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There is no way to win with ableists

  • can't do work due to mental disability: You're lazy and you don't try hard enough, and you're selfish!
  • can now/still do work with mental disability: You don't really have a disability!

What (and what not) to say to someone with disabilities

ldsliving.com

Great article by a mother of 2 disabled children. Here’s the handy summary from the end of the article.

Do

Say hello, smile
Be friendly
Treat disabled people like everyone else
Act naturally
Make eye contact
Be genuine
Ask appropriate questions
Teach your children how to ask appropriate questions
Include the disabled

Don’t

Point
Stare
Laugh
Ask what is “wrong”
Ignore
Avoid
Whisper
Label people with disabilities as “special”
Say you understand
Joke about the disability

Schizophrenia, Poverty, and Higher Education | "In Sight, Out of Mind" | Open Letter from an Anonymous Harvard Student

thecrimson.com

You do not become schizophrenic overnight. When I began to hear voices, I told myself that it was some peculiar coping mechanism that was benign and would soon go away. Around the same time I had been in an accident, was dealing with a family crisis, and as a corollary was off-and-on homeless for a few weeks. Such occurrences would make anyone momentarily mad, right? This is what I told the social worker the first time I went to Harvard University Health Services. I was depressed: These were odd shock symptoms that would heal and fade away like bruises. We never talked about the voices. It was a topic that terrified me, and she was no more eager to ask me about them. She encouraged me to drink chamomile tea and to practice breathing exercises to cope with stress.

I knew I needed more help than tea, but as a poor, financially independent student from a poor family, my options were limited. I was lucky to enroll in a research study that gave me psychotherapy in exchange for serving as guinea pig for new social workers. By October 2012, I was seeing a therapist at least three times a week and sleeping the rest of the time to hide from the voices, which were getting worse and handicapping my ability to listen to my own stream of consciousness. Have you ever tried writing a paper when roommates are having a loud conversation? Now imagine they are screaming at you. This is how I feel every day. I experienced other symptoms I did not expect, such as forgetting words, and instead of my once photographic memory, I often cannot remember in the evening what I did in the morning.

December came, and with it, exams and final papers. I had to pull endless all-nighters to complete the work I had missed, and forsaking sleep meant that I was abandoning the only effective refuge I had from my screaming demons. I survived by the compassion of my roommates, who made sure I was eating and would hold and soothe me when things became unbearable. After exams, I was supposed to start antipsychotics. I was surprised to find out that my insurance company would not cover the drug, which cost $850 a month. I successfully petitioned to have the drug partially covered by insurance; still, $650 a month.

Even on full financial aid, I work two jobs to pay for my education, and there is no money to spare. I wrote to my financial aid officer, and he still has not responded. I made an appointment with the patient advocate, but because I am not on Harvard’s student insurance plan, nothing could be done. My resident dean could apply for a special fund, but only after my financial aid officer officially refuses my petition.

Two months have passed. What can I do? My resident dean, academic advisor, and psychiatrist strongly encourage me to take the semester off. I want to, but my family situation makes living at home a non-option. Where else can I go? I am too sick regularly to be in class; how can I hold a job? I decided to stay as I fight for treatment. Harvard may not be willing to pay for treatment, but at least as a student I hope that they are too afraid of bad publicity to let me die should I need hospitalization. At least here I have food and housing through financial aid. As a student on leave, I would have no such reluctant advocate. I am lucky to have enrolled in a trial that pays for a month’s treatment, but I have no idea from where the money will come next month. I just know that I would not have survived the last month without treatment.

What they never tell you about schizophrenia is that you never really believe it, internalize it, identify with it. Mornings are agonizing because every day in the haze of waking up I briefly remember all over again who I am and what I have lost. I remember the friends that I am terrified will see me differently if I tell them; I remember that on my bad days I scare people in class and on the subway; I remember that the academic career for which I had worked is now improbable. I remember that the measure of success for too many of my days will be that I have not killed myself.

So Harvard, friends, peers, anyone who might be reading this: I am asking you to advocate for me and the other statistically 70 or so studentshere who are struggling with schizophrenia or other acute illnesses. The average age of onset for schizophrenia is 18 for men and 25 for women, meaning that it often occurs during college.Most of you who are reading this assume that Harvard provides some end-of-the-line safety net for poor students in such calamitous circumstances and that Harvard would never let a student fail, drop out, or not receive medical care for lack of money. I write to assure you that there is no end in sight to the falling. I can apply for $5,000 to study bat droppings over the summer, but there is no application to pay for the treatment that enables me to function. Dear Harvard College Research Program, will you finance an application for me to study the effect of treatment on the schizophrenic brain? I know just the test subject.

Scientists have not yet decoded the medical and psychiatric workings of schizophrenia, but there are a few obvious reforms Harvard could implement that would allow students like me to have the support and treatment we need to succeed and survive. These policy changes need to be implemented transparently: Currently, most leave of absence and mental health policy is nebulous, unofficial, unpublished, and only policy-as-practiced through the decisions of the Administrative Board.

First, Harvard should guarantee that anyone who seeks treatment be able to see a therapist within a week, and if desired, to see a therapist on a weekly basis. Currently wait times can be as long as a month, and anecdotal evidence from friends and a conversation with a Harvard therapist suggest that they are pressured to cap the number of appointments covered by Harvard insurance. While Harvard has taken steps forward in covering up to 24 visits to outside providers, Harvard can continue this progress by hiring enough therapists at HUHS to meet student need and covering as many outside visits as are recommended by the therapist.

Second, Harvard should abolish the present oft-coerced leave of absence imposed on students who admit themselves to the infirmary. Students who decide to go on leave are often unaware that in order to return, they must prove that they have held a job or internship and that they have been seeking treatment. The burden of this policy falls brutally on students from poor backgrounds, students lacking robust health insurance, and students with unstable family situations. Ironically, these are the very students who are more likely to have experienced trauma.

This policy typifies the hostility with which mental illness is treated by the Harvard administration. The administration is pursuing what can—despite the University’s belief to the contrary—only be described as punitive courses of action that do not take into consideration the wellbeing of students. If your financial situation is such that Harvard is your only hope for treatment, your options are to seek immediate help and forego longer-term treatment or to try to fight through the darkest nights in hopes that maybe things will get better. I have lost too many friends at Harvard who did not survive that fight. An alternative option would be to implement a program for students on financial aid: Give us housing, allow us to stay with the therapists who know us best, and finance the program through a combination of grants, subsidized loans, and a work program.

Third, the administration should guarantee reasonable turnaround times for decisions from the Financial Aid Office in emergency situations, institute a reasonable cap on health spending in a given year, and provide grants for any additional amount for students on financial aid. Need-blind financial aid allows me to attend Harvard regardless of my financial situation; it should also allow me to stay regardless of a treatable medical condition.

In a recent letter, Dean of the College Evelynn M. Hammonds encouraged students to “not suffer in silence. We are here to support you.” I was not silent: I sought and was refused help. I am asking you to join me in a loud appeal to the administration for quality mental health support. If there really is such a thing as a Harvard community, then our shared resources should be allocated according to our values. If Harvard is willing to cut hot breakfast to restructure its budget, then surely mental health is important enough for us to demand adequate resources and to implement serious and necessary reforms.

This is not crazy talk, but I am mad. We can do better.

—The writer can be reached at wecandobetterharvard@gmail.com.

“It's all in your head!”

—It’s a very common ableist remark, but I never understood it because it is a plain statement of fact. Yes, of course it is in my head. That’s exactly what “mental disability” means, and if you’re into Descartes then literally everything is in my head. How exactly does that prove my problem isn’t real?

i think my brother is schizophrenic. or something like that. coz he fully snaps in two seconds. My mum said something  to him and he fully got so angry and made the biggest deal of it and she ws just saying something.

and just then i asked him why he made a noise, not angry, genuinely interested and he snapped at me and got so angry saying he didn’t do it even though i saw his mouth move and the noise came out.

he’s so messed up.

Government assistance needs to be regulated a lot better. Shouldn’t be able to buy cigs with your welfare check, lady. Shouldn’t be on disability for a bad back and then be on a bowling team, dude. Don’t think you should be able to buy red bull with your foodstamp card Mr. College Student. 

I will not be a martyr.

I will not be a victim to what I have suffered with. 

I will not bow down to it, and excuse myself.

I will overcome because I know that inside I am strong - To resign yourself to fate, and become the mental illness or condition that you have is to fail. To learn how to deal with it, and to learn how to fulfil your potential no matter what is to be a success and that is what I choose to be. 

I will no longer hide. I hope that this inspires more people to come out of hiding, and learn to live with who they are instead of defining themselves by whatever mental condition they may have.

You are not mental - you are unique.

Violence and mental illness: an overview | Journal of the World Psychiatric Association

ncbi.nlm.nih.gov

Good corrective so that people suffering mental illnesses and/or disabilities not be stigmatized further in the wake of this tragedy …

The unfortunate fact is that mass violence in contemporary capitalism is not a product of mental or social deviation, but rather an unfortunate outcome of the reality of a system itself based on greed, violence, alienation, and disregard for human life … 

“Several general conclusions are supported by this brief overview. First, mental disorders are neither necessary, nor sufficient causes of violence. The major determinants of violence continue to be socio-demographic and socio-economic factors such as being young, male, and of lower socio-economic status.

“Second, members of the public undoubtedly exaggerate both the strength of the relationship between major mental disorders and violence, as well as their own personal risk from the severely mentally ill. It is far more likely that people with a serious mental illness will be the victim of violence.”

===

This paper evaluates the relationship of mental illness and violence by asking three questions: Are the mentally ill violent? Are the mentally ill at increased risk of violence? Are the public at risk? Mental disorders are neither necessary nor sufficient causes of violence. Major determinants of violence continue to be socio-demographic and economic factors. Substance abuse is a major determinant of violence and this is true whether it occurs in the context of a concurrent mental illness or not. Therefore, early identification and treatment of substance abuse problems, and greater attention to the diagnosis and management of concurrent substance abuse disorders among seriously mentally ill, may be potential violence prevention strategies. Members of the public exaggerate both the strength of the association between mental illness and violence and their own personal risk. Finally, too little is known about the social contextual determinants of violence, but research supports the view the mentally ill are more often victims than perpetrators of violence.

“There are so many of us out here who feel the world with thin skin and heavy hearts, who get called crazy because we’re too full of fire and pain, who know that other worlds exist and aren’t comfortable in this version of reality…We feel things stronger than the other people around us, a lot of us have visions about how things could be different, why they need to be different, and it’s painful to keep them silent. Sometimes we get called sick and sometimes we get called sacred, but no matter how they name us we are a vital part of making this planet whole.”

—The Icarus Project, “Friends Make the Best Medicine” zine

Foreword

It is with a sense of great privlege that the members of the Committee submit this Plan for Pennhurst.

This planned Community will be unique in that it will closely duplicate the conditions and life styles of the type of community familiar to most citizens.  The Community will have a series of built-in assurances and opportunities for citizens with retarded behavior such as; being able to reside, live and work in an atmosphere of total acceptance and freedom and opportunity to develop their best potentials.  The Plan represents a bold venture resulting in the abolishment of the institutional concept and its replacement by the community living concept.  Citizens with retarded behavior will no longer have to be members of a captive populace in warehousing settings but will have every advantage community environment can offer.  There will be no structural, social or psychological boundaries between this Community and the surrounding communities.  This concept will thus encourage a healthy interflow between the two populaces.

Specifically, the Plan calls for a new Pennhurst Community comprising 3 residential communities which shall form the newly developed Community complex on 700 acres presently partially occupied by Pennhurst State School and Hospital at Spring City, PA.  Each residential community shall comprise 50 individual home structures, designed to safely and comfortably house 10 citizens with retarded behavior.  Thus, the total Community complex will be composed of 150 such structures, house a total of 1500 citizens with retarded behavior.

This new venture will abolish the old Pennhurst.  Every person in a brand new bed, in a brand new home.  The planned Community, backed by scientific, humanitarian and aesthetic support, will be the only one of its kind in the Western Hemisphere.

The Plan reflects the position taken by the Committee following its perusal of source  material, investigation and deliberations relative to the topical matter.  The attitude of the Committee toward its task has been most positive, with an understanding of needs and a firm belief in the dividends that realistic application of the Plan will pay, not only to the citizens with retarded behavior, but to all citizens.  The committee trusts that prompt and adequate implementation will be forthcoming.

Implementation MUST begin NOW

I frequent a petsite known as Subeta (link). There’s adoptable pets, human avatars, there’s always (ALWAYS) an event going on. It’s typically a pretty entertaining and accepting website.

Sadly, today I went online, eager to do quests and earn some points to make up my HA’s version of my Halloween costume, to look at the news. New items, cool! Goldie, a version of Goldilocks, a doll! And three bears! Why, I wonder what the bears.. say…oh.

There’s Goggi, a bear with goggle markings around its face, funny! Sunni, a bear with a crescent marking on its chest. And what’s this plain bear that looks rumpled…”Tardy”. I couldn’t really believe it at first. Every item has an item description. This item’s description is as follows-

The tardies are pretty slow but when they finally get to you you’ll be rewarded with the snuggliest of hugs!

If you don’t believe me, go to that link up there, look at the first news post. I could barely believe it and it was staring right at me.

Like most websites, Subeta has a reporting page for bugs and the like. So I traipsed on over and filled out a very long ticket outlining my concerns (which will be attached verbatim below).

I am hoping for a reply soon, but we shall see. Ideally, I want the item renamed and redescribed. It stinks of ableism. Absolutely reeks of it.

Read More

Laughing Too Loud Lands Man With Special Needs In Court - Disability Scoop

disabilityscoop.com

A New York man learned to laugh as a way to cope with his neighbor’s taunts about his disability, but now his comic relief has him in legal trouble.

Robert Schiavelli, 42, has neurological impairments and often experiences seizures. His mother says that their next-door neighbor has long tormented Schiavelli about his disability, frequently calling him “a retard.” Over the years, Schiavelli learned to laugh off the ridicule.

But now Schiavelli is facing two summonses for “disturbing the peace” after his neighbor called in police alleging that the man’s laughter was too loud. Each ticket could mean a $250 fine or 15 days behind bars.

“I didn’t know it was a crime to laugh out a window,” the New York Post reports Schiavelli said at an arraignment this week in the case. “What else are you supposed to do when someone calls you a retard?” To read more click here.

So...

Work was nuts. A disabled girl (in her twenties, but with a mentality of a young child) “assaulted” a child in a stroller. The girl is a child of Vanelli’s manager, Ken. The police came to take her away and brought her down to security office. If two of the people from Vanelli’s that were working today, they cops would’ve taken her away. Ken came to get her, and told them that he would bring them to the hospital. She may even be banned from the mall altogether? Wow.

I can never gauge how my day is going to be at Intercity when I’m working. Christmas season is fucking mental.

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