hypoplasticleftheartsyndrome

Take Each Day As It Comes and Live Life To The Full, by Amy .

As part of our Handmade Hearts series, LHM’s young members talk about life with half a heart. To learn more about Handmade Hearts, click here. To help support children and young people with half a heart please text MADE14 followed by the amount to 70070.

So, where it all started… I wasn’t alive at this point but at the 20 week scan I was diagnosed with Hypoplastic Left Heart Syndrome (easier version – half a working heart). So my Mum and Dad where transferred to Guys Hospital London (right by London Bridge) after that 20 weeks scan where they then had regular visits and scans to attend which must have been a real pain because we live in Brighton!

Keep reading

Life Is What We Make It, By Jack.

As part of our Handmade Hearts series, LHM’s young members talk about life with half a heart. To learn more about Handmade Hearts, click here. To help support children and young people with half a heart please text MADE14 followed by the amount to 70070.

Hi guys and girls, my name is Jack. I was born on Monday 29th November 1993. I have a life threatening heart condition called, Hypo Plastic Left Heart Syndrome.

I was diagnosed at Musgrove Park hospital in Taunton, the county town of Somerset. I live in a very small village called Ashcott with my Mum, Suzi, Dad, John, Sister, Sophii, Brother, Harry and a eleven year old collie-retriever cross breed, called Amber.      

 

Keep reading

This bird is a big part of my childhood. I always knew where I was in Ann Arbor hospital when I seen him! Every time id pass him i would have to go hug it or touch it lol. Being a child with health problems is not easy, but it’s the little things that make everything just a little bit more bearable.
#BigBird #UOfM #UOfMHospital #Pediatrics #UniversityOfMichigan #AnnArbor #GoBlue #HLHS #HypoPlasticLeftHeartSyndrome #ApartOfChildHood #ApartOfMyLife #Forever #CHD #CongenitiveHeartDisease #Survivor

Laurits kører Beatrice.
#beatrice #laurits #julsdorf #beatricejulsdorf #lauritsjulsdorf #studentersøen #slagelselystskov #slagelse #åretssidstedag #hlhs #hypoplasticleftheartsyndrome #1in100 #chddad #wheelchair #kørestol #rollstuhl #chaiseroulante (her: Slagelse Lystskov)

instagram

Skatergirl #beatricejulsdorf #hlhs #hypoplasticleftheartsyndrome #skatergirl #wheelchair #kørestol #julsdorf (her: Tapperiet)