Hey guys. I don’t ever really do this, post anything about my nieces that is, but here I am making this post. My niece Kali is going to be 6 years old on January 12th and sh is one of the few blessings in my life. She has been through more in her 6 years than people have in 40 years. She has something VERY rare called Moebius Syndrome which means her facial muscles are paralyzed. She will never be able to smile and right now she communicates through a machine and sign language. If she gets even a cold she ends up in the hospital because she is at risk of dying. She has a trach and she cannot chew food so she has a feeding tube. She is the strongest little girl I know. She is always so upbeat and will come and hug you if you seem like you’re upset. She is always so positive and she is the best big sister/daughter/granddaughter/niece a person could ask for.
January 24th is Moebius awareness day. I am not asking for donations or anything like that I am just asking you to help me make people aware of this syndrome. My sister made this fucking fantastic video and all I am asking is to take 5 or 6 minutes out of your day and watch it. Maybe reblog this post and spread it around. I know this doesn’t fit in with any fandoms or anything but it would mean the world to me. You would be doing both me and Kali a huge favor.
Thank you so much!!