okay, i don’t want to get my hopes up, but it looks like i may be getting an appointment with Doctor God (as we call him) - aka the number one rheumatologist in the country. he has a fascination with family groupings of auto-immune diseases, and he wants to see me, my mum, and my nan together - this also means my last chance at a definitive diagnosis.
here’s the thing: he’s in South Australia. i am not.
the appointment would be for August, and with any luck my mum can get down here and she and i can get over to SA together and meet up with my Nan to go see him. but the problem is, all of this hinges on being able to afford it. and right now, i can’t.
so i’m just putting this out there, for anybody who may be interested: if you have any RedBubble item - iPhone case, iPad case, t-shirt, hoodie, you name it, that you would like to own that doesn’t exist, i am happy to design it privately for you to buy. if there are any designs i’ve made for one item that you’d like to see on another kind of item available on RB, let me know! if you have any suggestions for items or ideas that you think you’d like to see or might sell well, i would love to hear them. if you’ve ever wanted something from my RedBubble store, now would be the most wonderful time to buy it.
i don’t want any charity, i want to offer products that people will enjoy to raise this money. and i am endlessly grateful to those who have already purchased from the store - it goes a long way. thank you.
Sign to make IBD an official disability
I try to stay out of the politics, but this is something very, very near and dear to our hearts. It’s about time they start treating this disease with the respect it deserves.
Force change in the Social Security Disability standards and process for those suffering from Inflammatory Bowel Disease
If you want to sign, first create an account and then press “Sign This Petition”.
https://petitions.whitehouse.gov/petition/force-change-social-security-disability-standards-and-process-those-suffering-inflammatory-bowel/TjR2Gh64
There are more people with Lupus out there than I thought.
I don’t know anyone around me that has Lupus, besides myself. I felt so alone, until I searched the tag “Lupus” and I found all of these blogs. I hate that you all are going through the same thing I am, but it’s nice not to feel alone, and see that there are people who truly understand what I’m/we’re going through…
I got diagnosed when I was about 15 years old, I’m 20 now. I am actually currently in a flare up. It sucks not being able to get out of bed in the morning. It takes me about an hour to make myself go through the pain of getting out of bed JUST to go to the bathroom, get a drink, eat, anything.
I can’t keep a job because once I start all the activity trying to keep up with everyone else… but I have a flare up and I have to miss too much work. So I get fired. I don’t know what to do.
