Prohibirle algo a un joven es la forma más fácil de convertirlo en algo épico y digno de lucha.
—  Mi papá (Ni idea si parafrasea a alguien)

Autism isn’t something a person has, or a “shell” that a person is trapped inside. There’s no normal child hidden behind the autism. Autism is a way of being. It is pervasive; it colors every experience, every sensation, perception, thought, emotion, and encounter, every aspect of existence. It is not possible to separate the autism from the person—and if it were possible, the person you’d have left would not be the same person you started with.

This is important, so take a moment to consider it: Autism is a way of being. It is not possible to separate the person from the autism.

Therefore, when parents say,

I wish my child did not have autism,
what they’re really saying is,
I wish the autistic child I have did not exist, and I had a different (non-autistic) child instead.
Read that again. This is what we hear when you mourn over our existence. This is what we hear when you pray for a cure. This is what we know, when you tell us of your fondest hopes and dreams for us: that your greatest wish is that one day we will cease to be, and strangers you can love will move in behind our faces.

—  —Jim Sinclair, Don’t Morun for Us

Appreciation for all the Autistics out there who have executive functioning problems/issues with processing, remembering and organising information and as a result often feel like they frustrate others and themselves.

  • Me:*Points at a character* Well, they're autistic
  • Other people:No please...you're fetisishing, romanticising a very serious condition...everyone is allistic, please don't make us think about you
  • Me:*Points at character* Love that autistic character

From Parenting Autistic Children with Love & Acceptance

"Compliance based therapies such as ABA leave Autistic adults and children vulnerable to abuse and exploitation."

“More than ninety percent (90%) of people (both male and female) with developmental disabilities will experience sexual abuse at some point in their lives. Forty-nine percent (49%) will experience ten or more abuse incidents. (Valenti-Hein, D. & Schwartz, L. (1995). The Sexual Abuse …Interview for Those with Developmental Disabilities. James Stanfield Company. Santa Barbara: California)”

*edited to add more accurate, and sadly, even HIGHER statistics of abuse rates.

“A report by vera.org in reference to the sexual abuse of developmentally disabled children (this report only studies the abuse of children. However, the long term effects of compliance based training leaving Disabled people susceptible to abuse extend well into adulthood): “

http://www.vera.org/sites/default/files/resources/downloads/sexual-abuse-of-children-with-disabilities-national-snapshot.pdf

Findings of a survey from The Disability & Abuse Project (adults & children):

http://disability-abuse.com/survey/findings.pdf

Prevalence of Violence against Disabled individuals:

http://www.mass.gov/dppc/abuse-recognize/prevalence-of-violence.html

“Forced compliance training leaves developmentally disabled people at risk. Is it a risk you are willing to take with your child?”

Image: Yellow text reads: “If you know the stats on sexual abuse of developmentally disabled people & still continue with a compliance based program, you are grooming your child for future abuse.” on green textured background.

Autistikids is a way to quickly and easily connect people who are interested in learning about autism from a wide range of people who are ON the spectrum, and some parent allies. 

There is a lot of information online about autism. Almost all of the easily accessible information is written by non-autistic professionals, providers, therapists, and parents of autistic children. Some of these resources can be very helpful, others harmful, and almost all of them fail to convey the point of view of people on the spectrum.  Trying to navigate this maze of information takes a lot of time and energy, and can lead to dead ends, misinformation, hopeless pronouncements, and a level of negativity discouraging to even the most strong-willed of people.

If you’re lucky, you find a blog or an article that gives you hope and a lot of good information; that ideally leads to more inspiring and enlightening resources. If you’re VERY lucky, you discover the best resource on autism available - AUTISTIC PEOPLE.

They quote us and link us (autistic people) as the best resources, along with a few good parent allies - this needs a signal boost.

There is apparently an article circulating about how there’s a CDC “whistleblower” who has blown the cover off the vaccines cause autism conspiracy.

Please do not share this as it’s 1) scientifically bunk and 2) has led to the deaths of autistic children through a process known as “chelation therapy” which seeks to treat “vaccine-injured” children by taking away “heavy metals in the blood.” Chelation therapy also causes people to suffocate when there is no heavy metal poisoning in a person, as was the case for these autistic children.

We also ask you to critically analyze the ableism inherent in anti-vaccine ideas. Vaccines save lives by making us immune to potentially deadly pathogens like chickenpox, measles, mumps, rubella, and other diseases. So by wanting to avoid something which can save a person’s life for fear of that person becoming autistic, the underlying assumption is that autism is worse than death.

This is ableist. This is dehumanizing. Please do not contribute to these attitudes by sharing that article. Thank you.

Sincerely, the Autistic President of Disabled Abled Coalition. 

Chemical Derived from Broccoli Sprouts Shows Promise in Treating Autism

Results of a small clinical trial suggest that a chemical derived from broccoli sprouts — and best known for claims that it can help prevent certain cancers — may ease classic behavioral symptoms in those with autism spectrum disorders (ASDs).

The study, a joint effort by scientists at MassGeneral Hospital for Children and the Johns Hopkins University School of Medicine, involved 40 teenage boys and young men, ages 13 to 27, with moderate to severe autism.

In a report published online in the journal Proceedings of the National Academy of Sciences during the week of Oct. 13, the researchers say that many of those who received a daily dose of the chemical sulforaphane experienced substantial improvements in their social interaction and verbal communication, along with decreases in repetitive, ritualistic behaviors, compared to those who received a placebo.

“We believe that this may be preliminary evidence for the first treatment for autism that improves symptoms by apparently correcting some of the underlying cellular problems,” says Paul Talalay, M.D., professor of pharmacology and molecular sciences, who has researched these vegetable compounds for the past 25 years.

“We are far from being able to declare a victory over autism, but this gives us important insights into what might help,” says co-investigator Andrew Zimmerman, M.D., now a professor of pediatric neurology at UMass Memorial Medical Center.

Read more

Autism Analogy (For Those Who Understand Computers)

While I appreciate that this will still be lost on many people, it’s the best way I’ve come up with for describing my autism.

I run Linux (it doesn’t matter which Linux - let’s assume Ubuntu). NTs run Windows.

Sure, Windows is more user friendly and has more functionality in some areas. Linux takes a bit more know-how to do some of the things which are fairly simple on Windows. But Linux is better for other things, if you know how to use it.

Sure, some programs take some effort to get running, and sometimes you just have to give in and run it through a Windows emulator, which is harder work for the system.

But most of the problems come from the fact that the majority of other people run Windows, and assume you do too.

Even your work assumes you run it, and everything is built around that assumption.

A lot of people don’t develop for Linux since they don’t consider you a large enough demographic to bother. Hell, Valve are the only ones pushing for games to be developed for you.

So, you use what you can. Open Office is just as good as Microsoft, even if the functionality is a little different.

The issue is sending files to other people. They try to open them in MS Office and it does work, but it might not get all of the formatting right. Seemingly a little thing, but it’ll be enough for co-workers and friends to exclaim “It would be so much easier if you just ran Windows!”

And you want to tell them that it would also be easier if they ran Linux. But, of course, they would tell you that was ridiculous. Who wants to put up with that?

But they don’t seem to mind when you manage to do your work faster than they thought possible, because you weren’t trying to run everything through a clunky OS, or an emulator.

Not to mention the mess that is Windows 8…

- Caroline

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