Diapers & CRPS & Autism

i think the general public is a little confused ab stimming tbh bc they think of it as a specific set of actions instead of like. an emotional process. like an allistic person and i could do the exact same gesture and only one of us would b stimming bc. allistic don't feel the surge of . like pleasure? release of tension? that comes with stimming. like you know what i mean. w/ me, especially as a child, a big stim of mine was jumping up and down. and i would do it for literally hours. thump thump thump oh that's just my kid she's upstairs jumping. and any time i would be reading a book or watching a tv show and a "good part" came on, or a part with a lot of tension, or a big reveal, i would feel overwhelmingly compelled to jump up and down and make noises and weird faces to "get the excitement out"

and like the only reason i'm not like that now and i make less weird faces and grunting noises and big movements is bc i got it shamed out of me and now i'm so used to masking it's hard for me to stim in the comfort of my own apartment without feeling like i'm being watched. but i still stim in other ways and i think what's often overlooked is stimming has a pretty intense emotional/mental component to it.

I stim a lot by rubbing my hands on different textures. I have a waffle knit towel that I rub most of the time when I’m relaxing in my chair or rubbing the fur of my dog.

disabled people deserve more than the bare minimum to live tbh. and i don't mean in the "oh we have extra costs that makes being disabled more expensive" - which is true, but i'm counting those in the budget to live. disabled people also deserve enough money to buy treats, nice clothes, fund their hobbies, take a trip away, and so on. being disabled shouldn't force you into a life of frugality and poverty

Being able to do these things has proven to help mental health! So why can’t people on disability be afforded good mental health that doesn’t always come from a therapist and a pill bottle?

I think the biggest misconception abled people have about disabled people's pain is that it feels like normal pain everyone has felt before, and that you can get used to it and grow a tolerance like normal pain.

ITS NOT LIKE THAT

Here's an example, when I was 12 I got a daith piercing in my ear, It was the worst pain I had ever felt. I felt like someone was trying to crush my skull.

Then I became disabled, And that became the worst pain I ever felt. My joints felt like they were literally on fire almost constantly for over 3 years. It NEVER felt less painful.

Last year I had to get my daith repierced, it felt like a tiny pinch.

The constant chronic pain I feel has increased my tolerance for normal pain, but you cannot increase tolerance for chronic pain. It is always excruciating at worst, very uncomfortable at best, the pain never hurts less. You just learn how to accept it and strengthen your mind enough to think past the pain. YOU CANNOT GET USED TO CHRONIC PAIN. That's why we can't "push through it", or "toughen up". It's not normal pain, your brain is literally confused and forces you to feel pain because it thinks you're extremely injured.

Imagine burning your arm on something reeaaally hot, now imagine the burning sensation you feel is inside your muscles and joints and not on the surface on your skin, now imagine feeling that 24/7 and you can't get rid of it. That's what I'm dealing with man. Do you abled people get it now??

I got that diaper boy 💰💰💰💰💰💰💰💰💰💰💰💰💰💰.

Who wants to make me wear thick thick plastic disposable diapers until this Money is gone without any of my clothes on?

Dead ass thought this was one of those good luck chain posts you always see on tumblr but ABDL themed…and fuck it now it is.

You’ve been visited by the pamper of plenty. Reblog this post to recieve great financial news within 48 hours. 😂

Most definitely

Really great info

Will you take the blessing or reject it?!!!

Which is the wiser decision?

Can’t not reblog this !! Lol

Could use money but this would save me a lot

May you be blessed with many dipey, giggles

I can’t wait for my stash to get even bigger

Note: Sound sensitivity isn't exclusive to autism, but is incredibly common in autistic people. It's also one of the difficulties that people often cannot understand and grossly underestimate if they do not experience it themselves. I'll repost this soon with visual descriptions (I'm currently sick with COVID-19). If you find anything I post helpful, please consider buying me a Ko-Fi.

gGod yes

Source 

These dudes are fucking legit.  They don’t just show up one day in court, either, they actually make friends with the kids and let them know they have a support system and that there are people in the world who care about them and will always have their back.  And less important, but also cool, is that the few times a couple of them have come into my cafe, they’ve been super friendly and polite and when I told one of the guys that I noticed his Bikers Against Child Abuse patch and wanted him to know how awesome I thought he was because of it, he got kind of shy and blushed and said, “The kids are the awesome ones, we just let them know they’re allowed to be brave.”

The source is long, but so, so good. These men and women are available in 36 states, 24 hours a day to stand guard at home, in court, at school, even if the child has a nightmare. Many of them are survivors of childhood abuse as well, and know what it’s like to feel scared and alone.

Actual tears.. hnngh

Show me more of people like this, world. I give up on humans too easily.

where do i sign up for this,i want to be in this gang

This is fucking amazing. It may be out of character for me to say this but rock on

Bikers Against Child Abuse was founded in 1995 by a Native American child psychologist whose ride name is Chief, when he came across a young boy who had been subjected to extreme abuse and was too afraid to leave his house. He called the boy to reach out to him, but the only thing that seemed to interest the child was Chief’s bike. Soon, some 20 bikers went to the boy’s neighborhood and were able to draw him out of his house for the first time in weeks.

Chief’s thesis was that a child who has been abused by an adult can benefit psychologically from the presence of even more intimidating adults that they know are on their side. “When we tell a child they don’t have to be afraid, they believe us,” Arizona biker Pipes told azcentral.com. “When we tell them we will be there for them, they believe us.” ( Article)

More about BACA, from their site

My parents are a part of this organization and they are metal af

They go on runs to protect the child if they feel even the slightest threatened no matter where. If the child needs them to go on vacation with them, they do. Bikers come from across the nation to watch over and take shifts for these kids. And the best part is once you’re adopted into this family as a BACA kid, you’re always one. Even when you’re 40 and the perp gets released from jail, they’ll come meet with you and find your best options for avoiding the person and maintaining the life you’ve built for yourself. Once a BACA child, always a BACA child. In Florida, there’s 100% rate for identifying the perp based on the child’s testimony. Why? Because BACA stands with the child and supports the child so they feel comfortable enough to point out their attacker.

What’s better than a badass biker gang being on your side???

NATIVE AMERICAN CHILD PSYCHOLOGIST WHO IS A BIKER AND NAMED HIMSELF CHIEF HELL YES I’M HERE FOR THAT AND BIKERS BEING BAD ASS TO PROTECT KIDS. HELL YEAH.

it’s back! I will always reblog BACA

Damn good people.

I know they wouldn’t consider themselves such, but these people are freaking heroes and the world is a better place because of them. 

Hey folks, it talks about this in the article but its not mentioned in this post, BACA is a 501 © (3) charity that depends in part on donations to help pay for stuff like gas for their bikes. If you want to help, consider donating. 

@copperbadge You like posting about heroes, Sam. Seems like this would be up your alley.

I love these folks! I’ve reblogged them before but it’s wonderful to see the donation information has been added. 

Always reblog. Keep doing what you’re doing y'all.

Guys? This post changed my life. I saw this post. Forever ago. And thought it was only in america… and wished desperately that they could help me. But then I saw it again, during a bad episode, and checked their site. They aren’t just in the USA

They’re in Canada as well and probably other countries. I met and talked with a native guy who runs the place near me. His name is Shaman. I got in, and I’m considered a BACA child now. Despite being 17, turning 18 when I talked to them. They spent time with me when my abuser was over, they gave me therapy resources. They give you something called a ‘level 1′ where they go to your house with as many bikers as they can, i shit you not a solid 20-40 bikers came from even out of province, and met me. I got to choose my biker name and I got a vest with patches on it and my name on it. They all hugged a Teddybear before giving it to me, and told me if I ever felt the BACA bear was running out of love, to give them a call and they’d refill it for me, and then I got a ride on one of their bikes. Just a day or so ago I went to an annual party with them and they we ate food one of them cooked and had a lot of laughs. 

I’ve never felt as loved as I did being a part of the BACA family. They also gave me dog tags with the names, and phone numbers of my 2 workers.  So I can call them whenever I feel scared. 

BACA is an absolutely wonderful group that will do everything in it’s power to help any child whos been abused. 

And it doesn’t end when you’re 18 either. As long as you get in contact/get your level 1 before you’re 18? you’re ALWAYS a BACA kid. I’m 18 now and they still invite me to parties, ask me if I’m okay, and are there for me. They’re still trying to find me resources for therapy. 

BACA has changed my fucking life. 

I hope you all can read this, and reblog it knowing from someone who fucking been with them, that they are absolutely amazing. 

If I ever don’t reblog this, it’s because I am physically being restrained against my will.

Supporting your local hero’s.

💞🖤💞 Carpe Diem 💞🖤💞

Links the International BACA Chapters:

United States

Canada

Australia

Belgium

Denmark

Germany

Spain

France

Italy

Netherlands

Iceland

Austria

Greece

New Zealand

Portugal

Sweden

United Kingdom

Switzerland

B.A.C.A’s Byline: “Keepers of the Children.” B.A.C.A.’s Motto: “No child deserves to live in fear.”

Not all heroes wear capes, some wear biker vests.

Had seen this before, but never realised that this is on an international level - there’s even a contact address close to where I live (in Germany), very cool (though hoping the only use I’ll ever have to make of it is for donations) ❤

— Unknown

Why not make this because I'm just a filthy commie.

My thoughts on Disability (getting paid because you can't hold down a job due to your disability).

Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI)

Before the capitalists (derogatory) come in my comments "You're just mad because you're too dumb to work so you want free shit." (Because they always do when I post a commie take).

I am disabled, and I have a full time job that pays me quite well (and is very accommodating to my disability). I just don't think people whose disability are more limiting than mine should suffer. Especially because every single disabled person knows that stress exacerbates symptoms.

Like the stress of being forced to live off what is the equivalent $2/hr for full time work, being forced to find a living space that covers that, and trying to find food you're allowed to eat on supplemented income with dietary restrictions (because most disabled people have to eat what most people consider "unhealthy" to manage our disability).

Before capitalists (derogatory) say "Your disability doesn't make you eat unhealthy food". You just want an excuse to eat junk food. People with cystic fibrosis often require calorie counts similar to Olympic athletes because they can't digest food right. People with POTS often require ridiculous sodium intakes to help manage the symptoms of low blood pressure. And people with migraines often need high carb "junk foods" to help manage the low blood flow that comes with a migraine flare-up.

The disabled body is fucking WEIRD and what's healthy to most people isn't necessarily healthy to us, and we've found our ridiculous ways of eating through trial and error to find out what best helps us function. If you don't live in our body, you can't tell us what's good for us.

-fae

I'm too disabled to work and I receive disability at just over $600 and a pittance from SSI puts it about $700 a month. I receive EBT at about $130 a month. The only reason I can make it work is I can live with my parents and pay only $100 towards the cable/internet bill.

Not only do they cover housing, utilities, and food, but will help me out when I'm short money. And then of course my parents are stoners and pot helps my condition so my mom gives me pot every day.

The other thing I have going for me is excellent health insurance because my state is good like that.

I'm really comfortable in my situation, but it's only because my parents support me. If they died tomorrow I'm not sure what I would do, I would have a year in the house to figure out. Hopefully they live long and in 20 years I have an assisted living situation sorted out, but it's something I've started looking into now.

This is the problem with having parents take on the brunt of supporting disabled people, they will pass and then what? But if the state had better systems like OP described, I wouldn't be one (god forbid) car accident away from homelessness.

And the thing is all of this could easily be paid for if we taxed the rich and corporations appropriately.

When determining the amount for cost of living, SSI or SSSDI, should allow for a modest rental or house payment. Currently Most people that are on SSI or SSDI can only afford section 8 housing and most of those are not in safe neighbourhoods or accessible dwellings.

I am all for taxing the rich and big business so that they pay their fair share of taxes.

But here is an idea I just had this morning, what if big business or rich people were given a tax break for properly sponsoring a disabled person? Safe and accessible shelter, food, transportation, a fair income for the extras and the opportunity for at least small modest vacations.

That is something that being on disability does not allow for a vacation. It’s proven that everyone needs a break from work, that’s why some countries vacations from work are mandatory. A disabled persons job is daily survival, we tend to see the same things day after day and get depressed. A chance to get away from home for a few days makes for a vast improvement in ones mental health.

I dislike this idea.

I have a hard enough time getting the insurance that I paid for to cover my medication.

I do not need some multi-billion dollar company harassing me about every cent spent, asking why I couldn't take the cheaper options, and in general trying to meddle in my health issues because they think they're entitled to my health information because they're essentially covering my very expensive medication for free.

-fae

There would definitely have to be some parameters put in place to prevent them from controlling your decisions. This was just an off the cuff thought and definitely not fully thought out.

uhmm fun fact. u can just use a mobility aid. if u think itll help you go ahead. it doesnt really matter the reason whether it be temporary or permanent whether it be like an injury or chronic pain or LIKE ANYTHING!!. if u think a mobility aid will help you please get one if you can!! its so worth it :3 ur not weak or anything and also mobility aids are there for u to use soo uhmm use them !!

Canes, crutches and wheelchairs don’t need a prescription for their purchase.