Guys, I’m seriously, seriously running out of time here, and I’m still some $1500 (more, with the fees included) off target.

Six days left. Please help me. I’m so scared it’s not going to work out. I won’t be able to pursue my educational interests. I won’t be able to undertake vision therapy to help me read books again. I won’t be able to go out and have fun and be an active member of my community and do all the things a 20-year-old should be able to do.

Please, please help me. I’m fucking scared. A dollar from each of my followers would pretty much put me right on target, but most of them haven’t reblogged this.

I need help. I need your help. I miss cosplaying, I miss conventions. I miss just little every day things like being able to go grocery shopping and not being so overwhelmed with pain and fatigue that I end up vomiting in the gutter.

Please, at least reblog, if you can’t donate. If it doesn’t work out, I don’t know what I will do.

I’ve often come across Autistic people who say, ‘I don’t see it as a disability.’ And then there are people who say they suffer from autism because they can’t get a job or they’ve been bullied. In …

This is about autism and the social model of disability.  If you have not heard about that, maybe read this.  It may give you words to articulate things you understand viscerally about your experience.  This is not something they teach in schools, at least not American public schools, with the possible exception of some colleges and universities, though it is certainly worth knowing.

anonymous said:

Can we talk about the "Instead of funding a cure for autism, we should work on getting people to be more accepting of them." ask? I don't see how this is ableist. it is saying stop trying to cure autism and rather learn and accept autistics the way they are. What is wrong with that?

[M/NThere is no ‘instead of’. There is nothing wrong with us. There is nothing to cure. That kind of thinking is what leads to the literal murder of autistic people.]

^^ this was on the original post

-queercomrade

Dealing with confusion in a costume store

Costume stores can be really overwhelming and difficult for some people. Here are some reasons, and some things that can help.

Sensory overload:

  • The most obvious problem is sensory overload
  • Costume stores tend to be loud and have a lot of strange sounds
  • Sometimes costume stores have spooky music or scream tracks, which can be scary as well as physically unpleasant
  • They also usually have bad lighting and often have strobe lights
  • Costume stores also usually crowded with loud people
  • They also might smell weird, especially if there are a lot of masks and makeup

Things that can help with sensory overload in a costume store:

  • Go at an unpopular time of day so it won’t be crowded
  • (And if the lights are a big problem, going during the day might be better than going at night)
  • Carry a stim toy to help manage overload
  • If you get overloaded and disoriented, holding onto something solid like a shelf for a few seconds can help to reorient yourself
  • Wear headphones or earbuds to block out the sounds or make them more tolerable
  • You might need to take a lot of breaks to be able to tolerate the store long enough to successfully buy something. That’s ok
  • If you’re helping someone else get a costume, it’s worth saying explicitly that it’s ok for them to take breaks if they need to
  • If you think they might need a break, it can be good to say that they look overwhelmed and ask if they want to go outside for a minute (but also take no for an answer. Sometimes we’re overloaded *and* want to keep going)

Unfamiliarity

  • Costume stores are temporary, and they change from year to year
  • So you aren’t familiar with the layout, which can be disorienting if you depend on memorization to navigate stores
  • Also, most people don’t buy costumes very often
  • (and aren’t necessarily familiar with what is sold in a costume store, even they buy costumes every year)
  • This can be disorienting if you rely heavily on routine to navigate stores and make purchasing decisions efficiently

Things that can help with unfamiliarity:

  • Think beforehand about what’s available in a costume store (eg: they usually have several different kinds of costumes in bags. They also have masks and wigs and hats. They also have facepaint and accessories.)
  • If you’re helping someone else, talk to them about the different kinds of things that costume stores have before you go
  • Sometimes you can look online to find the layout of the store
  • It might help to walk through the store once or twice together just to see what is there, without trying to make decisions right away
  • (Orienting is hard. Making unfamiliar decisions is hard. Doing both at once can be *really* hard).
  • If you’re planning to help someone else (especially if it’s a child) it can help to visit the costume store first yourself so that you know what is in the store and where the various things are
    (It’s easier to help someone else orient if you are already oriented)
  • You can look online to see which costumes are likely to be available this year
  • (You can also buy costumes online, but that runs the risk of ending up with something that’s not tolerable to wear.)
  • It might be better to buy costumes in a familiar store such as Target rather than an unfamiliar costume store. (That can also help with sensory overload since ordinary stores are less likely to have strobe lights, scream tracks, and extreme crowding)

Difficulty narrowing things down

  • There are a lot of options for costumes. It can be difficult to narrow down options
  • It can be especially difficult to narrow things down if you’re not sure what you want, but you know that you don’t like most of what you’re seeing
  • Or if you are having trouble processing what you’re seeing because of unfamiliarity, overload, or disorientation.

Some things that help with narrowing down options for someone else (I don’t really know any effective way to do this for yourself; there probably is one but I don’t know it):

An example of narrowing things down using categories:

  • You: Do you want to dress as a person or a thing?
  • Them: A person
  • You: A TV/movie character, a job, or something else?
  • Them: TV character
  • You: A superhero, or something else?
  • Them: Batman

Another example:

  • You: Do you want to look at the bag costumes, the makeup, or something else?
  • Them: Makeup
  • (then you walk together to the accessories area and they still look confused)
  • You: Do you want help narrowing it down, or do you just want to think about it?
  • Them: Think about it.
  • Them: I want cat makeup.
  • You: Do you also want a hat?
  • Them: No, a tail.

General advice for helping other people:

  • Don’t panic. It might be hard for someone to pick a costume no matter what you do
  • Helping means that you support them in ways that they welcome and find helpful
  • That doesn’t necessarily mean that buying a costume will be easy or comfortable for them
  • Things can be ok even if they’re hard or uncomfortable
  • If they don’t want to buy a costume in a costume store, that’s ok. If they want to do it even though it’s hard, that’s also ok.

It’s also possible to wear a costume without having to go to a costume store. Some other possibilities might be easier for some people.

For those of you reading this: What has helped you select costumes in an overwhelming store? What have you found effective in helping other people? Which things do you wish you knew a solution to?

This is our friend, Jackson. Jackson is 3 and loves music and dancing. Most days he can be found playing with this cars and trains! He received his Out of Print shirt through our partnership with KultureCity. KultureCity supports families of children with Autism. Many children with Autism struggle with sensory issues. The tags on most clothes can be huge distraction and source of uncomforted for them. Our shirts do not have tags and are made of super soft cotton, so for parents of children with Autism, that is one less thing to worry about!

Seasonal affective disorder is making me suicidal...

Don’t know what I am going to do. I can no longer deal with Washington weather. It is linearly making me suicidal and I have no way out. I don’t even know if I will live thru the winter. It has gotten that bad. Each year it gets worse. So if I do live thru this winter. Next winter I don’t even know. I am scared. I already have bi-polar as it is. Along with anxiety. SAD just makes things 100 times worse.

Watched Awakenings, and again it was really sad. But also very motivating and inspiring. I was even sadder when hearing today about the loss of one of the Autistic students at school today. He had just began to say small words such as "eye" and "nose". Watching his childhood videos made me so sad, but yet happy that he had learned all that he could, and more than anyone had expected him to. R.I.P.

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“People have forgotten what life is all about; they’ve forgotten what it is to be alive. They need to be reminded. They need to be reminded of what they have and what they can lose. What I feel is the joy of life, the gift of life, the freedom of life, the wonderment of life!”

                    —                  Leonard, Awakenings 

ATTENTION EVERYONE IN THE LA AREA!!

My cousin, TALLON, was reported MISSING today. He is an AUTISTIC BLACK TEEN AND IS COMPLETEY NON-VERBAL. HE DOES NOT RESPOND TO HIS NAME. This young man went out for his daily bike ride, unattended, and did not come back. Tonight, HE IS IN LA BY HIMSELF. He is 6’0, 200lbs, and was last seen wearing a white t shirt and khaki shorts. PLEASE SIGNAL BOOST!!

Please do not make a gif your blog background!

You could give someone with epilepsy a seizure!

You could give someone with autism overload!

You could make it really really hard for people with a million different kinds of disabilities to actually read what you write! And you want that audience and you also want to be considerate of others!

This has been a PSA.

Disabled people don’t have special needs. We have very reasonable human needs. Our needs include freedom from abuse, violence, and mistreatment, the right to autonomy and self-direction, the right to represent ourselves, equal opportunity for education and employment, the right to accommodation, and societal inclusion and acceptance.

The need for accommodation isn’t a “special need”. It’s a basic human right. It’s a leveling of the playing field that allows us the same opportunities and chances as non-disabled people.

—  Amythest Schaber, http://neurowonderful.tumblr.com/
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how many people with autism can do math so well is because they have the ability to associate large sums, numbers or equations to shapes…this is considered a type of synesthesia. In autistic terms, if we can see it, we can do it. that is why some autistic people like me struggle so much with learning new languages or algebra…because we can’t picture such things in our minds, and we are visual thinkers.

wanna get tested for synesthesia for free? Go here:

http://www.synesthete.org/

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