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Ever since I was 5 I’ve had to be an actor. I wanted to grow up and be famous and see myself all dolled up and glamorous on the big screen. I wanted to be able to act in movies and walk on the red carpet at fancy movie premieres. Y’know? I loved watching  movies at a young age and have always been interested in film, drama and the industry.

When I was in fourth grade I started having a lot of trouble walking, severe tremors and I was very clumsy. I always had been but it just than become noticeable and a touch of a problem. Anyway, I started going to doctors appointments and they started talking tests. A lot of blood tests, urine tests, MRIs, muscle biopsies, the works.

After actually going through hell, I was finally diagnosed with Friedrich’s Ataxia. I don’t know a lot about it. It is a muscular thing, though. When I was fist diagnosed, I thought it wouldn’t really affect me. I would be normal like everyone else and I’d have a normal life. It wouldn’t affect my dream of acting because it’s what I wanted to do and I was taught that if I try I can achieve my dreams.

Since then a lot has changed. My disease has gotten worse. I’m pretty much bound to a walker now. It helps me get around and while it’s sometimes difficult I do make sure I get around. I’ve had 3 spine surgeries, very tough ones, over less than 2 years. Also, I’ve developed a heart condition, hypotropic cardio myopathy. Basically, what I have is degenerative and it’s terminal.

I’ve decided that I don’t want to let this bring me down. I still have this dream to be a famous actor, to be in the movies. To see my name up in lights. It’s been my dream for a long time. I’m not very sure where to start or how to get involved so i thought I’m come to tumblr and share my story. Maybe someone here will see my story and want to help. I guess asking people to reblog this would help so reblog it please.

Thank you. I appreciate you helping make my dream come true.

This made me cry a bit. I found the video on Upworthy, and the results really are a marvel.

Here is the youtube quote, by Pro Infirmis:

Disabled mannequins will be eliciting astonished looks from passers-by on Zurich’s Bahnhofstrasse today. Between the perfect mannequins, there will be figures with scoliosis or brittle bone disease modelling the latest fashions. One will have shortened limbs; the other a malformed spine. The campaign has been devised for the International Day of Persons with Disabilities by Pro Infirmis, an organisation for the disabled. Entitled “Because who is perfect? Get closer.”, it is designed to provoke reflection on the acceptance of people with disabilities. Director Alain Gsponer has captured the campaign as a short film.

I had all these comments I wanted to make on how proud this makes me to see others in the design industry work for positive changes in people’s lives, but honestly, I feel like an emotionally compromised twelve-year-old girl, so instead I think I’ll just give you the video link and make myself some hot chocolate, thanks.

Coming to an end

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Hello Tumblr friends! I have been gone for so long, but only because I have been so busy with work. This summer has been one of the best! Working at Camp Paivika has opened my eyes and changed my life! I have had the honor of working with the most amazing, inspirational, caring, and loving people. Camp Paivika has taught me that everyone is different, but in a good way. We all have abilities, and we all have the right to show them to the world. Paivika gives an opportunity for people with disabilities to show their true selves, make friends, and have memories that will last a life time. We are truly, one big happy Paivikan family. I will miss everyone I met this summer, the friends that have become my family, and even the ones I did not have the chance to get close with. I hope to  return to Paivika next summer as a counselor and have the opportunity to work more one on one with the wonderful campers that Paivika gets. Two more days and summer ends at Paivika, but the memories from this summer will be in our hearts forever. Until next time camp, I will miss you. -Summer 14’ Camp Paivika, you rocked. 

So there is this guy…  I really like him but he is super hard on himself… and I don’t understand why… He says he has all of these medical issues and that it makes him less of a man, but i don’t care about the medical issues. He has been diagnosed with a mild form of Dyspraxia, but he can draw amazingly, he can play guitar amazingly, and he is in martial arts. He is for the most part deaf and he absolutely hates it, but he can play guitar, tune it completely by ear AND he can sing on key! (quite wonderfully I might add). I don’t think these things make him less attractive, but even more so because he has been able to overcome these issues. He really means a lot to me… I just wish that he saw that none of those diagnosis matter to me…

I know that Dyspraxia messes with the rotary functions to an extent and that it can range from mild to extreme. If anyone would like to further educate me on Dyspraxia and its symptoms I would be eternally grateful!! =D

Watch on thenotquitedoctor.com

It’s no secret that the smooth, plastic bodies staring out of store windows aren’t true physical replicas of the people who stare back at them. But there’s no reason they can’t be.

Blaize is an 18 yr old autistic child with mental disabilities.

Blaize is an 18 yr old autistic child with mental dissabilities. His dream when he turned 18 on July 28 2012 was to become a police officer. The best I could do was get him the outfit and call JPD to surprise him with an officer come to our house and let him get the look.and feel of a real police car. They pulled it together real fast and sent one out and Blaize was the happiest 18 yr old i have ever seen!! After posting the pics on facebook…one of my friends who is a dispatcher at JPD messaged me right away and started putting together a visit to the Police Dept with Officer Mike Hill. About a week later Blaize had his visit at the JPD and got a tour that put a smile on his face from ear to ear!! He received a certificate and a special JPD coin. Since that day Mike Hill has come to our home on 3 different occasions just to visit his “backup”. Today he brought my son a calender with all the police officers on it and plans on making another visit soon!!! The JPD gets alot of bad rap but there are good officers who go above and beyond; therefore, thats why i wanted to share my story and show my appreciation to them.

Stigma

to anyone who struggles and suffers from mental disabilities, i just want you to know you are not alone. A lot of ppl go through situations similar to yours. and the best part is, there is help out there. but make sure you have a support system, because its them that get you through the day. ill be your support, your hand to hold, your shoulder to lean on. Fuck the stigma, there is no shame in wanting help for your mind.

to all those that support me and help me, i love you, and thank you.

to all those struggling and still figuring things out, you got this. :D

<3

HIPENCA 2011

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To celebrate the International Day of Person With Dissabilities (PWDs)The HIPENCA (Hari Internasional Penyandang Cacat) Committee, in partnership with Indonesia Ministry of Social Affairs and Indonesia Person With Dissabilities Assosiation, will hold the MUSICAL DRAMA of PWDs. It will performed by 78 PWDs from Jakarta, Java, Sumatra and Bali.


This MUSICAL DRAMA of PWDs will be hold on: Sunday, 27 November 2011, 12.00 - 21.00, at Atrium Mall Pejaten Village, Jakarta Selatan.


This is not just about a ‘Musical Drama’ of PWDs, but also to show the community that those people also have the same capabilities as non-dissabilities people, if they have the opportunity.

There will be also performances by PWDs such as: Dancing, Exhibition, Pantomim, Live music, Conjuring Show, Gamelan and Modelling. 


MC by: Dewi Hughes (Indonesian artist, presenter, writer and activist), Kemal Vivaveni Mochtar (Indonesian actor, announcer and presenter), Aceng (An inspiring per song who was born without two hands but very talented).

Watch on mysliceofmind.tumblr.com

THIS will change your life. Forever. 

Watch on nuclearsad.tumblr.com

anonymous said:

I really liked your post about mental illness and dissabilities, but I wanted to add that tourette syndrome and epilepsy are neurological dissorders, which are a totally different thing. Thanks!

Then you may not have understood why I included them.  They are conditions that have been, historically, claimed as both mental illness and developmental disabilities.  To this day, some kinds of epilepsy are treated as a mental illness, and many kinds of epilepsy are classified even officially as developmental disabilities.  Tourette syndrome is treated as both psychiatric and developmental.  This is real.  This is how these things are classified.  You could say the same of half the things on my list, because that was the entire point.

The entire point is that the category “psychiatric disability” and the category “developmental disability” are almost entirely meaningless categories.  They are categories that have evolved, next to each other, often overlapping, as an accident of history.  Some disorders get ejected from one or the other eventually — epilepsy is almost but not entirely ejected from psychiatry, when it used to be seen as psychiatric in nature, and Tourette’s is on its way out but not there yet.  But which disorders get ejected doesn’t have anything to do with them being special disorders that are more neurological and less psychiatric than other ones, it also has to do with accidents of history.

So I didn’t really need to be told “This and that is actually a neurological disorder.”  Because half of the psychiatric disorders could be pulled out of psychiatric and pulled into neurology if anyone really wanted to do it.  It’s all a big game of categorization, it has nothing to do with objective reality.

Warning, rant: I understand and empathize with parents of special needs children, there are many challenges they face. However there are people with disabilities themselves who want self help books too. Every group of individuals have their own challenges. I am a college graduate with a learning and physical disability who wants books, and support for me. There is so much on disabled children and books and resources for parents, but not for the disabled adults themselves. In my opinion,There should be an equal amount of support for disabled adults, as there are for their parents. A doctor recommended I advocate, once and perhaps I shall do that.

//Just to you guys know, these someone from somewhat are better than Lambda are obviously ment to anger me/lambda. They don't, they just annoy me. So I will delete these at once, the rest will be answered and when I get too many of this bullshit I will dissable anon questions.
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