I recently posted this to a discussion going on VIA stuffsickpeoplehavetoputupwith, and I thought it would be good to let it stand alone. Basically, it’s in response to the confusion in regards to Fibromyalgia controversy.
I’d like to add to the discussion regarding Fibromyalgia. Anyone suggesting that it’s “not real” or “fake” is either misinformed or using their words incorrectly. Those terms suggest that Fibro is a pretend diagnosis of something that’s either in someone’s head or an exaggeration. And this is far from truth.
There is a more educated and valid argument going on, however, suggesting that while Fibromyalgia is a *real* diagnosis, it is an *incomplete* one. This comes from the fact that patients diagnosed with Fibromyalgia are only diagnosed after a doctor has failed to test them positive for anything else. The reason for doing this, as my mother (RN and former President of NYSNA) suggests is that prescribing proper pain regulators to patients with a diagnosed illness makes it easier to cover over insurance purposes (or, at least it used to.)
Also, Fibro patients are often later found to have an illness that was either not originally tested, newly discovered, or in a case where symptoms are vague and irregular (pretty much any chronic illness, like, ever.)
Fibromyalgia patients are not making it up, they are not exaggerating their pain, and they are not being given a fake diagnosis just to shut them up, or whatever people might like to argue. Their pain is real, and their diagnosis is real, just incomplete.
Look at how much we discover in Chronic Illness every day. I’m betting in a nearby future we’ll start to get clearer, crisper definitions of Fibromyalgia.
Also, I need to add that my bit about NYSNA is not to suggest that I’m an authority on the subject, but more so to make sure you know I have SOME knowledge of what I’m saying, I didn’t just pull it out of thin air lol