Stolen from @amy_lou19 (hope you don’t mind sweetie). Totally agree with this 1000000% and couldn’t have said it better myself! Makes me extremely angry when I get comments on MY Instagram photos of my food saying I’ve caused my Crohn’s by eating the odd McDonalds or telling me I shouldn’t be eating certain things. I’ve been drinking my Modulen (a food supplement that’s made especially for patients with Crohn’s Disease) and even that and plain Water has been painful. So it doesn’t matter what I eat. I’ve tried to change my diet but it hasn’t worked. So telling me what to eat and what not to eat isn’t helpful and I certainly have not caused my own Crohn’s Disease by occasionally eating fast food or junk food. #crohns #crohnsdisease #cd #uc #ulcerativecolitis #colitis #crohnsandcolitis #ibd #inflammatoryboweldisease #boweldisease #bowelproblems #nocolonstillrollin #ileostomy #ostomy #ostomate #colostomy #colectomy #stoma #spoonie #chronicillness #invisibleillness

I need your help.

And I know how that sounds.

I was diagnosed with Crohn’s Disease, a type of inflammatory bowel disease back in 2014. This year, I decided to accept and raise awareness for my disease.

I an doing a walk to raise funds on June 7th, and I need your help. not necessary with funding, even awareness is enough. This is my fundraising page and This is my Instagram.

If you don’t want to do either, I understand. Thank you for your time.

#Repost @ibd_journey with @repostapp. With thanks ! 
・・・what do you think ? I just seen the commercial and I don’t like it at all! 
A new anti-smoking campaign advert released recently talks about how smoking increases the risk of colon cancer, and that this may lead to smokers needing an ostomy bag. It uses this as a “worst case scenario” sort of thing and basically says that you should stop smoking because a bag is a shameful, terrible thing to live with and the thought of having one should be enough to stop people smoking. This is disgusting. Ostomy bags save people’s lives and hundreds of thousands of Crohn’s and colitis sufferers are thankful for them every day for giving them their life back. Bags aren’t the worst case scenario, DEATH is. This advert needs to be stopped as it is stigmatising bag wearers. It hints that bag wearers brought on the situation themselves and this is massively damaging to our cause. 💜 #IBD #inflammatoryboweldisease #crohns #crohnsdisease #UC #colitis #ulcerativecolitis #crohnsjourney #crohnsdiary #disease #hospital #treatment #infliximab #remicade #humira #autoimmunedisease #incurable #incurabledisease #invisibleillness #chronic #chronicillness #chronicdisease #azathioprine #crohnswarrior #crohnsfighter #ostomy #ostomybag #colostomy #ileostomy #ostomyisnotatragedy


To those who are battling a chronic illness…

My father was diagnosed with Ulcerative Colitis 10 years ago and i was diagnosed in 2014. I got this tattoo after reading about the ‘spoon theory’ and how much more my father and I have bonded over our Colitis. I took a huge negative and turned it into a positive. I am thankful to have a father who can relate to my illness, understand and give me the proper support. although his Colitis is not as severe as mine, It helps to see my father live more of a normal life than he did when he was first diagnosed.

This means there is hope for all of us dealing with a chronic illness, we can do it. WE can get healthy and live a normal lifestyle, it may not happen over night but it will happen! there may be restrictions along the way but always make the best of life! IF my dad can do it, so can i! and so can you!

Keep your head up! Positive Mental Attitude, One Life One Chance.

spooniestrong please help spread the word of the positive mental attitude!

PS, I am 26 years old, live on my own and still afraid to tell my parents when i get new tattoo’s…it has been awhile since i got this tattoo and still have yet to show them

We are Flaredown

We’re building a simple, beautiful way to track and understand your chronic illness. Because we’re tired of our worst symptoms being ignored and our health being in other people’s hands.

Made by patients, for patients, Flaredown will be free forever. Check it out:

You can get early access on our IndieGoGo page and sign up to be notified when the app is ready on our homepage.

This Tumblr page is a place for us to show off our progress and answer any questions you have about Flaredown. We’ve enlisted the help of three awesome people–bananaantics​, memyselfandibd​, and peardragon–to keep you updated.

We want to be 100% transparent with everything we do, so please ask away!


Common ingredient in packaged food may trigger inflammatory disease

The ingredients that lend a smooth, stable consistency to ice cream, chocolate bars, and other packaged snacks may promote certain chronic inflammatory diseases. That’s the claim of a new study, which finds increases in metabolic disease and intestinal inflammation in mice fed two common emulsifiers used in processed food. The authors are a long way from confirming similar effects in humans, but they suggest that these ingredients cause damage by disrupting the barrier between the immune system and the microbiome—the collection of microbes that inhabit our bodies.

The finding, published online in Nature, is “believable and remarkable,” says Karen Madsen, a microbiologist at the University of Alberta in Edmonton, Canada, who wasn’t involved in the study. “It sends a really clear message that changes to our food supply are altering our microbiota and our health.”

The researchers fed two common emulsifiers, CMC and polysorbate 80, to both a genetically susceptible mouse strain and wild-type mice—those without genetic mutations that would put them at increased risk of IBD or metabolic syndrome. Among the susceptible mice, eating or drinking emulsifiers for 12 weeks increased the risk of developing symptoms of colitis—a mouse model of the intestinal inflammation seen in humans with IBD—from 40% to 80%. The wild-type mice didn’t develop colitis, but showed low-grade inflammation in their intestines and several features of metabolic syndrome: slight weight gain, increased body fat and food intake, and higher blood sugar levels, which indicate poor glucose regulation associated with diabetes.

Depicted here is a generalized pathway of the mucosal inflammation underlying inflammatory bowel disease (IBD) and potential points of therapeutic intervention. a | Secretion of inductive cytokines. b | The traffic of effector cells into the lamina propria  c | Tumour-necrosis factor (TNF) expressed on the surface of effector cells. d | Regulatory T-cell induction or function.



Someone on the Crohn’s and UC Support Group posted about the recent smoking commercial and how it promotes negative stigma for people with IBD who have to get ostomies. These are photos being passed around now because of the anti smoking commercial only promoting shame of ostomies in my opinion. I’m just really outraged. I’m tempted to send a message to the company and let them know how offensive people are finding their recent commercial but I feel like it won’t do any good now because it’s already too late. The last thing I need is people blaming me or blaming smoking on my disease or ostomy. Just outraged. :p