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Fight Like A Zebra

@eds-support-zebra-blog

Feel free to ask any questions about ehlers-danlos and remember to fight like a zebra. Xxx
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beccabastian
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flares-of-fibro

~ SPOONIE GIVEAWAY ~

In attempts to lesson the aches and sad days we have, I’m hosting this little giveaway bundle! I ask that if you do not count yourself as a spoonie (someone who indentifies as chronically ill) please don’t reblog.

1st Prize winner will receive:

- 24 Salonpas patches - pack of stickers (your choice between cute hedgehogs and cat/dog/bunny set) - 10ml of Lavender Oil - 21 gram bottle of Red Tiger Balm - small packet of lollies + the natural fruit bear - choice of 2 cooling pads (cat, panda, dog and monkey)

2nd Prize Winner will receive:

- 12 pack of Salonpas patches - 21 grams of Red Tiger Balm - the 2 remaining cooling pads (after placed in freezer great for joints, headaches) - stickers - packet of lollies

Please note:

- you do not have to be following me to enter - re-blogging is one entry, likes do not count - you will need to be okay with giving me your address - this is worldwide; will cover the postage to any continent - if you have an allergy I am happy to exchange the food items  to something you are allowed to eat - URL will be chosen at random

ENTRIES CLOSE September 12th ( UK time )

Winners will be told and announced soon after!

Thank you for a loving spoonie community & good luck!!

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reblogged
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studyswifts-blog

Giveaway time yay!

Alright lads, so recently I hit 7000 followers. That seems so crazy to me, I genuinely can’t believe there are that many people following my little nerd blog! So to say thank you to all you incredible people for being here, as well as to commemorate the upcoming back to school season, I thought I’d do a small giveaway for you guys :D

The rules

  • Must be following me, eatsleepstudysucceed
  • To enter, reblog the post and tag it as ‘giveaway’ (it’ll make it easier for me to keep track of who’s entered!)
  • You can reblog as many times as you like but please don’t spam your followers 
  • No giveaway blogs please
  • Must be 18+ or have parental permission to give out your address on the internet
  • Winner will be chosen by random number generator on August 21st

The prizes

The fun part! These are a few of my studying essentials, chosen for more utility rather than aesthetic, that hopefully you guys will also find useful. There is:

  • Staedtler Triplus fineliners
  • Papermate Injoy pens in black
  • Papermate mechanical pencils
  • Staedtler Textsurfer highlighters
  • Flash cards
  • Neon sticky notes
  • Neon and safari index markers
  • Lush lip balm and Charity Pot hand lotions (not so much study essentials as life essentials!)
  • The incredible Dodo Acad-Pad 2015/16 academic planner

I once again want to say a huge thank you to all of you for following me, supporting me, and generally being lovely in the time since I’ve had this blog. I really do appreciate and love every single of you <333

Last day to reblog this! It will finish at midnight UK time, and the winner will be announced tomorrow

#giveaway
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ehlersdanlossupport
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marauders4evr

So here’s my thought:

Every clothing store should have at least one mannequin in a wheelchair.

Here’s my reasoning:

  • Representation is important!
  • Clothes look different when you sit down? Especially on women? So people in wheelchairs and/or people who sit at desks all day and/or people who are going to a formal event where they’ll be sitting will have a better idea of what the clothes are going to look like.
  • In the event of a medical emergency, you’ll have a wheelchair on site.
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wheelchairproblems

i agree so hard wow

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eds-support-zebra-blog

Q

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chronically-kickass
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chronicallyinvisible

I think one of the hardest things about being chronically ill is that part of you wants to give into it but the other part wants to keep fighting it so you’re constantly at war with yourself trying to decide what’s reasonable and how far to push yourself. And then you have to work out whether your actions are a result of an educated decision about your health or whether you’re being too hard on yourself or not hard enough or whether you’ve just acted based on a pressure you feel to keep up with societal expectations. Chronic illness is just like this constant self-analysis that never results in a satisfying answer because more often than not, no matter what you do, you feel like you’ve made the wrong decision

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reblogged
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studyswifts-blog

Giveaway time yay!

Alright lads, so recently I hit 7000 followers. That seems so crazy to me, I genuinely can’t believe there are that many people following my little nerd blog! So to say thank you to all you incredible people for being here, as well as to commemorate the upcoming back to school season, I thought I’d do a small giveaway for you guys :D

The rules

  • Must be following me, eatsleepstudysucceed
  • To enter, reblog the post and tag it as ‘giveaway’ (it’ll make it easier for me to keep track of who’s entered!)
  • You can reblog as many times as you like but please don’t spam your followers 
  • No giveaway blogs please
  • Must be 18+ or have parental permission to give out your address on the internet
  • Winner will be chosen by random number generator on August 21st

The prizes

The fun part! These are a few of my studying essentials, chosen for more utility rather than aesthetic, that hopefully you guys will also find useful. There is:

  • Staedtler Triplus fineliners
  • Papermate Injoy pens in black
  • Papermate mechanical pencils
  • Staedtler Textsurfer highlighters
  • Flash cards
  • Neon sticky notes
  • Neon and safari index markers
  • Lush lip balm and Charity Pot hand lotions (not so much study essentials as life essentials!)
  • The incredible Dodo Acad-Pad 2015/16 academic planner

I once again want to say a huge thank you to all of you for following me, supporting me, and generally being lovely in the time since I’ve had this blog. I really do appreciate and love every single of you <333

#giveaway
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ehlersdanlossupport
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arthriticnerd

I think one of the worst parts of having a chronic disease is how it sometimes just breaks you.

You can have several bad days in a row and handle it fine; then one day you lose it because you’ve gone so long taking it that you eventually get to a point where you just can’t do it anymore.

You’ll try to open the dryer door and can’t.

You’ll be cold and won’t be able to get warm. The kind of cold where you can’t get warm so you want to put your blanket in the dryer for half hour but you can’t open the damn door.

You feel grateful for any help you have, but you wish you didn’t need it in the first place.

No one tells you when you get sick that you will have days that don’t just test your pain levels or your patience, they will literally test your very will to get through the day.

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blossomq

giveaway!!

since i hit 1k i decided to do my first giveaway!!!

winner will get:

・any kanken of ur choice from ilovemykanken.com

・any 5 lushcosmetics products of ur choice!!

・any colour + size polaroud camera from fujifilm!!

RULES ( ^ω^ )

・REBLOG this post!! likes don’t count

・multiple reblogs are fine!!

・follow this blog (blossomq)

・must have ask box open!! giveaway ends august 25th 2015

i ship worldwide!!

GOOD LUCK!

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reblogged
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blossomq

giveaway!!

since i hit 1k i decided to do my first giveaway!!!

winner will get:

・any kanken of ur choice from ilovemykanken.com

・any 5 lushcosmetics products of ur choice!!

・any colour + size polaroud camera from fujifilm!!

RULES ( ^ω^ )

・REBLOG this post!! likes don’t count

・multiple reblogs are fine!!

・follow this blog (blossomq)

・must have ask box open!! giveaway ends august 25th 2015

i ship worldwide!!

GOOD LUCK!

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My diagnosis. Part 1

Before I write this I would just like to say everybody has a different diagnostic process. This is due to the opinions and knowledge of both the doctors you are seeing and yourself, let me explain.

I can remember the day that my pain started, it was May 11th 2012. I woke up in excruciating pain and could hardly walk. My parents didn’t know what was happening so we called our family doctor who said that it was probably due to over-exertion. I have always been a sporty person and have a particular love for dance. The week before I had been on an intensive ballet course so we all agreed it was exhaustion and so I took some painkillers and hoped it would go away. It didn’t.

I missed a week of school due to my inability to walk without crying in pain. We went in to see our doctor at which point I was put down for numerous tests and X-rays.

They showed nothing, at this point I was frustrated, why couldn't they just tell me what was wrong with me and fix it. This continued for about a month, I would struggle to move but gave to go to school since nothing showed up as being wrong. We looked into family medical history and tried researching my symptoms but anything we found fell on deaf ears at the GP. A month and a day after the first appointment I ended up seeing a different doctor as the regular GP was on holiday. This doctor was more willing to listen and looked through my medical history with me and my mum. A couple of weeks before the pain had started I had suffered with a bad chest infection so it was decided that I had something called reactive arthritis. This is an auto-immune condition where the body basically decides that the infection hasn't gone so attacks itself. This did explain my pain so I was put on medication to reduce it and was told not to go to school so that I could start to get better. * part 2 will be coming up in the next few days, along with tips on getting doctors to actually listen. *

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flimsywrists-deactivated2017070

I need to follow every active chronic illness blog on this site, so get reblogging.

I have followed everyone who has reblogged this and I am still unsatisfied. I need more! More, I say!

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A little about EDS

“Ehlers-Danlos syndrome (EDS) is a collection of inherited conditions that fit into a larger group, known as heritable disorders of connective tissue.”- quoted from the NHS website.

Connective tissues provide support in skin, tendons, ligaments, blood vessels, internal organs and bones, so the condition affects the entire body. There are different types of EDS that have different symptoms but mainly share the following: joint hypermobility – increased range of movement of joints (often diagnosed using the Brighton scale) stretchy skin fragile skin tissue - bruises easily

Ehlers-Danlos is a genetic condition,however it may not always be obvious due to varying degrees of severity that occur.

The condition is chronic and currently there is no cure only various ways of managing with the numerous symptoms (of which I will make a post about). It is a disabling condition, however little is known about it and raising awareness is challenging. Many people with the condition take five years or longer to reach the diagnosis and little is known about the condition by doctors so getting help is hard.

Despite this awareness is on the rise and to help with this some posts that I will be doing in the future include: -symptoms of EDS -how to cope at school -dealing with stigma -talking people about your condition -ways friends/family can help you

If you or someone you know has EDS or you just want a chat feel free to message me. :)

#ehlers danlos syndrome#ehlersdanloslife#ehlers-danlos syndrome#ehlersdanlosawareness#chronic illness#medical#joints#hypermobility#advice#support