Follow posts tagged #lyme, #chronic illness, and #bartonella in seconds.Sign up
This isn’t a typical post from us but it’s probably one of the most important. Usually, we post about LGBT equality, same sex marriage, and acceptance. However, this post is about something so personal and close to home and we hope that all of you amazing individuals can help. Lucy’s mother suffers from Chronic Lyme disease. She went undiagnosed for years, has taken years worth of antibiotics, and has seen numerous doctors who told her she was “faking it”, that chronic Lyme didn’t exist, or misdiagnosed her with other conditions. Lyme was first diagnosed in the US when a cluster of children began showing strange symptoms, such as premature arthritis. After confirming that Lyme disease, caused by a bacteria called Borrelia Burgdorferi, does exist, the national review board stated it could be completely cured with three weeks of simple antibiotics. When tick-borne disease specialists began diagnosing and treating individuals with Chronic Lyme, their licenses were suspended and they had to appear before a judge to determine if they could serve jail time for going against “recommended treatment options”. Thousands of people have gone into remission with Chronic Lyme, after months of IV antibiotics but many countries, the United States and England included, have failed to recognize the seriousness of the disease. Many people from other countries have to fly to the United States to see specialists who risk their license to be treated. However, Chronic Lyme treatment isn’t covered by health insurance companies so the cost for treatment can reach the tens of thousands of dollars. On May 10, 2013, there will be a worldwide Chronic Lyme protest. We will be tweeting about it to bring awareness to the issue. All we ask of you is that you retweet us to spread the word and show your support. Thank you for reading this and for all your lovely support. This would mean the world to both of us.
I finally have an appointment — for Monday morning — to see a doctor about officially diagnosing me with Lyme Disease. I am absolutely certain it is the root of all of my health problems, because I have exhibited SOOO many of the symptoms ( http://autoimmunityresearch.org/lyme-disease/ Ctrl + F “List of Lyme Disease Symptoms”), it’s not even funny. (In fact, I just counted: 44 of the symptoms. The static shock is one of them, oddly enough…) If I were a betting woman, I would put my life on it.
I am terrified. I have seen doctors so many times with my hopes/certainties almost as high with negative results that I am scared to the point of tears of this appointment. I don’t know how/if I will be able to handle it if this isn’t it. Just thinking about it, I just want to bawl like a toddler (my fluctuating menstrual hormones certainly aren’t helping anything, either). And I really don’t feel like I have anyone I can turn to about this right now.
Feeling like a crybaby
Tonight I attended the fourth (out of five, total) Christmas concert my college puts on every year — I am in it — and I kept thinking about my upcoming appointment on Monday. I just don’t know how/if I will be able to pull myself together to go to class (immediately after the appointment — in fact, I maybe late) if the doctor says no. The thought is just killing me inside. Words can’t describe how it feels to receive news like that when your hopes are so high time and time again. I can only, perhaps, compare it to a woman wanting to have children but having miscarriage after miscarriage after miscarriage.
And, thanks to lady-hormones (you know what I’m referring to) and the stress, I just kept crying. Before the show, after the first three songs, after my choir’s first song (cried during the two songs before it — my biggest meltdown since I was offstage), and just before the second-to-last piece.
What makes everything that much worse is the fact that, at all my other doctor appointments, I am usually accompanied by my mom. At this appointment, however, I won’t be. I will be completely alone. So, if I have a breakdown, not only will I have to pull myself together enough to attend class but also not have any emotional support whatsoever.
GOD I feel like such a whine-bag…