for autistic people

foximalfox asked:

As a person with Autism yourself, what are your thoughts on Autism Speaks?

Well, they’re the kind of company (or non-profit) that threatens to sue parodies of them. I don’t care if you’re curing cancer, that always makes you look bad.

Most of their funding goes to a prenatal test to determine if a child has autism (like they have one for Down’s Syndrome now) instead of helping out the lives of autistic people that already exist.

They seem more focused on finding a “cure” for autism. Autism cannot be cured, it’s a developmental disorder: the brain in an autistic individual was essentially built slightly differently than that of a neurotypical.

They pretend that adults with autism don’t exist.

All of their commercials treat autism as something that will ruin your life. Oh, not the lives of the autistic people, but the parents that they’re trying to get money out of. Here’s one of their commercials where they talk about autism like it’s an STD: https://www.youtube.com/watch?v=8mycxSJ3-_Q

Due to their portrayal of autism and that they’re the most well-known organization about autism, I’m fairly sure that they’re the reason that autism has been used in place of “stupid” when “gay” and “retarded” went out of style.

They don’t have any autistic people in any position of significance because that would damage the message that they’re trying to spread and that really hurts the funding.


I don’t like Autism Speaks. I’ve been thinking of speaking out against them for awhile now.

About Executive Dysfunction; for neurotypical people

Friends, family members and loved ones of learning disabled and mentally ill people need to have a working knowledge of what Executive Dysfunction is, and respect the fact that it is a prominent feature of that person’s psychology and life.

Executive Dysfunction is best known as a symptom of autism and ADHD, but it also features in depression, anxiety disorders schizophrenia, OCD (which by the way is also an anxiety disorder), personality disorders; etc, a whole myriad of mental illnesses and disabilities can result in executive dysfunction.

(fact: I have personally known people diagnosed with each ofthe above mentioned disabilities. let me tell yea having mental disabilities in aneurotypical world turns your life upside down and we often feel suffocatedand trapped by it with no way out)

Years ago when I was like 14 and had recently learned of my autism diagnosis, I watched a youtube interview between autistic people, and an autistic woman said something along these lines, “Sometimes, a lightbulb will burn out, but I cannot change it. I have the physical capability to change the lightbulb, and I want to change the lightbulb, and I know I need to do it, but because of my autism I just don’t do it. So the lightbulb remains unchanged for weeks. Sometimes people have to change the lightbulb for me.”

When she said that I related so much, because constantly throughout my whole life I have wanted and needed to do things with my wanting and needing being akin to my spurring an extremely stubborn horse who refuses to move. For the first time I learned that I wasn’t just “lazy”, I had a condition that prevented me from doing things as easily as other people can, but unfortunately it took me years since then to understand that.

Actually, I like the horse analogy. Imagine that you are a horserider, but your horse is entirely unwilling to move even if you want to move. You dig in your heels, you raise the reins, but the horse refuses to respond. Your wants and needs are the rider, and your executive functions (the parts of your mind responsible for getting things done) are the horse.

I think it’s incredibly dangerous for neurotypical loved ones to not understand, or be aware of, or respect executive dysfunction. Neurotypical can assume that we are just being lazy, careless, selfish or difficult, when in reality we want to do the thing but our brains prevent us from consistently and reliably doing the thing.

That misinterpretation can lead to toxic behavior and resentment on the part of the loved one, which will harm us emotionally and do us a lot of damage gradually over time.

That damage can take the form of internal self-criticism, complicating executive dysfunction even further and making it worse.

ok but dont do this as a “challenge” to finally learn how “autistic people are REALLY just people like you and me!!!”

like i really dont want people talking to me only to try and learn that autistic people are people who deserve as much compassion as abled neurotypicals

autistic people dont always have difficulty saying what they mean either

and im not saying this in the sense that no one should be nice to us but the idea that you have to actively force yourself to even talk to us to the extent that you have to have a reason that benefits yourself as opposed to talking to abled neurotypicals just because you like to talk and make friends is so shitty

and yes autism does often make us very different from neurotypicals–thats not a bad thing

you really shouldnt have to think “huh, theyre just like everyone else!” to realize that we deserve as much compassion as anyone

like..disabled people are not here to teach you a life lesson about how people different than you arent less human

anonymous asked:

Why does Tumblr hate Autism Speaks? What are they doing that's so bad?

For one thing, they have no autistic people on their board. They don’t listen to what autistic people have to say about autism.They’re also more interested in fearmongering than speading actual info about autism. Plus that video they did where this woman talks about wanting to murder her autistic daughter… right in front of said daughter. They’re just really not good.

-The Canadian One

anonymous asked:

Is it common for autistic people to completely forget that "please" and "thank you" and other such words are things one is expected to say in polite society?

If you think about, those words are ‘polite’ but have no other real meaning. If you ask for someone to pass you a book, it’s no different whether you say please or not but saying please is considered the polite and therefore proper thing to do. Autistics might struggle with the idea of ‘tagging on’ seemingly meaningless niceties to functional requests. This might apply for autistics who do sometimes use niceties but only if they mean them, rather than by rote.

However, autistics might also develop a habit of being almost overly polite through having been taught to use words such as please, thank you, and also sorry, and might use them by rote. This means that they might even use them incorrectly at times out of habit. And due to literal/‘black and white’ thinking some autistics might be upset by other people not using those words because they’re then seen as important and necessary (so if you use them you are polite and if you don’t you are rude, and there is no in between).

We might also struggle with learning specific meanings or situations in which certain words are used and being inflexible about that. It took me a long time to learn that if someone had passed away or something bad had happened to someone, people would say they were ‘sorry’ as in, “I’m sorry to hear about your loss/trouble,” or, “I am sorry for you.” I couldn’t ever say that I was sorry to someone who had lost a loved one because it seemed illogical, because I had always thought of ‘sorry’ as something you said when you had done something wrong, and as their loss or problem wasn’t my fault, I couldn’t say sorry. 

What’s a good version of autism speaks? Like, the same concept, but not shitty. Because my dad who’s the senior psych of DDS in MA and he wants to find good resources to give people and he knows that autism speaks isn’t good, and he wants the opinions of actual autistic people. 

anonymous asked:

What do you think about autistic people who would actually like a cure (not down to the influence of others) as long as it isn't forced?

I think that is perfectly fair, and we should also listen to their voices. 

If tomorrow they found a 100% effective treatment for a condition I have, I would probably hesitate, I have had it for so long I view it as part of me now, and I have it quite mildly. A friend of mine would leap at the chance, hers in much more severe and impacts her life more. Which of us is “right”? Well, neither. We are both right. 

Some people want a cure, some don’t, and that difference is ok. 

-Roma One

i can’t get away from god-damn pepe. it’s on the radar now. it’s been posted by staff. my mutuals keep posting it untagged. but nah, it’s fine, keep ignoring people telling you that this meme has been used to disparage and mock autistic people. i’m aware that the source material wasn’t like that and that the meme as a whole isn’t like that, but you can’t deny that a certain amount of its present popularity was built on that specific part of it that i’m talking about.

just… stop reblogging that fucking frog.

anonymous asked:

i never know what to think about the stone-language posts. i would love to hand stones back and forth with someone. i have many stones, i love stones, i would love to show them to you. but i don't know if i'd really get any deeper meaning out of it. i don't know if i'd be able to understand or 'speak' it as a language. i don't know if i have the (or an) autistic language. sometimes i doubt myself because of that. because of when people talk about automatically understanding other autistics.

Not all autistic people automatically understand all other autistic people.  It’s more like, some autistic people automatically understand other autistic people who have a certain amount of things in common with them.  If you haven’t met anyone with sufficient things in common with you, this won’t happen.  It also won’t happen if your commonalities with other people push you apart rather than bring you together.  (Which can happen.)  These things are good when they happen for people, but they’re far from universal.  And some people have a language that is unique to themselves and no other autistic person speaks it.  (For that matter, in my case, “my language” is not limited to autistic people, nor universal to autistic people.  There are many, perhaps most, autistic people who don’t speak it, and many nonautistic cognitively disabled people who do speak it.)

I kind of raised my eyebrow when I was in that group and they were talking about speaking “the” autistic language, because it was clear to me they were talking about “an” autistic language, and they’d just decided somehow that “real” autistic people spoke that language and aspies didn’t, or something along those lines.  (And don’t get me started on aspies supposedly not being real autistic people.)

like if i call you out on ableism, maybe you should sit back and review what you’ve been doing

this is an autistic person, tell you, an allistic person, that you’re being ableist. and if you just respond with ‘no it’s not’ then maybe consider you’re an asshole

just because no one else has said it to you in person doesn’t mean it’s not ableist

allistics, listen to autistic people when they tell you something is ableist, even if it’s a minor thing

you wouldn’t pull this shit on racism, or sexism, so why are you doing it with ableism?

Autism awareness is important.
So lesson #1

Do not call them autistic/refer to them as “autistic people” - that’s messed up. They have a disability; they are not their disability. They are people with* autism.
Thank u

Also: autism is a spectrum disorder - consider the fact that there are different dimensions of autism, 6 in fact, that determine whether an individual is low or high functioning and which end of the spectrum they fall under.

In autism, only complex information processing is impaired so don’t overwhelm or overstimulate an individual with autism.

Every individual is different and struggle with different things! Be patient with an individual with autism or any global delay, thank u x2

anonymous asked:

What do you think about some autistic people hating on other autistics for wanting a cure for themselves?

I don’t think that is fair. Conditions, especially spectrum conditions, affect us all differently. It is important to note that some people on the autistic spectrum have a super tough time with it, and that perhaps some people want a cure. 

Think about the cure from x-men’s last stand. Most of the mutants did not want the cure. Some had it forced upon them (which is bad, obviously), and yet there were some who willingly sort the cure, to have their powers removed. They viewed living with their power to be so difficult, they sought out a cure. 


-Roma One

anonymous asked:

Brontë, what's your opinion on autistic people who would like to be cured (without force)? Because I'm one of those autistic people who's symptoms just holds them back and doesn't have any 'special talents'.

It’s nobody else’s business how somebody feels about their own disability.

anonymous asked:

I wish Tumblr would talk about autism more. Everything they say about it is either a mention of Autism Speaks (which is fair enough, it's a shitty organisation) or those dumb 'Protect autistic people!!!1!' posts. Like I'm not a kid, I can protect myself jfc.

anonymous asked:

(anon asking about mishearing lyrics) i know people often hear wrong lyrics, but i don't think its as extreme as it is for me? like, in one of my favourite songs, i /completely/ misheard two verses (and both were clearly sung) and didn't realize it until two years later when i looked up the lyrics on a whim. i'm also hypersensitive to sound, so idk if that might be related? and i always listen to music with earbuds in

Autistic people often have processing problems, including auditory processing problems/Auditory Processing Disorder). This could be linked to that (especially as lyrics are obviously often sung and are accompanied by music, making them less clear/easy to focus on, and quite often don’t have enough context to be able to work out the likely phrase that’s actually being said/word that’s actually being used. Whereas this is quite common anyway, if you have additional processing problems it’s going to exacerbate the problem.

@ autistic people and other people who find it hard to wear suncream
an anon just told me that lush cosmetics do a powdered suncream? like its powder form and u just rub it on your skin. its called powdered sunshine and u can find it on their website.
they also do a suncream soap bar that u just wash with in the shower like soap. its called the sunblock.
they’re both expensive but I really like lush and spend a lot of money in there anyway so that works for me but I understand its not going to be an option for everyone.