swyers

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homedog Swy’s part from Old Dominion. Check out the interview with him here and order the video here. 

Emily B. - On the Use of Categories

Emily B. is our newest Inter/Act member. Emily has the intersex/DSD condition known as Swyer Syndrome. Read her wonderful insights on her child-self and into the people around her.

This is an especially timely blog post as Facebook just recently broadened their gender categories allowing the choice of intersex. Fox “News” responded by lashing out and making light of intersex people saying, “Intersex—whatever that is”.

Inter/Act exists to give our young people a platform to amplify their voices. We don’t let the media define who we are or our experiences. We are taking the mic back and inserting our own perspective into a national discourse that doesn’t only misrepresent and not understand who we are— but one that sometimes treats our lives with undeserved disrespect. 

I have a lot of experience telling people about my condition.  I’ve always thought that it was kind of cool—something that made me special and unique.  My parents told me to keep it a secret, but that only made it more clandestine and significant when I’d jump on a lull in the conversation at a sleepover or at summer camp and say, “I’ve got something I want to say, but you guys can’t tell anyone else.”  I was a quiet kid (at least around new people) but also desperate to speak and be heard, so holding everyone’s attention the way I did when I told them I had Swyer Syndrome felt like having a superpower.

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Swyers has a new quick clip up of our homie Pat Lowry's backyard skatepark paradise. Another reason I love living in Richmond, we have really awesome people like Pat that do projects like this. He's about halfway through covering his entire backyard in concrete. 

Inter/Act member Emily B. teamed up with our coordinator Pidgeon on August 8th to lead a workshop & presentation on advocacy, collaboration & improving care with the clinical team over at Lurie Children’s Gender & Sex Development Program. We’d like to thank Lurie’s team for the wonderful opportunity and look forward to working together again soon. The following is Emily’s recap of the significant presentation.

For me, August 8th was a day of important firsts.

I was invited by Inter/Act to spend an hour talking about youth intersex advocacy and improving care with doctors in the DSD team at Lurie Children’s Hospital.  That day was my first time meeting another intersex person—Pidgeon Pagonis, the youth coordinator of Inter/Act—face-to-face.  It was also my first time on the other side of DSD (Difference of Sex Development) care, as an advocate sharing my experiences with this DSD (DSD is how clinicians usually refer to intersex) team.

After a morning of location mix-ups and delays, it seemed like the meeting might not happen.  Just as I’d begun to lose hope, the doctors arrived smiling, introducing themselves, and settling in to listen to our presentation.  They listened carefully to our thoughts, particularly intrigued by our brochures on “What We Wish Our Doctors Knew” and “What We Wish Our Parents Knew”.  Pidgeon really impressed them with their thorough knowledge of current intersex advocacy efforts. While we didn’t always agree on everything, the doctors genuinely seemed to appreciate hearing our thoughts.

These doctors really impressed me.  As part of my introduction I said, “I have Swyer Syndrome—I assume I don’t have to explain what that is?”  However,

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Top 5 things about having Swyer Syndrome

1. You save money on birth control. 

2. You have options considering motherhood; whether or not to adopt, use IVF, or be an amazing Auntie. 

3. No period until 21 (for me at least). 

4. You can wear white pants all year round.

5. Close friends celebrate your latent menstruation with a PERIOD PARTY! 

-This list was comprised by Inter/Act member, Ali and is part of our new and ongoing Top 5 List blog project by Inter/Act. 

About My Blog

I’m going to be one hundred percent honest with you, this blog may not be for everyone. My story and what I am going to share are what alot of people would call odd…

So here goes.

Everyone is born with something different about them, something that makes them unique and wonderful in there own special way. I was born with CAIS ( Complete Androgen Insensitivity) a genetic disorder in which all the parts of my body are completely female but my chromosomes (DNA) are that of a male. I am a woman, there is absolutely nothing about me that would make anyone think otherwise but the blood running through my veins has a different story to tell.

Of course because of this some things about me are different:

I can not have children :(

I do not get a period ( unless I forget my hormones)

I visit the doctor quite regularly to make sure that my hormones are consistent, and to check the density of my bones

Having CAIS makes me miserable sometimes. I worry about my future, whether I will get married. I also get upset about the fact that I cant have children quite alot

Don’t get me wrong I am quite happy with many things in my life, I have wonderful friends, a house, lots of food to eat, a very supportive and caring set of parents. I am just saying that my condition adds alot of emotional stress sometimes.

Also must add I may possibly have Swyers instead, we are still not sure. Its all so confusing

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Recently Gilbert Crockett and his buddy Swyers entered Battle of the Shops in Raleigh to represent Venue Skateshop, here’s the footage of them killing it.

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I guess its safe to say Swyers has taken the reigns of the weekly bust crew montages. Here is the latest from their trip to DC last weekend. #retardbosses #perfecteggs