decide to not be intellectually disabled anymore, cant mask things that arent there
a lot of lsn level 1 autistics think theyll be like me if they unmask. heres why you (you = lsn level 1s who think this) wont.
i need someone to wash me, i need someone to pick my clothes if its more simple than pyjamas, and i can dress myself if its simple clothes (my pyjamas) but i still might get stuck and need to be helped, i need someone to do all buttons and complicated thinks for me.
i can eat myself with simple plastic cutlery sometimes, it depends on the food, i find it very hard and i drop it all over myself and everything else, but i can do it! i use my hands most of the time. i need to be watched so i dont choke. same with drinking but i usually pour it all over myself and everything else. this is every single time.
also need to be watched all the time, supervised looked after, im dangerous to myself and i dont recognise danger. i get injured a lot and i run away (cant really do this anymore since i cant walk anymore, but i still try to elope even though i cant! thats how much my brain just wants to go and leave. cant understand consequences. no impulse control)
not talking about other things because it is too complicated and dont know how to. and also theres more things for all these that i dont know about or how to talk about
and for me no help means death. not enough help means bad health and infections. im neglected right now, but have more help and more people to help than you could ever imagine. neglect looks different for me.
still neglected because thats how much help i need. and i didnt know im neglected myself i cant understand it myself and still find it hard to so i have to be told. i only get to say it and know it because a different close person helps me and helps me write. because im lucky. i have infections right now!
lower support need people dont understand how i can be neglected but its because i need so so much help and i dont get all of it. i still get a lot of help more help than you ever do. but could die any day.
and then more level autism things. semiverbal ‘talk’ here does not mean mouth words
cant read any nonverbal cues. dont know they exist except when told directly they exist but i forget quickly and it doesnt mean anything to me because the concept isnt there. do not reciprocate, just talk about myself and special interests to have conversations.
dont interact to new people or even really close people a lot, dont respond to people, ignore people stay in my own world even if its dangerous. have meltdowns from people being around me trying to talk to me when i dont want to even if theyre the closest people ever and i love them so much.
online i like more, can take so long get so much help communicate better. can get rid of it when i want. still have severe issues.
help does not fix me. im still not right for social places. not made for it not even disabled ones. i cant keep friends, i can only have friends keep me. too disabled to be friends with people who arent educated and okay with it. friendship is very different for me. have my first friends now at age 18 and one will be my full time carer when i can move.
have severe sensory issues. in a low sensory environment almost all the time and still have at least one daily meltdown. rarely have days with no meltdowns, have multiple in one day often. sound, temperature, touch, light, smell, all the sensory things. even just no reason sometimes or reasons i dont know about. no one knows.
have lots of meltdowns over things like people being around me, im really violent and aggressive. meltdowns over not being able to do what i want all the time. severe issues changing task cant tolerate change. takes months/weeks planning preparing for one day out and takes me hours to be able to adjust to go out places.
big stims 24/7 i find it painful not to. stims all the time. severe pica and self injurious behaviour and mutilation. so much echolalia. cant follow social rules. arfid. takes a long time, hours days weeks if i can to switch tasks. very dependent on special interests for all of life, cant function without them. cant cope if i cant interact with them. will refuse body functions for them. will refuse so much for so many reasons.
its not ‘i need reminders’ its ‘i need physical intervention, sometimes to be forced no matter what the consequences are’
this barely scratches the surface of me. and its not the best. this took me 4 hours to put together havent done much anything else and i had a lot of help and also learnt about a lot of myself things i didnt know. i had so much help for this. theres things i dont know about still and just too much to ever make a list or anything of it.
and my words still arent all perfect even with help so please dont take my words and decide you understand it when i cant communicate differently. post might be all messy too. so lucky to be able to make posts like this.
unmasking will never make you be like me, you dont choose to be like me! i didnt choose it. its just how i am