I’m diabetic and it’s so depressing. I feel like no one understands how it feels to have to give your self shots with needles everyday. Having diabetes isn’t something I just like to go around announcing. So people say things to me that they don’t really know affect me like “you always have to pee”. I feel like I can’t be a regular teenager, I can’t go to the fair and eat all the cotton candy or drink all the soda like other kids. I have to drink diet soda and count my carbs. It’s so hard and I feel no one will ever really understand me.
Philosophies in type 1 management

- eat what you want, calculate your ratio per meal and inject accordingly
- keep the same amount of injections per meal and eat accordingly
-keep the same amount of carb per meal and inject according to your ratio
- eat low carb, inject small amounts of short acting insulin and exercise a lot

In my opinion the last one has the most encouraging results. What works for you? (Ps always consultant your doctor)

6

Paradise - Or My Greatest Fear?

I just got back from a week in the Bahamas, and my god it was amazing! Those photos were taken with my iPhone 6, and the place looks like a dream come true.

So wait, you see the paradise part, but why would this place be my greatest fear?

With having an auto immune disease like type 1 diabetes, it’s something that has to be managed 24/7, 365 days a year, or until someone comes along and beats the crap out of science and technology. So vacation or not, diabetes is coming along for the ride. (No extra plane ticket needed)

Since being diagnosed I’ve had to have some personal battles with freedom. Running for miles on my own, driving hundreds of miles on road trips by myself, and now, going to an island. So wait…how would going to an island like Eleuthera in the Bahamas be much of a battle or risk? Well, for starters it has no hospital! I’m sure Nassau does, which is one of the bigger islands of the Bahamas, and a neighbor to Eleuthera, but the island I stayed on didn’t have one. Me being a dummy, I didn’t even ask about that before I was there, so that was on me. I’ve never really had to think about that! As a diabetic, you learn that not everything is as easy as pointing to a spot on the map, clicking away on an airline website, and then throwing your suitcase in a car and off you go.

Sometimes it’s more like:

*let’s plan a vacation!* Ok wait, is there a hospital? (I shoulda thought of that one!) Emergency care facility? How would I get insulin if I needed it? Test strips? How much supplies do I have/need? Do I have a medical ID? Can I fly with needles/syringes? What about the metal detectors at airports? In flight meal? What about the carbs in food in another country? And the list goes on.

Now more than ever I am confident in my ability to care for myself. I’m a few days shy of my 4th anniversary of being diagnosed, my A1C has always been in check, and I don’t have any complications. Still, when I think about being on a deserted island, my mind races and thinks of…how long would I even last?!

My vacation is a much much different story than the ol’ “deserted on a deserted island” scenario, but I still had weird unrealistic thoughts still. One time on the vacation the power went out on the whole island during a thunderstorm. We were having an awesome time watching the lightning and thunder, but when all the power went out and it was super dark and eerie. I stopped and realized I’m on an island…in the middle of the ocean! my thoughts wandered a bit, thinking about what if I got stuck there? It was a ridiculous thought, but it crossed my mind. Of course, the power was back in 10 minutes, and before I knew it I was staring at the storm like a 5 year old in a candy shop again. I can’t help it, I love thunderstorms!

Also another time, we left our stuff on my girlfriends uncles house’s deck. After snorkeling for hours I knew I needed to test. I didn’t bring my backpack down to the beach because there was no shade. So we went to get our stuff, and it was gone! I knew right away it had to have been put inside by her uncle. His car was gone so that was logical. They left and probably didn’t want to leave it outside. We looked and looked and couldn’t find it… I was shaking, and knew I needed food, but then the unrealistic thoughts crept in….what if some kids came outback and took our stuff? What if it’s locked away and I don’t get it for hours? What if…

Luckily, I was low, I could feel it as my hand shook. With a low, you can always eat. With a high, and being on the Omnipod and my pdm in my missing back pack, I would have panicked a bit more! Of course in the end, my gf’s uncle came back after we got a hold of him, and he got our bags from his closet where he locked them for safe keeping when we were on the beach and he was out in town. Crisis averted!

I’ve ran the stranded island scenario more times than I care to admit through my head since being diagnosed. Hell, zombie apocalypse too. Now after having been out of the country twice, been on road trips by myself, and having been dealing with this for 4 years, it’s safe to say I’m a little less worried then where I started.

If you, or anyone you know is scared to travel because you’re diabetic, I get where you’re coming from. It can be scary. However, it can be done, and you can have the time of your life seeing places you never imagined you’d see! I promise. We have to plan a bit more, we rely on some things that we absolute need, and we have to be diligent, but it’s worth it. It’s worth seeing states across the country. It’s worth having memories where you instantly smile at even the thought of them. It’s worth crossing off your bucket list “swimming in crystal clear water”.

Am I still afraid of a zombie apocalypse and being stranded on an island? Yup! Am I scared to see the world and go everywhere I can? Nope!

After seeing a paradise like Eleuthera, it’s only made me want to see more of the world, not less of it.

So…where to next?!

something i wish people would understand is how one second i can be perfectly fine but in a few seconds that can change drastically and i can feel like death and no i am not making this up. stop telling me what I’m feeling isn’t real. its fucking real

What is type 1 diabetes for me

-Sleepless nights with worry and anxiety thinking that my sugar levels might go down and I might not even wake up
-Seeing your friends and family have much more energy, enthusiasm and positive outlook in life
-Having a poisoned feeling in my stomach with unexplained high sugar levels and staying at home all day and not even wanting to go out
-feeling like fighting for a battle which I have already lost
-having a dedicated cupboard for your medicine, one next to your bed
-injecting and checking your sugar levels constantly and endlessly
- acting like drunk, mad, depressed, lazy, sick based on your sugar levels and not have much control over it
-wanting to try miracle diets and stop using insulin only to find yourself in hospital fighting for your life…

Reminders for my fellow Type 1 Diabetics
  • Did you check your blood sugar today?
  • Did you remember you insulin?
  • Are you drinking enough?
  • Is your pump working okay?
  • Did you change you lancet?
  • Don’t for get to eat!
  • Did you remember your alcohol wipes?
  • I know having diabetes is tough and sometimes it can be hard to remember everything you need to do but, I’m here for you!

New Link Between Alzheimer’s and Diabetes Discovered

Full article .

Researchers have uncovered a unique connection between diabetes and Alzheimer’s disease, providing further evidence that a disease that robs people of their memories may be affected by elevated blood sugar, according to scientists at Washington University School of Medicine in St. Louis.

The research is in Journal of Clinical Investigation. (full open access)

Research: “Hyperglycemia modulates extracellular amyloid-β concentrations and neuronal activity in vivo” by Shannon L. Macauley, Molly Stanley, Emily E. Caesar, Steven A. Yamada, Marcus E. Raichle, Ronaldo Perez, Thomas E. Mahan, Courtney L. Sutphen, and David M. Holtzman in Journal of Clinical Investigation doi:10.1172/JCI79742

Image: The researchers showed that spikes in blood glucose increased the activity of neurons in the brain, which promoted production of amyloid beta. This image is for illustrative purposes only.

For all those with diabetes burnout...

Remember when you were first diagnosed and you didn’t want to do all these diabetes related things but you did it anyway because you realized you had to in order to live.. Think back to those days when you feel like giving up, think how scary the changes were before you understood your situation and realize if you could handle it then you can handle it now. you know so much more now, you’re stronger then yesterday and you can get things done my friend. We all go through burnout. Diabetes isn’t fun but just like we have to breathe we have to check and inject (: or bolus lol take care of yourselves there’s only one you. If you need someone to vent to my ask is always open!

Important

If any of you are diabetic or know someone who is diabetic please please know the warning signs of low blood sugar and what can be done to correct it. Each person is affected differently by low sugar, but most everyone shows signs at one point.

Some of the most common signs are:
1. Sudden drowsiness (falling asleep in class, nodding off in the car, etc.)
2. Sudden hunger ( usually craving something sweet. That’s the body’s way of saying that it needs sugar)
3. Slurred speech (this is sort of like being drunk. Speech might be very slurred and might not make sense at all.)
4. Extreme confusion ( forgetting name, place, other people.)
5. In serious cases diabetics can have seizures or go into a coma just because of low blood sugar.

What to do if you or someone you know does experience a low blood sugar:
1. Eat or drink something with sugar (fruit or fruit juices work well)
2. Eat or drink something with protein (the protein will help keep the blood sugar up )
3. DO NOT let the person behind the wheel of a car. (Driving with a low blood sugar can have the same effects as driving while highly intoxicated. The risk of injury increase immensely for everyone involved.)
4. Carry a Glucagon ( this is a shot that every diabetic should have with them. It should be injected into the upper thigh/ butt if the person is not able to eat or drink anything. Ultimately this is the last resort before calling 911.)
5. Call 911 if needed. ( please do not be afraid to call for help. A low blood sugar can lead to brain damage or even death if not treated properly.
6. Be sure to get to know the warning signs. ( talk to your doctor about what can be expected from both a low or high blood sugar.)
7. Keep an eye on your blood sugar ( with new technology such as the continuous glucose meters available, it may seem unnecessary to continue manually checking your sugar. But these are machines. They are not always right and they should be calibrated AT LEAST every 12 hours.)

I had an incident with a low blood sugar today that could have been fatal. My blood sugar got to below 20. My CGM told me my blood sugar was over 80 (which is still slightly low but not unreasonable). If my step father had not picked me and my sister up from school, I would have passed out behind the wheel of the car and most likely caused a major accident. By the time we got home I was dizzy and confused and I nearly cracked my head on the stairs. Had he not acted immediately, I could be in a coma or dead by now.

Please please don’t be embarrassed by having diabetes. Tell people about it and what they can do if something happens. If anyone has any questions or comments or just want to talk about having/ caring for diabetes feel free to contact me at any time.

7

So, as most of you know, I’m a type one diabetic. Yesterday, May 5th, marked three years since I was diagnosed at 16, and ever since my life has not been the same.
I have a pump and a pretty kickass tattoo that functions as a medical ID, which are pretty cool, and I manage to make jokes about my disease, but that doesn’t mean I’m happy to be diabetic. Since I’ve been diagnosed I’ve struggled with anxiety, depression, and self-esteem issues, and it’s a struggle every day to remind myself that my mostly invisible illness does not define me. Being diagnosed so late also meant that I had no interactions with other diabetics up until this past year, when I found several diabetics on tumblr who help to remind me that I’m not alone in my struggles. I cannot explain to you the excitement I had when I could complain about my blood sugars and not make people uncomfortable. Y'all know who you are, and let me just say thank you.
I still have days where I feel out of control, but I’m getting better after three years :) Featuring: my tattoo, my once-pimped-out pump (the stickers fell off,) pictures from when I was first diagnosed and my recent visit to the hospital thanks to DKA, and a selfie because I can :)

At a recent party, we were playing truth or dare, but everyone had to answer the questions. Someone asked “what’s the worst thing you’ve ever done?” and I almost had a panic attack. Somehow I mustered up the courage to tell a group of about 15 that I had once purposefully overdosed on insulin. I don’t know what I expected, but it didn’t make me feel any better. Everyone was sad for a second, and then they moved on. I wish I could just forget like that too.

“Dear Dr. Banting,

I wish you could come to see me. I am a fat boy now and I feel fine. I can climb a tree. Margaret would like to see you. 

Lots of love from Teddy Ryder.”

A letter sent by Teddy Ryder, one of the first diabetics to be successfully treated by insulin, to Dr. Frederick Banting, the first scientist able to extract and purify insulin for human use.